Hep C Treatment combo Sovaldi & Olysio with Hep C Patient Tammy, part 1

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Hep C Warrior Tammy

Hep C Warrior Tammy

One of the newest Hep C Treatment combinations is Sovaldi & Olysio, which is Interferon and Ribavirin free.  Hep C Patient Tammy shares her combo treatment experience with us this week.

 

Sovaldi (Sofosbuvir) is manufactured by Gilead Sciences and Olysio (Simprevir) is manufactured by Johnson & Johnson.  These two drugs are both direct anti viral agents and can be used off label in combination without the use of Interferon or Ribavirin.  Hep C patients genotype, liver condition and past treatment history all help determine which Hep C treatment is best suited for each patient.

 

For those who cannot tolerate Interferon or Ribavirin, using this off label combination is a good alternative.  Hep C Warrior Tammy joins us in an Interview sharing her treatment experience with Sovaldi & Olysio.

 

Connie:  Tammy, can you tell us when you were first diagnosed with Hep C?

Tammy: Yes, I was diagnosed in February 2013.

 

Connie:  What Genotype are you?

Tammy: I am Genotype 1b.

 

Connie: What stage was your Hep C prior to starting treatment?

Tammy:  I was stage 4 fibrosis, and in early stages of cirrhosis.

 

Connie:  Have you done treatment for Hep C before? If so, what treatment drugs were used and when?

Tammy:  I was placed on Pegasus Interferon, Ribavirin and Incivek in June 2013.  I had an adverse reaction to the Interferon and was removed from treatment after three months.

 

Connie:  What treatment meds are you currently doing? What date did you begin this treatment?

Tammy:  I began the new treatment using Sovaldi and Olysio together in January 2014.  In this treatment I only take Sovaldi and Olysio and nothing else for 12 weeks.  I thank God I don’t have to do Interferon or Ribavirin!

 

Connie:  What side effects have you experienced in your current treatment?  Can you compare your current experience to past side effects from previous treatment?

Tammy:  I have NO SIDE EFFECTS on this new treatment! When I was on the Interferon, Ribavirin and Incivek, I had all the horrible side effects that went with those meds.  I had severe eye troubles and cotton wool spots in my eyes which was why they stopped my initial treatment.  I was exhausted all the time due to the anemia and had lots of hair loss and was freezing cold all the time, even in 100 degree weather.

With this new treatment, my life is normal.  I put my pill bottles next to my make up in the bathroom so that I remember to take it every day.  It is so easy, that I can easily forget to take it!

 

Connie:  Thank you Tammy for sharing with us today.  We look forward to hearing more about your treatment experience with Sovaldi & Olysio tomorrow in part 2.

 

Can you relate to any Hep C treatment experience?

 

More to read:

  1. New Hope, New Life, All Things Possible.
  2. New Hepatitis C Drug Approved by FDA; Sovaldi (Sofosbuvir) by Gilead Sciences.
  3. New Hepatitis C Drug Approved; Simprevir (Olysio) by Johnson and Johnson.
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257 Responses to Hep C Treatment combo Sovaldi & Olysio with Hep C Patient Tammy, part 1

  1. Margaret Polino Nicholas April 1, 2014 at 1:34 am #

    This is very interesting. I am suppose to go on this treatment. Can’t wait to hear the rest of your interview. Not without a fight!

    • Connie M April 1, 2014 at 11:32 am #

      Hi Margee,
      Thanks for commenting. There is so much progress with new treatments and I am so thankful more is being offered to help Hep C patients than ever. This combo may be one you might want to discuss with your specialist.
      You have some good options. Let me know how things are going.

      Praying for you dear friend.
      Blessings,
      Connie

      • Daniel A October 4, 2014 at 3:52 pm #

        My husband went on the solvadi and ribavirin and after 13 days he was DONE!! Hehas every side effect just like the interferon and ribavirin 4 years back to back. I am perplexed to have him try anything and its so awful. I need us to talk to someone as he had chirrosis, geno type 1a and hes not himself. In fact he quit on the 29th after having the ribavirin..HELP
        Faith A (his wife)

        • richard October 4, 2014 at 7:38 pm #

          Daniel, you are the first person I am aware of that had such bad side effects. I just finished solvaldi/olysio/ribavirin in August. Minor side effects. Much easier then interferon. Had chemoembolization, liver cancer, liver transplant within last year. Perhaps your liver is cirrhotic? You should call solvaldi/Gilead. It was probably the ribavirin, but you need to go to your hepatologist, hopefully he is at a transplant center. May our Lord Jesus Christ protect you. God bless, richard

          • gary February 18, 2015 at 7:03 pm #

            Richard- I am researching this very subject as my in-law has Hep-c with cirhossis and now told he has stage 2 liver cancer, and was on Sovaldi and olysio. they are recommending chemo-embolism, and I wonder if the cause of his “tumor” might have been the drugs, since he didn’t have them a few months ago…ANy comments would be helpful from you since your case sounds similar. Thanks, Gary

        • Connie M October 5, 2014 at 8:02 pm #

          Hi there Daniel,
          I am so sorry to hear your husband had this reaction. I strongly believe it was the ribavirin that caused this. There are some people who can not take ribavirin due to severe side effects. The good news about the brand new treatments coming out is that many will not include ribavirin. The brand new treatment will also be interferon free. I would advise call Gilead and talk to someone there at the nurse hotline here is the number: 1-855-7-My Path or 1-855-769-7284. http://www.mysupportpath.com/

          I would like to encourage you & your husband to not give up with treatment. There is the right one out there that will give him the cure. This coming week on October 10th is when the FDA is releasing the new approval for Sovaldi/Ledipasvir. Which has had extremely good results without Interferon and Ribavirin. It has a very high cure rate. Please stay tuned here on the website for new articles coming out about this new treatment.

          Feel free to let me know if you have any questions and how we can help. We are here for y’all. Keep us posted on how things are going.

          Blessings,
          Connie

        • Susan Mc December 12, 2014 at 1:31 pm #

          Its the ribavirin that is giving him the side effects. The new combo is solidi and Olysio. 94 percent cure rate.

          • JT January 31, 2015 at 11:26 am #

            Any updates on anyone taking the meds? I’m coming up on week four and have heard of people dropping off. I almost drop the meds. but it was due to the out of pocket cost of the meds. I would love to hear how people have faired after take the meds?

        • bill February 2, 2015 at 1:24 pm #

          hi there.read your post.i didnt react very well to the ribavirin.it can make you feel very unwell.i was geno type 1b and cirrrotic.seuck with it and was virus undetected at week 12.mind you there were plenty of times i wanted to throw in the towel.but after 25 years of having the virus.and the last 3 years of feeling really bad there was no choice.its 8 weeks since treatment.am still getting over effects of treatment.time is a great healer and with the lord by tour side who or what can be againsf you god bless

          • yanin February 23, 2015 at 6:51 pm #

            No hablo english alquien que pueda escribirme en espanol.

      • Tom November 2, 2015 at 4:05 pm #

        One month ago i started the new treatment (sovaldi) combined with the Hell interferon and ribarvin because my genotype is 1 a no cirrhosis I’m also hiv positive with well controlled viral load!

        The sovaldi is easy to forget because 0 side effects but the interferon and ribarvin are Hell especially the interferon

        The side effects of the interferon varies every week

        When I did my first shot I got really sick I thought I was going to die

        But the good thing is that this treatments only last 12 weeks. 12 weeks of Hell but it’s worth it 99.9% cure that what the Dr told me

        The cone of this treatment is that sovaldi is very expensive only few people are eligible

        I call my self very lucky I’m 2nd person from my clinic to get this treatment under nhs even people with hiv are not eligible for this treatment unless they have advanced liver disease
        But hopefully nhs will soon make this treatment available for everyone!

        • Richard s. November 2, 2015 at 9:06 pm #

          Tom, I am surprised that any doctor would still give interferon. Real poison. Believe it or not on was on this poison for two years back in 1998/1999. I am sorry they put you through this and didnt give you Harvoni. Drink alot of purified water, stay out of the sun, and try to take the interferon at night. I am assuming the interferon is pegalated and not regular. Praise be to the Lord Jesus Christ that almost all doctors who use interferon, use pegulated. Connie has many good articles on releving side effects. Please e mail her.in Christ, Richard.

        • Connie M November 3, 2015 at 2:35 pm #

          Hello Tom,
          So sorry you are having to go through this. With genotype 1 there are more options for treatment that are interferon free, but I have done treatment 3 times myself and all of them included interferon. My third treatment was a combination of 3 meds, and it was the one that worked for me.

          Keep us posted on how you’re doing.
          You are in my prayers as you continue treatment and for the cure.
          Blessings,
          Connie

    • sherry May 27, 2014 at 10:26 am #

      I just finished 12 weeks of Sovaldi and Olysio combination off label. I was the first to be prescribed by physician and paid by insurance. I have had very few side effects. Hyper photo sensitive, and tingling in fingers and feet…just an annoyance and inconvenience. I have been a little fatigued. I have not had my final labs, however my bilirubin 1.9 are on the line of normal to high and potassium is low. All my other labs are amazing, ALT 19 and AST 29. Entire out of pocket $120.00…well worth it! Cigna Insurance. Final test in 2 weeks. I am very hopeful. One last note. It does take a while for the drugs to get out of system…so don’t forget sun screen!

      • Connie M May 27, 2014 at 3:53 pm #

        Hi Sherry,
        Thank you so much for sharing your treatment experience with Sovaldi and Olysio. We are so excited to hear your labs are so good. Yay!!!!! It is amazing and a huge Praise to God that you were able to do this treatment and with fewer side effects and a lower co payment. Wow! Very encouraging and hopeful news to so many others. Thank you again for sharing this!

        Please keep us posted on how you’re doing.
        Praying for you.
        Blessings fellow warrior,
        Connie

      • Rileyann May 27, 2014 at 11:14 pm #

        Hi Sherry,
        I just read your post from yesterday, praise God I’m so happy for you. I’m on the same treatment, just passed day #69 and 15 days to go to the finish line. My hepatologist advises post treatment labs in Sept. and December. I was undetected already and praying it will stay that way. Good point about using sunscreen even after treatment…Again, congrats and God Bless,
        RileyAnn

    • steve August 5, 2014 at 7:38 pm #

      hi, i just 6 days in for treating HCV 1a with only Solvadi and Olysio; see how it goes? There are no side-effect that i am having with these to ‘off the label’ prescription.

      • Connie M August 7, 2014 at 3:22 pm #

        Hi Steve,
        Congratulations on being at your week 1 Mile Marker! Sounds like you are doing great. So glad to hear it. Thank you for sharing.

        Keep us posted on how you’re doing.
        You are in my prayers.
        Blessings fellow warrior,
        Connie

  2. Nancy Tobias April 1, 2014 at 6:37 am #

    Hi Tammy,

    Thank you for sharing! I too am on Sovaldi and Olysio. I am at the end of week 6 in the 12 week treatment. My latest blood work says my Hep C is now undetectable!

    I too think the drugs are easy. The Olysio causes a few problems but nothing awful. My doctor told me he is seeing a lot of UTIs, even in men. Most people must take food with Olysio to prevent stomach upset. I have a strange rash on my lower legs that they are not worried about at this point from the Olysio.

    I was told to drink lots and lots of water.

    These drugs are a blessing, as is this website!

    Go Warriors!!

    • Connie M April 1, 2014 at 11:36 am #

      Hi Nancy,
      Thank you for sharing today. It means alot for others to hear others treatment experience and the results. I am so thrilled for you that you are NON-DETECTED!!! Congratulations!!!! What a tremendous blessing to get this result and for treatment to only last 12 weeks. You are half way there!

      I was also told to drink tons of water on my treatment also. It helps.
      You are in my thoughts and prayers each day.

      Indeed, Go Warriors!
      Blessings friend,
      Connie

    • Sandra Edwards May 28, 2014 at 8:03 am #

      I found this interesting about UTI’s. I have had to trips to ER first ending up in overnight stay. Bad infection, stone. Could not remove stone and a stent was put in. I actually go this Friday to have it removed, stone busted and a new stent put in temporarily. I wondered about this. But no one seemed to know if there was any chance that the drugs may have contributed to this. I’m 67 years old and never had this problem before.

  3. Connie M April 1, 2014 at 11:41 am #

    Hi Tammy,
    Way to Go! Great post! I couldn’t help but think how the Lord is working in such a mighty way through each Hep C Warrior’s experience. Everyone’s experience is alittle different, yet we all have common ground. Thank you for reaching out and sharing. You are touching the lives of so many with encouragment and hope through sharing your story.

    Can’t wait for the rest of the story…
    Blessings my friend,
    Connie

  4. John Edwards April 1, 2014 at 12:51 pm #

    Hi Everyone, sorry it’ been so long since I have been on the site, yet I think of you all nearly every day. I hope you are all well and blessed.
    I am now almost 8 months into the treatment, The Hep is still ‘Non Detectable’ Thank God. I have had a full dose of side effects but I have managed to keep going with our ministry, going out now and again to preach and do other things. I have had to get 32 units of blood over the last few months due to my bone marrow not producing haemoglobin, the count has been down as low as 6.5 and my platelets have been hovering around 22 -40. when they should be 150.
    I find that to keep a good attitude and talk to my wife and close friends is helping a lot, of course, prayer, worship music and reading the word is the best thing.
    God has opened many doors during my treatment, I now work in Belfast, speaking to former paramilitaries, (IRA and UDA) they want me to come in and work with their communities, since the troubles stopped many are committing suicide, I have also been in speaking with TOP government ministers, seems doors are opening for me to be a “Voice For The Addict’ in Ireland and Britain.
    I have rashes, sickness, tiredness, palpitations, I’m moody, angry sometimes but I am pressing into God every day. I must mention that my wife Trish has been amazing and I could not have done this without her. I will speak again to you all soon. May God bless you all, keep on keeping on, for me…at last the end is coming into sight. 15 more weeks and I am done, were organising a BIG Holy Ghost Party, if you lived here you could come. I may film some for you all to see. Hallelujah, God is good. John Edwards

    • rileyann April 1, 2014 at 1:25 pm #

      Hi John,
      What an interesting place to live – Belfast! Praise God your hep c is undetectable. I hope you do film the Holy Ghost party. Looking forward to reading of your progress. You are right about reading the Word – God’s medicine. Blessings to you all and your ministry,
      Sincerely, Rileyann

    • Connie M April 1, 2014 at 1:46 pm #

      Hi John,
      Thank you for sharing today. We have missed hearing your wonderful voice. I am so over the moon excited to hear your Non-Detected and only 15 more Mile Markers to go before finishing treatment. You are coming on the finish line, to the summit with victory. You are a brave and courageous warrior my friend. John, you certainly have been through a lot with having gone through a transplant, this long treatment and needing blood so often. I believe God has made you to be a man of steel. You remind me so much of JD.

      I am so happy to hear of all the fabulous doors that are opening for ministry there in Ireland. Both my husband and my ancestors came from Ireland, county Tyrone which I know is close to Belfast. It has always been a desire of mine to go back to our roots and visit where our family came from. Perhaps one day we can. If so, I would love to meet up with you if possible.

      Keep us posted John with all your progress in health and ministry. I wish we could all be there to celebrate with you, but you know we are with you in spirit.

      Praying and Cheering for you my friend every step of the way. Hope you can hear us all hoot and hollering with joy as you come to the finish line. We are so proud of you!!!

      Many Blessings,
      Connie

    • Posha April 5, 2014 at 4:19 pm #

      Hello I just took my first dose today, I do have faith and know this time I will be cured; I am so happy I found this site so I can read testimonies and have support on this journey.

      Thanks, Pastor Posha

      • Connie M April 6, 2014 at 3:51 pm #

        Hi Posha,
        Thank you for writing and sharing your treatment start date. So happy for you as you begin this treatment and on your way to great progress to rid HCV.
        Keep us posted on how you are doing.
        You are in my prayers daily.

        Blessings,
        Connie

    • Susan Friedman August 8, 2014 at 3:35 pm #

      Hi John,
      My name is Susan from Phoenix, AZ. I’m on my third day of treatment with Olysio/Solvadi so far just upset stomach in the morning. I tried the old treatments 3 time and it did not work. John please pray for me that God will bless me and I will be Hep C free this time.
      Thank you for your post and prayers.
      God will help me this time I know it and love him.
      Susan

      • Connie M August 12, 2014 at 3:53 pm #

        Hi Susan,
        Thank you for writing and sharing about your treatment and prayer request. I do know what it is like with 2 prior treatments that did not work, but my third treatment was the one that did it. Now I am Hep C free! You are on a very good treatment with a high cure rate. Be sure to talk with your doctor about a prescription for upset stomach. Zoforan works great and fast.
        You are in my prayers for a successful treatment.
        Keep us posted on how you are doing.

        Praying and Cheering for you!
        Blessings fellow warrior,
        Connie

  5. rileyann April 1, 2014 at 1:36 pm #

    Hi Nancy,

    Congrats on your good report. That must be a wonderful relief to read ‘virus undetected’.

    Tammy, thank you for sharing your story, Part I. I really appreciated it.

    I met with my Hepatologist earlier today and she ordered labs. I’m on day #13 Sovaldi/Olysio. I feel amazingly well considering it has not quite been 2 weeks. I did not want to give more blood than I had to for the labs, but it got done. This combo is not for everyone, but I’m grateful to God for having the chance to get it. I got a second grant toward the co-pays. Glory to God, it was a miracle. The clinic I’m evaluated by has upwards of 1000 patients! God met me at my point of need the exact day the drugs arrived. Nap time….God bless all of you in your journeys.

    Rileyann

  6. Suzanne April 2, 2014 at 9:36 am #

    Hi Tammy,

    We all have different stories and different medicines. It seems as though the new meds are getting better and better. I have been on Sovaldi/Ribavirin and stopped my 12 weeks last Monday. The was no comparison with the triple therapy and this new drug. Most of my days were good. I read back over my journal I had kept and couldn’t believe how much I had grown with Christ into the person I wanted to be. I am now in my thankfulness journal and can fill up a page quickly.

    I received a call from the pharmacy yesterday and asked me if I would be willing to sit down and talk with any patients that will soon begin on what I finished up last week. They will honor my Hipha. I told them I would love to share my experience with them. I was the 1st @ Target pharmacy to begin on this new drug. Anywhere I can help I will. We are all in this together.

    Thank you for sharing your story with us and will leave everyone with this. This scripture came from 2 Corinthians 4:7, Isaiah 30:15. “Let me fill you with my love, joy and peace. These are glory gifts. I designed for you to be filled with heavenly contents. Your weakness is not a deterrent to being filled with my spirit; on the contrary, it provides an opportunity of my power to shine forth more brightly.”

    God Bless,

    Suzanne N.

    I had a friend stop over yesterday and gave me a book which happens to be #1 New York Times bestselling author Debbie Macomber and is called One Simple Act; Discovering the Power of Generosity and this book is great.

    • Mike H. April 3, 2014 at 10:14 pm #

      Suzanne, congratulations! This is huge praise to God! Thanks for sharing your successful treatment with us. My first visit with the specialist isn’t until April 23. It is nice to hear that there is more than one successful way to treat Hep C. I feel very fortunate to have been diagnosed now. I will pray for your continuing good health- all things are possible with God indeed!

  7. Teresa April 2, 2014 at 4:29 pm #

    I will begin Olysia & Solvaldi in a couple of days. I am my doctors first case on these two new drugs after 7 weeks of torture during triple Incivek Thearpy.
    Insurance companies are currently paying $1,000 a pill for the new drugs that were just FDA approved in December this year. The same drug in Egypt is $10.00 a pill. Just sayn.

    • Connie M April 2, 2014 at 4:37 pm #

      Hi Teresa,
      Thank you for sharing about your treatment start time and information. We are hearing more and more reports of Sovaldi becoming available in other countries. I believe within this coming year we will see it as well as more treatment available to people all over the world. And prices do vary depending on the country that is true.

      Keep us posted how you are doing as you begin treatment.
      You are in my prayers.
      Blessings,
      Connie

  8. rileyann April 3, 2014 at 9:43 pm #

    Teresa,
    I pray all goes well for you on this off label treatment. I’m on it too. Looking forward to reading more of everyone’s treatment progress and outcomes.
    Blessings and hope,
    rileyann

  9. Theadessa April 14, 2014 at 7:47 pm #

    I went to my doctor today and she told me about the olysio/sovaldi combo. I did the interferon/ribavivin combo several years ago and it almost took me out had to stop the treatment before I got to the end it really beat be down. Don’t ever want to do that again. When she told me about this combo I must say I was excited. Can’t wait to try it. Got to do some blood work first. Other treatment don’t work well in African Americans or people with type 2 diabetes. But she is still hopeful and so am I with this combo these thing shouldn’t hinder the treatment. Can’t wait to be “cured”. I am going to water this treatment with prayer and God’s word. To God be the Glory.

    • Mike H. April 15, 2014 at 12:09 am #

      Hi Theadessa,
      It is exciting to hear about your new treatment. I am sorry that you had to endure unsuccessful treatments with side effects prior to this. I am also waiting to hear what direction my specialist wants to take. I see him for the first time on April 23. I am genotype 1a. How about you?
      Connie M. And all the HepC Warriors here have been a tremendous support to me since my diagnosis. God is definitely at work here on this site-all things are possible through Christ who cares for us! I will be praying for you.
      Mike

    • Connie M April 16, 2014 at 1:29 pm #

      Hi Theadessa,
      Thank you for sharing. We are excited as well about this new treatment combo. Seeing lots of success with this new treatment. Great progress is being made more than ever before for more treatment options.

      Later this year in October another new treatment combination with all oral pills is reported to be approved and released with a 97% cure rate and shorter treatment duration.

      We stand with you in prayer for your treatment and preparation decisions. If you have any questions or need information feel free to ask. Please keep us posted on how things are going.
      We are here for you!

      Prayers & Blessings fellow warrior,
      Connie

  10. Nancy April 16, 2014 at 7:35 pm #

    Hi Connie,
    I was riding high, been on Olysio and Solvaldi treatment for 8 weeks. Virus not detected week 4. Feeling horrible for several days. LDH came back high and doctor today told me to stop Olysio and just stay on Sovaldi. I am so worried the magic drugs are not going to do it for me. Waited years for them. Stage 3. Dr. thinks Olysio is reason for sudden extreme muscle aches ( hard time moving), rash, pain. Has anyone else had issues with Olysio? I am very depressed. I understand virus can reappear as I only made it to week 8?

    • Connie M April 17, 2014 at 7:23 pm #

      Hi Nancy,
      It is very possible that you could come back Non-Detected. I have heard of this happening one other time when the patient was Non-Detected, then later virus became Detected then it went back to Non-Detected and stayed there. Above all, don’t lose heart. The battle is NOT over.

      First, you don’t know yet what is going to happen in the next 4 weeks. Second, no matter what, you have beaten the virus down and that has helped your liver.
      Third, you don’t know what God has planned, but He does have a plan for you that is good. Don’t lose hope.

      I saw my hepatologist today who is very on top of the latest treatments and very educated on the future ones. He told me today that within this year, there are going to be two brand new treatments added and next year there will be another two. He said the treatments are getting better each time, shorter treatment, higher cure rates, less side effects. Over all He said by next year there will be a greater options for treatment than ever before in Hep C history and Hep C will become history!

      Girl, it took me 3 times with treatment before the last one did it for me. I totally understand you feel like your world has been rocked with this latest news, I know how I felt when I went through it. But stand your ground and keep holding on to God’s hand. He will get you through this. Many times we don’t understand why we have to go through what we do, but YOU will be OK. NEVER, NEVER, Give up!

      Have you called the Olysio Nurse hotline to ask them some detail questions about the muscle issues?

      Keep me posted on how you are doing. I stopped as soon as I read your note and prayed.
      Jesus said, “Don’t be afraid. Take Courage. I am here.” Matthew 14:27

      I am standing with you every step of the way!
      Love & Prayers my fellow warrior,
      Connie

      • Joyce June 19, 2014 at 2:09 pm #

        Hi how do I get the number for the Olysio nurse hotline you spoke about and is there a Sovaldi hotline too?

        • Beth June 19, 2014 at 3:58 pm #

          Hi Joyce if you get on http://www.Olysio.com there info about it or call 1-855-5-OLYSIO..
          And if you get on Gilead.com and Click on the Sovaldi Tab there is info for the Support Path..
          I wish you the best in finding what you need..
          Blessings

          Beth

        • Connie M June 23, 2014 at 1:33 pm #

          Hi Joyce,
          Here are the numbers you asked for:
          Olysio: 1-855-5-Olysio

          For Gilead for Sovaldi:
          1-855-7-Mypath or 1-855-769-7284

          Keep us posted on how things are going.
          Blessings,
          Connie

    • Carrie Radu April 30, 2014 at 4:57 pm #

      Hi Nancy, I just started the combo treatment myself 8 days ago. I had muscle aches before I started and called the Dr. today. I am having extreme muscle aches so that even do my daily tasks. I hope the Dr. does not tell me that I have to quit. I feel better everywhere else. I will keep you in my prayers as you only had 4 more weeks to go. Hopefully, yours won’t come back. I have been waiting for the combo for almost a year.

      • Connie M April 30, 2014 at 7:10 pm #

        Hi Carrie,
        Thank you for sharing your treatment experience. It is good information to know so others know they are not alone. I have heard some doctors adjusting dosage to help with the muscle aches. Keep us posted on how you are doing.

        Feel free to join us on our online support group each Friday, Hep C Warriors Friday Forum Support Group. You will be in good company of caring folks who are doing the same treatment and can give treatment help tips as well as prayer support the whole way through.

        Blessings fellow warrior,
        Connie

    • Anna June 4, 2014 at 8:31 am #

      I have been depressed since June 2 visit with hepatologist. He made me feel guilty for being “the only one of my 150 patients on this treatment who has not had a total viral clearance after week 4.” After week 8, I was 20, down from 150, down from 5.6 million. He refused to do bloodwork, since I was a disappointment to him, and he wants me to wait until the middle of August to see what is going on. He also said I must be doing something else with herbs, or else have some “weird mutation.” I told him I do do herbs, but the only herbs mentioned NOT to take were St. Johns Wort, which I do not take, and milk thistle, which I discontinued after checking that it should not be taken with olysio. I think it is highly insensitive to blame me. I was riding high, and 20 is only 5 more than “undetectable” so I don’t know what’s going on. He also said “there may be something else going on with you.” But he didn’t say what that something else might be. He then said that I might have to wait until the end of the year for the new super drugs coming around at that time. Has anyone else had this sort of negative response from their doc?

      • Mike H. June 4, 2014 at 11:41 pm #

        Anna, I am so sorry to hear about your treatment at the hands of what seems to be a somewhat unprofessional approach to patient care. I am surprised that he did not increase your testing rather than decrease it. Is more information not a good thing in trying to determine why you had such an unusual response to treatment?
        Don’t give up hope! I would encourage you to seek another opinion. He is right about the new drugs coming this fall. My doctor also suggested that I wait for 1-2 years and encouraged me to exercise and eat a healthy diet, advise which I am following.
        Don’t lose hope and focus on The Lord who loves you and has a plan for you.
        Praying for you,
        Mike H.

      • Sandra June 9, 2014 at 12:50 pm #

        Hi Anna,I was reading about your treatment with the olysio/solvadi. I did 12 weeks of this treatment as well. In the begining I was also undetectable for the hep c virus. I had 3 labs that said the virus was gone . When i took the last lab 1 month after I finished treatment the vurus came back ! My Dr. told me that I was the only one out of his 45 patients to fail the treatment ! He was disappointed, and said the virus must have mutated what ever that means . I am VERY DEPRESSED TOO ! I thought that this hep c was finally gone after 43 years . My Dr. made an appointment for November. He said that is when another medicine will be available either solvadi/ledapersfer or abbie v new treatment coming soon. In the meantime I am sick over it coming back .Sorry to hear that you are having simolar issues. I hope yours is gone .FOR GOOD God bless you take care. Sandra P.S. I never took any herbs or vitamins for that matter so it looks like that is not a reason for it to come back !

      • Connie M June 10, 2014 at 12:25 pm #

        Hi Anna,
        I am so sorry to hear you were treated this way by your doctor. Unfortunately, there are those in the medical profession that are callus to how patients feel. I feel he should have run more tests and been more sensitive and supportive with you.
        Don’t accept the “guilt” he made you feel. Every Hep C Warrior fights hard in battle. I once had a bad experience with a doctor years ago over Hep C and I changed doctors. Pray about it and see if that is something you need to do. Regardless of the treatment outcome, your healthcare team should be working and supporting you. Don’t give up! If you responded well to this treatment, you will kill it for sure in the next treatment ahead.

        Praying for you as you prepare ahead.
        Blessings fellow warrior,
        Connie

      • Paul June 15, 2014 at 9:09 pm #

        Anna, so sorry you came so close. If you were treated with another protease inhibitor you might have had some resistance. I’ve had problems getting answers when I brought up concerns with my gastro doctor. I don’t know how advanced you are but it would have been nice if he had contacted the insurance company and had asked if you could have continued for another month and even added some ribivarin to knock it down. You are just hurting yourself and will become even more depressed if you dwell on it. When I let one of the woman at the clinic know that I had relapsed she said everything happens for a reason and to turn all my burdens over to God which I did.

        Back about a year ago I went to a specialist at Duke without telling my gastro doc and was so glad I did. The Duke specialist is one of the best hep c specialists in the country. I spent 45 minutes with his PA and then another 40 minutes with him. I can tell you he was very blunt and said the next time I saw him in six months he wanted me real skinny and nothing around my middle. I know if I had seen him before getting on this treatment he would have told me to wait until the fall. He’s all about getting yourself in the best shape possible physically, mentally and spiritually before starting any treatment. He’s also all about having the advanced patients wait for the best treatment available unless there is a chance of decompensation. He also let me know he wanted everthing I was taking as far as suppliments to stop. He called it dumbing everything down.

        He also brought up one of the most important and also rarely mentions things to do is to keep yourself regular. That means vacating everything you eat every 24 hours. By doing so you are taking a lot of stress off the liver and you won’t believe how great you will feel after a couple of days. There’s a lot of info on the web regarding constipation and cirrhotics. Constipation can actually cause people with compensated cirrhosis to start decompensating caused by toxins building up in the intestines, leaking out and absorbed into tissue and the blood stream. I followed Dr Wes Jones suggestions plus bought his book. What worked for me was just taking his advise and having a little milk of magnesia each night for a few days to get me regulated plus sticking to a good diet.

        Find a new specialist and take this recent treatment as a warm up to really get ready for the final cure that will happen in the fall. If I relapse I’m heading up to Duke where I know they want everyone that passes through their door to have the best chance possible for a cure. You’re not a number, they spend as much time as needed and no question goes unanswered.

        Dr Wes Jones video on Youtube:

        http://youtu.be/0TC9H1rp070

        • Connie M June 16, 2014 at 11:29 am #

          Hi Paul,
          Thank you for sharing about your Hep C journey and giving encouragement to others, especially Anna. Following with a specialist is very important and especially one you know has your best interested at heart and working with you on your team. Duke offers great care for Hep C patients, along with many through the country.

          Normally, I like to view a site someone is recommending prior to posting, but I reviewed Dr. Jones video and feel it is very good information.

          Keep us posted on how you are doing.
          (You) can do all things through Christ who gives (you) strength. Philippians 4:13 (emphasis mine).
          You are in my prayers as you prepare ahead for your treatment.
          Blessings,
          Connie

    • Richard kreedman July 26, 2014 at 11:09 pm #

      I am in week 7 of solvaldi and olysio. My viral load started to increase very slightly. I pray that the medicine works. The Lord does not give us more than we can handle. The olysio caused mouth ulcers. Went away with medication. Have had this disease for 44 years. In the last year I have gone through chemoembolization for liver cancer, liver transplant, and reoccurrence of hep c with new liver. On positive side no longer have hemophilia factor 11 and esophageal varicies. Jesu

      • Connie M July 29, 2014 at 5:10 pm #

        Hi Richard,
        Thank you for sharing your Hep C journey. You are such a Mighty Hep C Warrior on every front! Just wanted you to know I am praying for you each day. I am praising God for your hemophilia factor and esophageal varicies that is gone. Hang in there my friend. The Lord will give you strength you did not know you had and more.

        “Though I walk in the midst of trouble, you preserve my life.” Psalm 138:7 NIV
        Jesus spoke to them at once and said, “Don’t be afraid, Take courage. I am here.” Matthew 14:27 NLT

        Praying for you daily.
        Special Blessings fellow warrior,
        Connie

    • Ncnogrl August 31, 2014 at 1:37 am #

      My problems with olysio was extreme sensitivity to heat and sun…I would also have moments of rage and forgetfulness . Nothing like interferon and ribaviron …I too have tried them all and after three mths treatment I am undetectable….I am holding back any real enthusiasm until my next blood test that way I am not too upset if I go back to being detectable ,,,I gained fat during the 3 months due to the restlessness and insomnia ,,,now I’m working on cleanseing the drugs from my system so I can get back to a normal routine

  11. Bryan April 17, 2014 at 9:31 am #

    Hello folks….I am one of the lucky ones to be approved for this off label treatment of Sovaldi/Olysio..I was on Peg and Ribv a few years ago..I took it for 1 and 1/2 years and became detectable again at the end of treatment..(very disappointing) Side effects were horrible..Such Poison..Still not the same…But thanks be to God for this second chance at SVR..Just completed 7 days…sides aren’t bad ..just some fatigue..1st follow up labs tomorrow..must have every week for 1st month…Everybody I think we are all going to finally beat this thing..

    • Connie M April 17, 2014 at 1:34 pm #

      Hi Bryan,
      Congratulations on your week 1 Mile Marker with new treatment combo!!!
      With the new treatments available it is truly a blessing for shorter treatment duration, less side effects and a very high cure rate!!! Hep C days are numbered.

      I am praying and cheering you on Bryan every step of the way!
      Be sure to keep us posted on how you’re doing.
      We are here for you!

      Blessings,
      Connie

  12. Machelle Sherwood April 18, 2014 at 9:34 am #

    Good friday to all my hep c warriors wed was my last day of medication on my 12 week treatment with solvadi rebv peg thanks be to my savior for helping me every step of the way it wasnt easy thats why were called warriors but its so worth it the virius is undetectable my ultrasounds look good and my blood work is good dont have to go back to the doctor for 3 months then for another ultrasound they will check my virius load again in 6 months I have to say in the beginning it was pretty easy but as treatment went on it got harder for me just remember in the end its all worth it my family has been so supportive even my 10 yr old little girl would say mama you feel bad hun let me get what you need now im ready for my energy to return so I can get back to being the one who helps everyone eles having support was a must in my treatment and finding this forum has helped me so much I will be on the sidelines cheering each of you on never give up God has much work to be done for his kingdom thanks to each of you for your kindness and encourgement love all of you your special people to me “to God be the glory

  13. Nancy April 18, 2014 at 2:28 pm #

    Thank you for the kind words and prayers. This website has been so very important to me.
    Connie, I will call the Olysio hotline today. God does have my hand. Thank you for reminding me of that.

    • Connie M April 21, 2014 at 2:48 pm #

      Hi Nancy,
      You are so welcome. Keep me posted on how things are going.
      You are in my thoughts and prayers each day.

      Blessings friend,
      Connie

  14. Bryant April 23, 2014 at 11:04 pm #

    I am also doing this treatment as a patient with genotype 1a. I didn’t have any cirrhosis, just liver enlargement and reduced function, and my platelet levels were quite low so I was unbearably fatigued before treatment. I’d also dealt with a 3 month episode of severe itching and was becoming very discouraged. I’m a child clinical psychologist and couldn’t risk interferon or ribavarin side effects so I waited for a spot in a clinical trial offered by my liver specialist. Thank God I waited. I’ve had no itching or rash at all, and only an occasional mild headache that was short-lived. The fatigue is still there, and I’ve had moments that made me wonder whether I was feeling particularly discouraged, but I was told it would likely subside after the 12 week trial is over. The only issues have been with costs and insurance coverage and co-pays, but Sovaldi gave me patient assistance that helped enormously! Ask your liver doctor about this kind of off label trial! I will post again as I get viral count results, etc.

    • Connie M April 24, 2014 at 10:09 am #

      Bryant,
      Thank you so much for sharing your experience with this treatment. This is fantastic that you were able to get the meds and do so well with side effects. Fatigue unfortunately is a very common side effect of all treatment and condition, but it will get better. After treatment is over, it does take awhile in recovery for energy, and stamina to increase so don’t get discouraged. Every patient is different but remember your body has been through a tremendous battle and treatment drugs are strong, so it takes several months or longer for the body to adjust and gain energy. You will get there!

      Keep us posted on how you are doing.
      Praying for you in your treatment and recovery.
      Blessings fellow warrior,
      Connie

  15. Sandra Edwards April 26, 2014 at 8:39 am #

    Hi, after being diagnosed in 2008, I was started on peg interferon and ribavirin. I did this for almost nine months. I was so weak, sick, hair loss and much more. My doctors decided to stop. In trying to cure me they were killing me. It took two years to get over the side affects. I was diagnosed at the beginning with chirriosis. I was very reluctant to try anything else. They attempted to get me in several study groups for non responders with no success. My levels never dropped with previous treatment. When they discussed the new treatment with Sovaldi and Olysio I will admit that I was reluctant. I didn’t believe there would be no side affects. I’m happy to say that I started my treatment on March 21. I take mine at night after dinner as it is basically the time of day that I eat. I will be hearing this week from my first blood work and will have my second blood work Monday, doctor visit to follow on Thursday. Fingers are crossed! It’s been great to find this site.

    • Connie M April 30, 2014 at 7:17 pm #

      Hi Sandra,
      Thank you for sharing your Hep C treatment journey. I am glad to hear you are doing the new treatment with Sovaldi and Olysio. We are seeing many receive great results. This treatment is a new class. Very different than older treatments.
      Congratulations for being 5 weeks into treatment. You are almost half way through!
      Keep us posted on how you are doing. Feel free to join us on our online support group each Friday, Hep C Warriors Friday Forum Support group. Many there are on the same treatment and others who have completed treatment and in recovery.

      Blessings fellow warrior,
      Connie

  16. Bryan May 2, 2014 at 7:14 pm #

    Hello Again….

    To update on my Sovaldi/Olysio Treatment…into it now 3 weeks..Saw my Dr. today..recent labs already show my enzymes already back to normal…next week (4th) all major blood tests..hope and expect to be non – detectable..then 8 more weeks to knock this long living virus out..Symptoms still very mild…mostly Fatigue..but compared to the year and half on previous old treatment, this is a breeze…Good luck to all!! Thanks Connie for your kind words of encouragement and prayers..Sincerely,

    Bryan

    • Connie M May 2, 2014 at 8:03 pm #

      Hi Bryan,
      So glad to hear your report. Wow isn’t it awesome that in 3 weeks your liver enzymes have gone back to normal. That is a very good sign. I am looking forward to hearing your next report. I am praying it’s Non-Detected!
      I am glad your side effects are mild. It still blows my mind the huge difference and improvement with these new treatments compared to the old ones. Wow!

      Looking forward to hearing your next update.
      Praying & Cheering for you every step of the way!
      Blessings,
      Connie

  17. catherine connelly May 10, 2014 at 2:22 am #

    My doctor tells me they are not FDA approved. Is it that they are both approved but the both together are not
    approved by the FDA. If not how can I go about getting Solvadi and Olysio together?

    • Bryan May 11, 2014 at 9:17 am #

      Hello Catherine….from what I understand from my Dr’s office…Both Sovaldi and Olysio are both FDA approved but not yet approved as a combo treatment..But a large percent of Dr’s are now prescribing the combo with and without ribaviran as an off label treatment..I just recently had my 4 week labs and expect to be undetectable then 8 more weeks of treatment to make sure nothing is left hiding in the shadows…..Just ask your doc for this treatment and then they will submit to insurance co. for approval..should be no prob getting approval if you have been previously treated unsuccessfully or have depression…..Good Luck.. God Bless you, Bryan

    • Connie M May 12, 2014 at 4:17 pm #

      Hi Catherine,
      I echo Bryan’s comment to you. Both drugs are FDA approved but not originally together, so that is why it is considered, “off label.” But the Sovaldi & Olysio combination treatment is under priority review from the FDA to be used together. We are hearing reports to see approval coming out sometime later this year. But still many are able to get this treatment now. Many doctors are able to write letters of medical need stating this treatment is necessary for the patient because the patient can not tolerate Interferon or Ribavirin. Talk with your physician and see what they say. Many inusurance companies are approving and some run into a snag. But there is also help from each drug company.

      If you have further questions or need information, feel free to let me know.

      Praying for You!
      Blessings,
      Connie

    • Rileyann May 27, 2014 at 11:29 pm #

      Hi Catherine,

      Look up Cosmos Study. I hope you got to start. There were several indications for success my Dr. looked for, notably genotype, testing for the allele variant, a predictor for favorable response to these drugs.
      Riley

  18. Andre A May 11, 2014 at 10:47 am #

    Thanks to everyone for posting their experiences and knowledge
    about treatments. I am completing my first week of combo therapy
    with sovaldi tab(400mg) and olysio cap(150mg) taken each morning at 7:00AM for 12 weeks. Now I have more energy than I have had all year, the depression is gone and I can only believe that I will be cured. So far an occasional headache, minor itching and sensitivity to the sun has affected me. Other than that, it has
    been a miracle. Much thanks to God, friends and family. Amen

    • Connie M May 12, 2014 at 4:08 pm #

      Hi Andre,
      Thank you for posting your treatment news! This is so good to hear. Congratulations for completing your week 1 Mile Marker. Now on to finishing week 2. Yay!!!!

      Keep us posted on how you’re doing. We’d love to hear from you.
      Praying for you daily!
      Blessings fellow warrior,
      Connie

  19. Kathy Allen May 11, 2014 at 4:25 pm #

    Hello warriors! let me just say that this site and those who commented have given me hope and helped relieve some of my anxiety. I found out a year ago that I have hep-c. Genotype 1a and my viral load was 105,000. I started triple therapy in October 2013 (pegainterfueron/ribovirin/insevek) I only lasted 5 weeks on this treatment due to a horrible skin rash. yet when the doctor tested my viral load it was undetectable. The doctor wanted me to take a break and in February 2014 he re-tested my viral load and it was nearly 400,000. I was heartbroken. I am currently awaiting to see if my insurance (medicare/medical) will cover treatment with sovaldi/olyiso. I will hopefully hear weather or not they will approve it by the end of this week. I am praying for a positive outcome. Thank you for having this site and to those that have shared their stories. It has really helped me to hear from others that have gone through or are going through this new treatment option. God bless you all. you are all in my prayers.
    sincerely,
    Kat A.

    • Connie M May 12, 2014 at 4:26 pm #

      Hi Kathy,
      Thank you for sharing your Hep C update. I am sorry to hear you had problems with the other treatment but sounds like you would be a perfect candidate for the new combination treatment. If need be, your doctor could write a letter of medical need based on your prior treatment experience. Many are receiving help from both drug companies.

      I’m praying all your paperwork will go through smoothly and you’ll hear this week. If you have any questions or need information be sure to let me know. Also, be sure to keep us posted on how things are going. We will be praying for you every step of the way.

      We are here for YOU!
      Blessings fellow warrior,
      Connie

  20. Mark Kroll May 22, 2014 at 12:13 pm #

    Connie,
    I am now 59 and was diagnosed hep-c in ’95, most likely time of contraction was an auto accident in ’77. I had bled out at the scene and received a number of units of whole blood to compensate. By the time I was diagnosed I had become quite ill. I am genotype 1a and have been through 4 variations of the interferon and ribavirin. With a lung cancer scare in ’05 and subsequent lobectomy of my right lung the hep-c took second fiddle to my other health issues for a while.
    There were some pretty horrific variations of Interferon and ribavirin and thank God I finally found a Dr that didn’t look at me like a lab rat who was willing to take anything for a chance it might work.
    In ’07 cirrhosis, ’09 cancer with a radio ablation in’10 I was finally seeing hope on the horizon. I received a new liver in July of ’11. I am what they call their success warrior. I have been on the olysio and solvadi treatment for 12 days now, I am having several side effects but nothing major, diarrhea, body aches, headaches, with some slight nausea. Can’t wait to see the blood results from the end of my first week, I know a little soon but I am always pro-treatment, pro-attitude, pro-life.
    I refound my belief in the Lord along the way and as my constant companion I know there is a way with our will. I’ll keep you updated as I progress. Thanks for letting me blab a little. Mark

    • Connie M May 23, 2014 at 2:16 pm #

      Hi Mark,
      Thank you so much for sharing your amazing story. You are a true warrior!
      Please keep us updated on how you are doing. Feel free to join in on our online support group, “Hep C Warriors Friday Forum Support Group” which meets every Friday. So many others would love to hear your story and you can connect to many others who are going through the same treatment. We have a couple different guys who have had liver transplants as well on the support group.

      (You) can do all things through Christ who gives you strength. Philippians 4:13 (emphasis mine).

      Let us know how you’re doing.
      You are in my prayers.
      Blessings fellow warrior,
      Connie

  21. dvoeck May 27, 2014 at 8:54 pm #

    It has helped but the side effects have been brutal nausea blurry vision has any one els felt that way please let me know

    • Connie M May 28, 2014 at 11:14 am #

      Hi Dvoeck,
      Yes, I have heard of others who have dealt with nausea and blurred vision. I personally was on a different regimen but still had these issues. For nausea, I took a prescription med, Zoforan, that helped tremendously. It is a small pill that dissolves under your tongue in seconds and takes the nausea away. Talk with your doctor about it.
      For the blurred vision, make sure you report this to your doctor so they can see how severe this is. They need to know all side effects you are experiencing. I had blurred vision that would come and go, but it left after a couple months post treatment. It was not severe but enough that I noticed. Make sure to talk to your physician about what is going on.

      Keep us posted on how your doing.
      You are in my prayers.
      Blessings fellow warrior,
      Connie

  22. Jim P May 28, 2014 at 11:49 pm #

    Hello,
    This is a great site to visit. Started Olysio/Solvaldi today and have many questions about diet, drinking tea, avoiding the sun. Understand now that I should drink plenty of water. Wonder if Vitamin B Complex and Vitamin C would be OK to take in order to help with the fatigue everyone is talking about.
    I went through the interferon combination treatment several years ago, I would not wish that combo on my worst enemy. Had to stop my treatment a month early because of low white blood cell count. If this treatment’s side effects are only half as bad as the interferon, I should be able to endure it.
    I think I’ll revisit my Bible, thanks for the inspiration Connie

    • Connie M May 29, 2014 at 11:29 am #

      Hi Jim,
      Thank you for sharing your start date and treatment with Sovaldi/Olysio. Many patients do take Vitamin B complex and Vitamin C to help during treatment. This does help some with energy and boost immune system but does not totally relieve the fatigue. A nutritious diet with lots of fresh vegetables, fruits, whole grains, lean protein, healthy fats like avocado’s, nuts, olive oil in moderate amounts, and avoid processed foods is best. Drinking lots of water is so important to hydrate and flush your system. Drinking tea is fine, green tea is especially good with the added antioxidant’s, but in addition to tea, make sure you are drinking extra water.

      Doing all these good things we can physically helps us help our liver and helps us know we are making good choices to help our body fight Hep C.

      Hope you will consider joining in our online support group that meets on the website each Friday. It’s called, Hep C Warriors Friday Forum Support Group. It’s easy. Just jump on and introduce yourself and let them know about your treatment. There are many who are going through the same treatment right now and many who are finished and in recovery. This is a great group of caring folks who understand what your going through. They offer helpful treatment tips, and are there to listen and also give you prayer support.

      If you haven’t yet subscribed to the website, please feel free. It’s easy to do. Plus we don’t want you to miss out on new articles and Patient Interviews we have coming up.

      If you have any questions or need information, feel free to let me know. Keep me posted on how you’re doing. We are here for you!

      Praying for you Jim as you go through treatment.
      Blessings,
      Connie

  23. Kathy Allen May 31, 2014 at 11:25 pm #

    Hello there warriors. I just wanted to post an update. My insurance finally went through for the olyiso/sovaldi. I started taking them 10 days ago. i am happy to report that I am doing well. so far the only side effects that I have had is occasional headaches and stomach cramps a couple of times. I will have my viral load labs done in a few days, at my 2 week mark. the gastro said that they will be checking my viral load status every 2 weeks and I will be seen in the office every 3 weeks. so 10 days down and only 74 days to go. it is such a blessing to me to be able to have these meds for my treatment. so much better than last year when I was on triple therapy (with insevik). God bless you all on your lifes journeys.
    Sincerely,
    Kathyt Allwn

    • Connie M June 2, 2014 at 1:50 pm #

      Hi Kathy,
      Thank you so much for sharing your update. Congrats on everything approved and the great start. I appreciate your sharing your doctor’s estimated labs and office visit timeline. This is great information that others can be asking their physician about.

      I hope the headaches ease up. We are hearing that is a common side effect with Sovaldi. Others used a prescription their doctor’s gave them and received relief. Be sure to keep us posted on how your doing.

      “(You) can do all things through Christ who gives you strength.” Philippians 4:13 (emphasis mine)

      We are Cheering and Praying for you each step of the way!
      Blessings fellow warrior,
      Connie

  24. Ronald Sarvas June 2, 2014 at 12:57 pm #

    Greetings;
    I have Hep C genome type “1a” and was on Pegylated Interferon and Ribaviran for one year. I was at zero count for a while but it was again detectable at the end of that year. That treatment was brutal and failed. Then I was on Inforgen and Ribaviran and was on that for another 1 1/2 yrs. I was zero count for 6 months then it emerged once more. These were daily injections and the treatment was even more brutal. Still though, my Dr. kept me on it and I ended up with a stroke. Not too bad of one, but still a stroke. That was between Sep 2006 and Mar. 2008. I had a liver biopsy 2 years ago and I was a 1.5 displaying minimal liver damage, some minor liver inflammation but was predominately still non symptomatic. That was in June 2012. My viral count then was at 6Mil. She is a slow and relentlessly erosive nemesis and today, I am tired, wary, and can feel the physiological toll that is taking place within me as all of my body’s energy seems consumed in defending itself against this tenacious intruder. I’ve done my homework and have kept up with all of the latest therapies for this disease, and although Europe and several other countries have had extremely high success rates with Interferon free antiviral combinations, they are still unapproved by the FDA here in America. I’ve researched the success of treatment rates for Olysio and Sovaldi through various channels and most of what I hear has given me something that I thought I had lost.”Hope.” I have made 2 appointment for myself to get on this treatment and I have to say that I am extremely excited about it all. I made one Apt. with the VA’s ” Infectious Disease” Department and another appointment with my neighborhood gastroenterologist because I have concerns about not being covered for the treatment since I am on Medicaid because the stroke I incurred disabled me. That, and as probably everyone has heard, the Veterans hospitals are presently going through some very questionable issues and I don’t want to put all my eggs in one basket. If I get approved for this treatment, I will keep you informed with progress reports so that perhaps others who also have endured previously failed treatments will see this as a resource of information. Thank you for having these postings, I learned a lot and it helped reassure me that this might be the best decision I have ever made. Thank you again Ron

    • Connie M June 2, 2014 at 1:54 pm #

      Hi Ron,
      Thank you for sharing your past Hep C treatment experience and progress on how you are doing. I hope and pray you will be able to ask your doctor good questions and get on this new treatment. So many are receiving great results. New treatment has improved so much from previous treatment. We will be seeing less and less interferon and more and more Hep C treatment options in the very near future.

      Keep us posted on how things are going. We are here for YOU!
      Praying for you.
      Blessings fellow warrior,
      Connie

  25. Kathy Allen June 2, 2014 at 2:59 pm #

    Happy Monday my fellow warriors! I hope that this finds you all well or getting well.
    Connie, I just wanted to express my thanks to you for your kind words, your sincerity and of coarse this web site. The bible scripture that you added into you reply made my day. Honestly it was exactly what I needed to hear. The beauty of Gods word is so refreshing and fills me with faith and hope. I felt so alone until I came across this site. So please let me express my gratitude.
    I am on day 12 of the olysio/sovaldi treatment. Its still going smoothe for me. Headaches seem to be the only side effect that I am experiencing. I plan to ask my doctor at my next visit if she can prescribe or recommend anything for them.
    Welcome to the site Ronald. I also have medicare (due to disability) as well as medical (California’s state medical insurance). It covered one of the meds right away, but denied the other. The specialty pharmacy put in an appeal and they approved it the second time. It took about 3 weeks total until I recieved the medications. So hang in there. But it is well worth the wait. I myself did triple therapy last year and had to stop after only 5 weeks due to a severe skin allergy from the insivek. That was the worst 5 weeks I have ever had. I will be praying for you.
    Well thanks for listening to me (nickname – chatty Kathy) lol. I will update again soon. Have a nice week.
    Sincerely,
    Kathy Allen

  26. Ron Sarvas June 2, 2014 at 11:42 pm #

    Thank you so much Connie and Kathy for your support. Hep C has put me in such a lonely place where most of my days, which were once filled with promise and activity, are now replaced with inactivity and disparity. The populations don’t realize that more people lose their lives every year to Hep C than to HIV. So I really appreciate having this support in a very special way. Kathy, I actually braved the interferon, Ribaviran, Insivek, two years ago and lasted three weeks, ended up in the hospital with severe dehydration. It was not very effective and extremely toxic, I also on my 1st interferon, Ribaviran treatment endured what appeared like 1st degree burns on 90% of my body, and have had skin issues ever since, so I understand. Also, thank you for filling me in on how to appeal my initial denial from Medicaid. It helps to know what to expect. Since being diagnosed with Hep C, I’ve lost all of my friends and most of my family has exiled me. Having this outlet to tell people this information is a Godsend. Here is a piece of trivia for you. About 2/3’s of the population of Asia and Russia carry the virus, because they did not sterilize their needles during inoculations until about the the last 30 years. China obtained most all of their inoculations from what was then, the USSR. This was told to me by a hepatologist in Hawaii. Hundreds of millions have it and don’t even know it. Also, several states such as Colorado for example have approved the use and access for treatments not yet approved by the slow moving FDA. I learned of this through clinicaltrials.gov. Keep you immune system strong, diet is extremely important in buying yourselves time. Shop organic, juice, and avoid, sugar, process foods, grains, red meat, fried foods, spring water, artesian well water and cut down on the dairy. Feel free to contact me if you wish to learn why and to know more. Thanks again. Ron

  27. Bryant June 3, 2014 at 1:31 pm #

    Only 2 weeks of Sovaldi and Olysio left to go. Viral load at zero since week 3 of 12! Still fatigued but platelet counts returning to normal. HALLELUJAH!

    • Snook July 17, 2014 at 11:06 pm #

      Your post made me cry…That is wonderful news..I have been hep C positive for almost 20 years Medicare and Patient Assistance or Access network together covered all cost of Sovaldi and Olysio. I’m scared that I won’t clear because I have had Hep so long…I have been on the med’s for 9 days..I take my med’s at 3pm.. That’s because I am not a morning person..It’s odd but after I take my med’s I feel a little dizzy nothing severe and slightly fatigued. After a few hours or during morning hours, I feel like I have more energy..Sometimes I think it might be all in my head because I am excited about these med’s…But I have cleaned things and organized things that I haven’t touched in years. Suddenly I have become a morning person…So, oddly enough I think these med’s make me feel better instead of worst..

      • Connie M July 18, 2014 at 12:23 pm #

        Hi Snook,
        Thank you for sharing about your treatment experience. Congratulations on getting all your treatment covered and how well you are doing. This is fantastic news! I have heard others report the same thing with mild dizziness and fatigue then it passing and increased energy. No, this is not in your head. This is real!

        We are seeing improvement in treatment and less side effects, which is such a blessing. I pray you will continue to feel better. Treatment normally can bring a variety of energy and low energy days. Take each day one day at a time and remember to keep drinking lots of water, eat well and rest when you can.

        Keep focused on Christ and His word and work towards getting to your next Mile Marker day of the week.
        https://www.lifebeyondhepatitisc.com/2014/05/hep-c-treatment-mile-markers/

        (You) can do all things through Christ who gives (you) strength. Philippians 4:13 (emphasis mine)

        Our special scripture this week: “He is before all things, and in Him all things hold together.” Colossians 1:17

        Keep us posted on how you are doing.
        You will be in my prayers.
        Blessings,
        Connie

        • Snook July 19, 2014 at 6:43 pm #

          Thank You Connie. You are such a blessing. I can’t even imagine how you find the time to respond to all of us..You also bless us with wonderful scriptures and encouraging words…Your an Angel that walks the earth. god bless you..

          • Connie M July 21, 2014 at 11:44 am #

            Hi Snook,
            You are so sweet. I appreciate your very kind words. The passion of my heart is to see all Hep C patients cured and draw closer to Christ. With Him all things are possible.

            I am just a servant warrior like everyone else. It is Christ who is leading, not me, I am just the pen.
            Thank you for your words of encouragement and sharing.
            You help make a difference in others lives.

            God Bless You my friend,
            Connie

  28. Paul June 5, 2014 at 7:03 pm #

    Like Ron I went through the triple therapy two years ago that included Incivek. I made it through the bad rash where my skin was so hot it felt like it was burning from the inside out. I continued on for 6 months and then had to quit. I relapsed two months later. As it turns out the real numbers regarding triple therapy cure rate for those with advanced liver disease only had about a 40% success rate, about the same as the interferon ribivarn therapy. One of the top research specialists at Duke told me told me around a year ago that one out of every eight people put on Incievek died from complications and that most that did pass away had advanced liver disease. People that were on the triple therapy that died from complications from sepsis infections, liver/kidney failure or other organ failure during or after treatment, cause of death was determined to be from what ever complication or organ that failed not the treatment. I count my blessings that I’m still here. I completed the Sovaldi Oyslio treatment two weeks ago. Two days after finishing the treatment I had severe muscle and joint pain which lasted about a week. I cut out all sugar and other foods that would cause inflammation plus forced myself to hit the gym and workout. Still tired but praying that this time I’ll stay negative. I felt like the Oyslio did stress the liver somewhat. I gained some weight around my mid section during the treatment. From from I’ve read regarding a recent study the absolute, guaranteed 100% cure hep c for cirrhotics will be the 12 week sovaldi/ledipasvir with ribivarin treatment which will avalible in October. My gastro doc said that the insurance companies are starting to deny treatment with oyslio/sovaldi because the cure rate, cost savings, amount of research data regarding the sovaldi/ledipasvir combo make it a better choice and it’s only about four months out for it to be available.

  29. Jim M June 5, 2014 at 11:55 pm #

    Wow, great site tons of faith and good news. I’ve been challenging the demon since 1995 with little success. VL stays around 18,000,000 WBC 1.9 and almost no platelets. Lots of skin problems, cirrhosis, varices and a couple of tumors one 5mm and one 1.7 cm. Sounds bad right…………no way!! Just got my olysio/sovaldi today and I’m getting ready to “exercise this demon” The good lord said he would never put more on me than I could carry and I know its true, worked every day for two years of interferon one with ribavirin one without so I have to believe olysio/sovaldi will be much easier after all the success rate in 1996 with alpha interferon alone for 1A was only like 30% and I went with that…and the great thing now only 30 bucks for 28 days. I could really have a shot at this, so as others have said, god does answer prayer. So anyway thanks for listening and for any non-believers please get up early tomorrow and watch the sunrise, give it a lot of thought and you may just change your mind. If not I wish you the very best and pray you’ll be cured of your suffering.

    • Mike July 2, 2014 at 3:44 pm #

      Jim M – good news about starting your treatment with Oly/Sov…just received my 12 weeks undectable lab results. However, the liver tumors may be cancerous – you may be able to start treatment for the tumors right away and get on the liver transplant list. I only mention this because your post didn’t indicate much concer…and it may well be life-threatening. I’ve been through it all (chirosis, cancer, transplant and just finished HepC treatment) and so far so good. All the best!

    • Richard kreedman July 26, 2014 at 11:44 pm #

      To Jim who left a message on June 5th. If you have liver tumor of 1.6 cm please go to an oncologist and get a MRI. You must take action. Recommend mayo clinic in Florida if you need a transplant. The Lord wants you around a look time. His Saints are very important to him.

  30. Sandra June 13, 2014 at 12:10 am #

    Hi fellow warriors,I too completed 12 weeks of the olysio/ sovaldi combo and the virus was undetectable after only 2 weeks with normal liver enzyms as well.Three more labs were also normal I thought that I finally took this nasty sneaky virus out once and for all ! After 44 years of co-habitation in MY LIVER. But unfortunately IT CAME BACK ! AGAIN ! I had tried inteferon and was a nonresponder with that too.I am 1a. My Dr.said it probably mutated I was the only 1 out of 45 where it came back. Needless to say I am very depresed . My Dr. said he will see me in Nov. to try another treatment again OF SOMETHING ELSE NOW . I am getting very tired and now my glucose level is high at 107 .Liver and gallbladder was o.k.according to an ultrasound just done .I do have a 7 mm lesion on on my liver however.Dr. doesnt seem concerned about that.He suggested another liver biopsy before treatment. I have had 3 now. Seems like I am always in the doctors office or sick from one thing or another fibromyalgia/osteoathritis/knee pain/carpal tunnel/tinnitis/the works ! Other people are going about ther lives and enjoying themselves and I am preoccupied with “SICK” And the worse thing with this virus is that one day your feeling pretty good then bam your in pain again.I can never plan anything cause I dont know if I will be up to it. Very discouraging.I hope and pray that I can do this again and it works. Keep up the fight fellow warriors be strong and kick butt once and for all ! see you again on the battlefiels need some rest now ! God bless you all Sandra ,

    • Connie M June 13, 2014 at 2:28 pm #

      Hi Sandra,
      I know how hard it is to hear, it’s back. I’ve been there. But I also know you have to keep going. Never give up. You can do this Sandra!
      God will open up a way and help you. The new treatments coming out have a higher success rate than even now. You are in my prayers as you go forward.

      Prayers & Blessings,
      Connie

    • Richard kreedman July 27, 2014 at 12:07 am #

      Sandra, dated June 13. Go to oncologist. Liver cancer starts very small and grows very,very fast. If you have had hep c for 44 years like me, you may need a transplant. I had my transplant at the Mayo. Best liver transplant hospital in USA. God bless

  31. Bryan June 13, 2014 at 5:24 pm #

    Hey Connie and Fellow Hep C Warriors…

    Just to update…I saw my Dr’s office today..Labs from last week (week 8) week 4 was still slightly detectable..So they ordered tests at 8 weeks…Anyway I am so happy..Was told today NON-Detectable…my other blood work has all been normal through treatment..enzymes back to normal after 2weeks…Doc said it was like I was taking no treatment at all

    3 more weeks of Sovaldi/Olysio..then more full labs at 12 weeks..then I was told again in 3 months to make sure it is gone then again in 6…

    I feel so blessed to have been approved for therapy and given a second chance for SVR..My Nurse Practitioner..told me I was lucky because she has been having extreme problems getting this therapy approved by Il state medicaid…I guess I got it because I was a previous failure on 1 1/2 years on Interferon and Ribaviron and had stage 1 fibrosis in 2007 at beginning of that treatment..The sides on this therapy are very easy to handle…mostly Fatigue..and that’s not every day..I didn’t want to take the ribaviron with the therapy because of the anemia etc..even though they recommend it.I said no..Thank God it worked without it..This time no anemia,no horrible excema rash all over face and forehead and only a 12 week treatment…

    Anyway very blessed and praying it stays undetectable…. Everyone just keep at the insurance companies and your doctors…Supposed to be new treatments coming out in Oct and Dec ..so don’t give up…..and if you are lucky enough to be approved make sure you don’t miss a pill….

    Just wanted to update, and let you know 1st hand that this treatment is very easy, hardly any sides and very effective for a non-res ponder in their 50’s how has had this terrible thing for more than 30 years…so there is Hope!!! Keep up the fight and don’t back down until you get what you want…. God Bless you all and Thanks Connie for your site and encouragement…..Sincerely, Bryan

  32. Jim P June 13, 2014 at 10:32 pm #

    Hello Warriors,

    I am just over two weeks on the Sovaldi/Olysio and happy to say that the side effects are minimal. Able to do handyman work around the house, in the sun with hat, shirt, long pants and plenty of sun screen. Take a nap midday and off I go again.

    Bryan, I too have had the virus for 30 years, the resistant type 1a. Doing my best to eat properly and drink plenty of fluids.

    Sandra, I am praying for you to have success once and for all with the new combinations on the horizon.

    God Bless

    • Connie M June 16, 2014 at 11:17 am #

      Hi Jim,
      Thank you for sharing your treatment journey with this combination. So glad you are doing well.
      You are a Mighty Hep C Warrior! Congratulations on your week 2 Mile Marker!!!

      Keep us posted on how you’re doing. We’re here for you!
      You are in my prayers~
      Blessings,
      Connie

  33. Paul June 13, 2014 at 11:00 pm #

    I was so sure the virus had returned after completing the Sovaldi/Oyslio treatment that I went ahead and had myself tested at day 20. I got the results back today and I am still undetected. From what I’ve read online most that do relapse are within the first 30 days with these new meds as was in Sandra’s case. After 30 days the chance of relapse is only 2% which I hope turns out to true. If Sandra was previously treated with a protease inhibitor she probably had the mutations present from the previous treatment. The good news for Sandra is that the Sovaldi/Ledipasvir cure rate due out in October has been 100% for people that were prior null responders with Sovaldi and ribivarin. Those numbers included those treated with compensated and decompensated cirrhosis as long as ribivarin is added to the mix. So retreating with Sovaldi doesn’t seem to be an issue with the polymerase inhibitors as they are with the protease inhibitors. Those with cirrhosis actually only had a 65% cure with the Sovaldi/Ledipasivir treatment. I asked my doctor to add the ribivarin to my treatment but he declined to do so. It seems like a lot of doctors are adding even low amounts of ribivarin to the Sovaldi/Oyslio treatment as an insurance policy when treating those with advanced liver disease.

    “Perfect Results for Sovaldi/Ledipasvir, But Only With Ribavirin”

    “Among genotype 1-infected patients who had failed prior treatment with SOF plus RBV, 100 percent (19/19) achieved SVR12 following 12 weeks of LDV/SOF plus RBV. Additionally, 65 percent (n=13/20) of genotype 1-infected patients with decompensated or Child-Turcotte-Pugh Class B cirrhosis receiving 12 weeks of LDV/SOF without RBV achieved SVR12. LDV/SOF with and without RBV was well-tolerated, including among patients with more advanced liver disease.”

    http://www.hepmag.com/articles/ELECTRON2_SOF_2501_25458.shtml

    • Connie M June 16, 2014 at 11:15 am #

      Hi Paul,
      Thank you for sharing this information. Hep Mag is a trusted site with good information.

      Congratulations for being Non-Detected for the virus!!! So happy to hear this great news!!

      Blessings,
      Connie

  34. Mina June 16, 2014 at 12:54 am #

    Hello,

    My name is Mina and I am writing on behalf of my mother. She is at stage 4 (last stage) cirrhosis and she has hepatitis C. She was diagnosed with Hep C in 2002, a little after we came to the US and later with cirrhosis in 2010.

    She just started with week 3 of her treatment on Friday and she is using a combination of Ribavarin, Olysio, and Sovaldi.

    After reading many of the comments claiming that Ribavarin is not needed, I cant help but wonder why she is on it. Perhaps its because of how long she has had this and because shes at stage 4 with Cirrhosis.

    Anyway, I just need a group to share with, its hard when no one understands you. I lost my dad in the war in my country 21 years ago, I was just 7 months old. I cant watch her this way, but I never cry in front of her. I am always strong in front of everyone, but I am hiding behind this facade and heartbreaking smile.

    I just need someone to talk to. Thank you for letting me share.

    -Mina

    • Connie M June 16, 2014 at 11:11 am #

      Hi Mina,
      Thank you for sharing about what is going on as you and your Mom journey through Hep C. I say both of you, even though she is the patient, but both of you are Hep C Warriors.

      This is a very good combination treatment. Ribavirin does play at part in the mix to help disrupt the replication cycle of the virus. In different treatment that is coming out they have added a different drug combination to do this, but many standard combination treatments do include Ribavirin in the mix. So try to look at it as an effective tool to fight the virus. If she is in week 3 that is great! Before you know it she will have an entire month already checked off.

      Feel free to join our online support group, Hep C Warriors Friday Forum Support Group that meets on our website every Friday. It’s easy to jump on and comment and check back to see who all has replied. This is great group of caring folks who are going down the same journey. You can receive great encouragement, help tips, support and even prayer support. You are free to share your heart. We are here for you & your Mom.

      Keep sharing fellow warrior, we’re listening.
      Blessings,
      Connie

  35. NeeLee June 17, 2014 at 11:15 am #

    I only have three days left of the treatment and I can’t wait to get this over with.
    8 years ago I did the Interferon and Ribaviron treatment. Injections and oral and it wnet on and on for almost 4 month effectively and then it stopped being effective. All that misery was for nothing.
    I am Genotype 2 and supposedly it was going to work for me. It did not.
    I was reluctant to try the new treatment especially with Ribavirin. I know those side effects but my Doctor who was part of the trials convinced me to do it.
    Each blood test showed my viral load disappearing until it showed no more. Was I happy and excited. No! because I had miserable side effects all over again. I thought they will cure the Hep C but kill me with the side effects.
    Nausea, terrible headaches, lethargy, Dizzy all the time, stomache problems, personality changes. Sleeplessness. Weight loss. I was miserable and all the time the anxiety it would stop having a positive effect. Whatever assistance I got from my medical team was not helpful enough. They were more interested in the viral count
    Now I aam about done and I have read on several blogs that the negative effects could last up to 2 years. I think I would rather have the hepatitis C. I am very discouraged. Someone encourage me please.

    • Connie M June 23, 2014 at 6:42 pm #

      NeeLee,
      I am so sorry you are dealing with so many of the side effects. I know it is difficult. But I have personally done treatment 3 times, the first two did not work for me. Side effects were rough but I was determined not to give up. My last treatment held more side effects but it also held the Cure and I am glad I did it. I am now 2 years post treatment and all the side effects have gone. I started feeling better at 5 months post treatment and continued to improve. You will get beyond this.

      Pray and Have Faith. God will get you beyond this point.

      “Draw near to God and He will draw near to you.” James 4:8 NASB

      Some wise words by Elisabeth Elliot, “It is God to whom and with whom we travel, and while He is the End of our journey, He is also at every stopping place.”

      NeeLee, you can do this!
      (You) can do all things through Christ who gives (you) strength. Philippians 4:13 (emphasis mine)

      Praying for you each step of the way.
      Keep us posted on how things are going.

      Blessings,
      Connie

  36. vanessa June 25, 2014 at 8:43 pm #

    Hi all, I’m suppose to begin treatment as soon as my insurance approves. I’m very hopeful and happy about these new medications. I’ve already been through the hell treatment (chemo)and it didn’t work. Please pray for me. I so want this. I quit dating about 10yrs. ago due to this awful disease. I’m lonely and so want to have a significant other one day. I just never want to give this awful disease to anyone. I share my thoughts with you because I know you understand. Vanessa 🙂

    • Connie M June 26, 2014 at 8:20 am #

      Hi Vanessa,
      Thank you for letting us know you are preparing for the new combo treatment. When you get your start date be sure to let us know.
      You can do this Vanessa! We are here with you and praying for you every step of the way.

      (You) can do all things through Christ who gives (you) strength.
      Philippians 4:13 (emphasis mine).

      Blessings fellow warrior,
      Connie

  37. David June 30, 2014 at 6:06 pm #

    On week 6 of Olysio /Sovaldi. Got my 4 week viral load results Undetectable! Side effects don’t compare to past treatments I have done.. I have some fatigue (a quick nap helps) minor nausea once in awhile.. Cant wait to finish and head to the beach!

    • Connie M June 30, 2014 at 7:08 pm #

      Hi David,
      Thank you for sharing this Fantastic news! Congratulations!!!! Hip, Hip, Hooray!!!! So happy for you my friend. So good to hear your side effects are less. Keep focusing on your weekly Mile Marker and check off another week. Yay!!!
      Keep us posted on how things are going.

      (You)can do all things through Christ who gives (you) strength.
      Philippians 4:13 (emphasis mine)

      Praying & Cheering for you each step of the way!
      Blessings,
      Connie

  38. Thomas Z June 30, 2014 at 9:55 pm #

    I too am taking Sovaldi & Olysio, today is day 41. Doc called today and reported results of my first blood test, no virus present. No side effects to report.

    In 2000 I was treated with three injections per week of Interferon and six Ribavirin pills per day. In week 24 the meds stopped working and they discontinued the remaining 24 weeks of treatment. Side effects were horrible.

    Genotype 1A Male 63 years of age.

    • Connie M July 1, 2014 at 11:07 am #

      Hi Thomas,
      Thank you for sharing your report. Congratulations!!!! So happy to hear the virus is Non-Detected!!! This is terrific news!!

      I am thrilled to hear you are doing great with no side effects. That is awesome!! A virtual High Five to you my friend!

      Please keep me posted on your progress.
      You will be in my prayers as you continue.
      Many Blessings,
      Connie

      • Thomas Z July 28, 2014 at 2:49 pm #

        Greetings, today is day 69,received results of latest blood work, it continues to show no virus present. Do have a bit of “brain fog” but hope that will go away post treatment.

        • Connie M July 29, 2014 at 9:34 pm #

          Hi Thomas,
          Congrats on being on day 69! Virtual High Five for continuing to be Non-Detected!! Brain Fog does get better and after awhile in recovery you will notice it clearing. Every patient experiences a different timeline for brain fog lifting. But hang in there, it’s going to get better!

          Praying for you.
          Blessings,
          Connie

          • Thomas August 13, 2014 at 8:08 am #

            Treatment complete, took the last two pills last evening. Next blood test will be 11/12/14.As of now, no virus detected. Now it is wait and see.
            Good luck to all who are on this roller coaster and remember…”This too shall pass.”

          • Thomas Z November 25, 2014 at 5:33 pm #

            Three month blood test results are in , no virus, looks like it is gone.

          • Thomas Z November 25, 2014 at 5:33 pm #

            Three month blood test results are in , no virus, looks like it is gone.

          • Thomas Z November 25, 2014 at 5:35 pm #

            Three month blood work results are, no virus detected.
            May many more have the same results.

            Be well,
            TZ

  39. george July 4, 2014 at 2:17 pm #

    Hi Everyone

    I was told one hour ago that I was hcv undetected after 12 weeks of Sovaldi Olysio treatment. I have to wait for my 12 week post treatment test now. I had hep c geno 1b for 39 years. Notice the word had? We all have to think positive even though sometimes its hard to do. I tried rib int treatment about 13 years ago. I was able to go through the whole tortuous treatment but relapsed at the end of treatment. The two drugs I was on about 13 years ago are not Direct Antivirals like the new drugs that are now available. Thank God for the dedicated people who work very hard to come up with these new breakthroughs in medicine. Keep hope alive.

    • Connie M July 7, 2014 at 12:40 pm #

      Hi George,
      Congratulations for being Non-Detected!!! What a perfect day to get the news as the 4th Independence Day!!! You have gone through a long haul journey. I am so thrilled for you to have defeated the Hep C giant! Praise God!!! Thank you for sharing your encouraging journey and hope with us.

      Keep me posted on how you are doing.
      You are in my prayers as you continue in your recovery process.

      (You) can do all things through Christ who gives (you) strength.
      Philippians 4:13 (emphasis mine).

      Blessings fellow warrior,
      Connie

  40. Jeanlee July 4, 2014 at 4:01 pm #

    Hi I’m on the sovaldi Olysio and ribarvirn I’m African American and geno type 1 a cirrhosis 4th stage I’m praying this works this is my ninth day I have my labs on wed I can do all things in Christ who strengthens me I pray for all us. Warriors

    • Connie M July 7, 2014 at 12:07 pm #

      Hi Jeanlee,
      Thank you for sharing about your treatment. Congratulations for your Ninth Mile Marker Day!!! It won’t be long and you will have 2 weeks of treatment completely done. Keep focused on Christ and His word and your Weekly Mile Marker Day (whatever day of the week you began treatment, that is your Mile Marker Day).

      Feel free to join us on the online support group that meets each week on Fridays, Hep C Warriors Friday Forum Support Group. You will receive great encouragement and support throughout your whole treatment and recovery process.

      If you have any questions, feel free to ask. We are here for YOU!
      Praying for you as you continue treatment.
      Blessings fellow warrior,
      Connie

    • Sharon September 7, 2014 at 12:00 am #

      Hi Jeanlee and everyone on this site,
      I am an African American female, 62 years old, genotype 1a, stage 3, plus I have many auto-immune disorders. Have had hep C for 31 years since blood transfusions in 1983. I treated twice with the old treatments, side effects put me in hospital and treatments were stopped but the virus went away quickly, but returned on first checks after. I started Solvaldi / Olysio treatment on August 18, will have 4 week viral load check on September 15. Jeanlee please let me know how the treatment is working for you. I don’t know of any other African Americans taking this treatment so I really want to see how it’s working for us. If anyone else knows how African Americans are doing with the S/O treatment please share, the clearing percentages use to be lower for us on the old treatment, not sure about the new S/O treatment. Jeanlee according to my counting, you are about 6 weeks ahead of me on the treatment. I am praying to God for your miracle, my miracle, for everyone taking treatment’s miracle and everyone else infected with this disease to be CURED in Jesus’ name! Please pray for me and my total healing too!

      Sharon

  41. menchu July 5, 2014 at 4:20 pm #

    hi to everyone, its good to hear all the success story!
    i just want to ask in which particular country and hospital we can avail the medicines?
    im from phillipines and i want to avail the meds, im willing to spend even without the
    coverage of the insurance. pls it would be of big help if you could email me the details.

    best regards.
    menchu

    • Connie M July 7, 2014 at 12:29 pm #

      Hi Menchu,
      Thank you for writing and asking about treatment availability. I have contacted Gilead Sciences the makers of Sovaldi. They have reported a proposed filing for registration of sometime this year in order to work to bring Sovaldi to the Philippines. I do not know any details other than that. I am also not familiar with medical visa’s for those desiring treatment in other countries or in the US.

      For further information you may contact Gilead Sciences:http://gilead.com/contact or http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      You may also contact the World Hepatitis Alliance to see what information they have on treatment availability:
      http://www.worldhepatitisalliance.org/en/

      As to getting treatment from another country, I am not not familiar with details of medical visa’s. I am sure every country as a different protocol. Here in the US, you have to be under a physician’s care and certain test’s have to run prior to treatment. Treatment is only obtained with a physician’s prescription from a pharmacy where the treatment has been approved for use. All Hep C patients have to be monitored with blood tests and physical exams while on treatment and in recovery/post treatment.

      I have reports that Japan is recently opening up treatment with Sovaldi, as well as Europe, Canada and recently with Pakistan. But again, each country has it’s own protocol and I am not familiar with any details.

      I hope and pray that new treatment will be available to you very soon in the Philippines.
      Praying for you as you seek information on treatment.
      Blessings,
      Connie

  42. Zain July 8, 2014 at 8:44 am #

    Hi Everyone!

    I need some serious advises. My mother was diagnosed with Hep C 6 years back by accident. We consulted with Doctors here in Pakistan and they told us it is not causing any trouble at this point so do not tease it till it gets active (that could take 20 years, as per the Doctors).

    However, my mother was not feeling well since last 3 month so we went for ALT, AST tests and she got quite high values for it, around 91 for SGPT ALT. Bang, we decided to undergo the HCV RNA and it was still positive (as appeared before 6 years).

    Now, I’m confused as how to treat it. I reside in Pakistan and Sovaldi is currently not available openly (we need to request one of the partner companies to have them import it). Also, my mother’s age is around 50 years and she weighs around 100 KG.

    Would that be a good option to go with regular PegIntro + Ribavirin injections that would take a year as she’s genotype 1b? Or should we wait for Sovaldi that can arrive within 3 to 6 months time.

    Luckily, her liver is not damaged yet it is just inflamed. I’m afraid she can’t deal with the adverse side effects of that typical one year injections’ course.

    Please advise.

    • Connie M July 8, 2014 at 1:13 pm #

      Hello Zain,
      Thank you for writing and sharing about your Mother’s condition. I am sorry to hear she is dealing with this. For advice on treatment, I do not know what her viral load count is and other liver condition, her physician would be the best one to tell you these answers.

      Here is an article talking about the availability of Sovaldi for Pakistan. http://www.thenews.com.pk/Todays-News-6-250341-Oral-drug-to-be-available-at-subsidised-rates-at-HFH-soon

      As for the US, Sovaldi cannot be purchased out right. It can only be obtained through a pharmacy with a prescription from a phyisican where the treatment is approved for use. I hope the article above will be able to help you with information.

      Sovaldi does have a very high cure rate and many here in the US are receiving great results. All Hep C patients have to be monitored by their physician while on treatment with blood tests and exams and follow up into recovery.

      Genotype and liver condition as well as in past treatment history tolerance does go into consideration in determining which treatment meds are best suited for each patient as well as how long to do treatment.

      Keep us posted on how things are going.
      Your Mom and family will be in my prayers as well as asking God to open up doors for the right treatment for her.

      Blessings,
      Connie

  43. florica balean July 8, 2014 at 8:54 pm #

    My husband Petru had hepatitis c 1b for 18 years.In january 2014 he started the new treatment with sovaldi and olysio.After only 28 days ,with God help ,he had no more hepatitis C.We are happy.

    God bless America!

    • Zain July 9, 2014 at 4:26 am #

      Florica,

      It is wonderful to know, I wish he stays healthy forever. Please tell me more about Olysio? Is it an oral drug or do we use it with injections like Interferon?

      Also, can we buy it outside the US? I reside in Pakistan.

      • Connie M July 10, 2014 at 9:56 am #

        Hi Zain,
        Thanks for asking about Olysio. This drug is by Janssen and currently used in a couple different ways. The combination that Florica and the above treatment experience with Tammy is talking about is currently considered “off label,” meaning, both drugs have been approved for use for Hepatitis C but have not been approved to be used together. But since both have been approved and have had clincial trials proving effective treatment for patients who cannot tolerate side effects from Interferon or Ribavirin, this combination has been used. It is currently under priority review with the FDA for approval.

        Olysio has well as all Hep C medications cannot be sold outright. It has the same requirements has all the other treatment meds. To my knowledge, this treatment is not available anywhere else outside of the US at this time. But like most of the other drugs I am sure these new treatments will become available to other countries, I just do not know the timeframe.

        If you care to contact the makers of Olysio: here is there contact information: http://www.olysio.com/hcp/?utm_source=google&utm_medium=cpc&utm_campaign=Olysio&utm_term=olysio&utm_content=Brand-+Exact|mkwid|s1USLBwEs_dc|pcrid|36515668577

        or
        http://www.jnj.com/news/all/OLYSIO-simeprevir-Receives-FDA-Approval-for-Combination-Treatment-of-Chronic-Hepatitis-C

        Blessings,
        Connie

        • Zain July 11, 2014 at 10:43 am #

          Hi Connie,

          So I called Gilead last night and spoke with their public affairs. They are not sure about any collaboration been done with our local pharmaceutical company. I’m now confused as what to do.

          Doctors and that specific company assures arrival of Sovaldi within a couple of months but how come Gilead has no news for it.

          Or may be they did not feel comfortable disclosing this with a random caller who called their support.

          Confused 🙁 and need help!!

    • Connie M July 10, 2014 at 9:45 am #

      Hi Florica,
      Thank you for sharing about your husbands wonderful results with Sovaldi and Olysio. It is such a great blessing! Congratulations!!!!

      Keep us posted on how he is going.
      Praying for your family as treatment continues.
      Blessings,
      Connie

  44. Ronald Sarvas July 9, 2014 at 6:06 am #

    Hello Fellow Troopers;
    To my great surprise, the VA approved my Sovaldi/Olysio treatment and I am to start it on Monday the 14th July. I am both apprehensive and excited. I’ve been waiting for this and have endured so much for so very long. After my 2nd treatment had failed on the Interfergen/Ribavirin and being on that hideous and cruel treatment for nearly 2 1/2 years. I remember my Dr. telling me that my treatment had failed and that I had a year or maybe 2 years to live. That was back in April of 2008. Next week, I get to see my Dr. eat crow and boy does it ever feel good. I am thrilled that the Veterans Administration is currently under some serious scrutiny, I think it is for that reason that they approved me for this treatment.
    I’ve been warned to expect headaches and fatigue and was curious about knowing what it is that I am to expect or anticipate about my next 12 weeks. Any information is always good information and I appreciate anyone’s insights on coping with this treatment, relative to side effects and those little twirks that seem to go unmentioned. For those Veterans out there, The VA has a policy, as was told to me to selectively choose patients with advanced HEP C and stage 3 or higher liver cirrhosis. My argument was this.. To wait until a patients liver is permanently damaged beyond repair before approving the treatment is both immoral and illogical, because of the future treatment costs for sever liver cirrhosis. So don’t take no for an answer and realize that a bureaucrat politician will probably spend more on their lunch, than the total cost of your treatment, So be assertive. I’ll keep you posted on my progress as the time goes by. Indeed, I am very hopeful and excited about all of this.
    My best wishes and hopes to all of you .. Ron

    • Kay July 9, 2014 at 10:09 pm #

      Best of luck Ron, I am a veteran but was told of the back log and really didn’t have the fight in me. I became disabled and Medicare covered my treatment medicine and a grant for the copayment Good for you for not backing down. I am three days in and it is nothing like the past treatments. This site is another miracle happening in our lives as we go this long journey. Not even three months ago did I have hope. Praying for everyone.

  45. Thomas Z July 9, 2014 at 9:11 am #

    Ronald Sarvas,
    Today is day 50 for me on the meds, no side effects at all!
    See my earlier post on this link for more info.
    I also am a vet, VN 69-70. Am 100% disabled with Waldenstrom’s Macroglobulinemia due to Agent orange exposure so getting rid of Hep C is huge plus.
    Welcome home.

  46. George July 9, 2014 at 12:18 pm #

    Hi Ronald Sarvas

    I also tried Int Rib about 13 years ago. I went through the whole tortuous treatment but relapsed at the end. I finished 12 weeks of Sovaldi Olysio treatment 2 weeks ago. I am hcv non-detected and I am waiting for the 12 week post treatment test now. As far as side effects with Sovaldi Olysio everyone is different. In the first 2 weeks of treatment I had some head aches and some constipation but after 2 weeks it was pretty good all the way through with a little fatigue from time to time. The treatment seems to be tolerated well by most people. Just make sure you dont expose yourself to the sun. I wore long pants and long sleeve shirts the whole time and sunblock on the rest. You dont want and adverse reaction to occur because of sun exposure. You will be just fine. Be hopeful because these new drugs are curing many people.

    • Kay July 9, 2014 at 10:12 pm #

      Thanks for the sun tip. I’m in Florida and just getting from your car to Walmart the sun is brutal.

  47. Bruce July 9, 2014 at 6:27 pm #

    Well I first found out I had hep c in 1989. Needless to say at that time I was not offered treatment until the onset of interferon. I did that for 6 months 3 times a week during treatment virus was undetectable. Two years later it was more interferon this time for a year blood count crashed after 11 months treatment was stopped . Then I became part of the first study using interferon and ribraviron for another year. I told myself I would not give another day of my life to this treatment which only seemed to work while I was on it and feeling half dead. It has been at least 10 years and I just agreed to do the duel treatment of Sovaldi and Olysio and should start sometime next week. I found this site and I am thankful to all who suffer from this, I pray this is as good as they tell me it is but more encouraged by the wonderful people who have shared their story I know longer feel alone in this battle . Thank you all you are all in my prayers .

    • Kay July 9, 2014 at 10:00 pm #

      We share the same story Bruce. I am three days in and it is nothing like the past treatments. Good luck, a just came across this web site. It is one of many blessings that have given me hope. Just knowing you have people that understand. It’s nothing I could explain. Like talking to people in a foreign language. Now Connie wonderful site. God bless

  48. George July 10, 2014 at 1:32 pm #

    Hi Connie

    I am from the city of Toronto in Canada. Both Sovaldi and Olysio were approved by Health Canada In January 2014. I completed 12 weeks of the 2 drugs just over 2 weeks ago. NON-DETECTED. You have responded to another post that I had. Just wanted everyone to know that Canada is right behind our great friends to the south when it comes to this issue. I am very lucky to live in Toronto. We have a well known World Class Liver Clinic here with the very best specialists that you could ask for. Thank God for Universal Health Care.

  49. Zain July 11, 2014 at 10:46 am #

    Hi Connie,

    So I called Gilead last night and spoke with their public affairs. They are not sure about any collaboration been done with our local pharmaceutical company. I’m now confused as what to do.

    Doctors and that specific company assures arrival of Sovaldi within a couple of months but how come Gilead has no news for it.
    Or may be they did not feel comfortable disclosing this with a random caller who called their support.

    Confused 🙁 and need help!!

    • Connie M July 11, 2014 at 10:59 am #

      Hi Zain,
      Here’s my opinion, maybe who ever you spoke with is not familiar with what is going on with the registration for application to bring Sovaldi to Pakistan. I did in fact talk to Gilead and they gave me information on what countries they are currently working with filing registration application with and Pakistan is one of those countries.

      If I were you, I would rely on what your physician is advising.

      Praying for you & your family.
      Blessings,
      Connie

  50. Zain July 12, 2014 at 4:02 am #

    Thanks for letting me know Connie. We have different advices from different physicians here. 2 of them said go for the dual treatment as soon as possible, while one said to wait for Sovaldi considering its efficacy and less cure ratio of the dual treatment for genotype 1b.

    I have decided to wait for at least a couple of months. I hope it gets imported in Pakistan. Thanks for your support and prays.

    I’ll keep you posted..

  51. Ronald Sarvas July 12, 2014 at 6:11 pm #

    Kat, Thomas, George, Bruce on of course Connie;
    Un-benounced and to my surprise, I started the treatment Solvadi/Olysio 3 days ago. What happened to the side effects? I demand some side effects? I feel cheated… When I took my first shot of pegylated interferon in Sept 2005, a few hours later I was shaking so badly that FEMA came to my house to see if I might be a natural disaster. On the serious side, outside of an extremely mild headache sensation, I am feeling great. this is going to be a breeze. I find it difficult to believe after all of the years of horror that I went through on previous treatments that today, I have hope and a smile upon my face. I can hear those millions of tiny screams as they are being mercilessly slaughtered by Lord Solvadi and Prince Olysio. Thanks to everyone for the support.
    Ron

    • Connie M July 14, 2014 at 7:11 pm #

      Hi Ron,
      Thank you for writing and letting me know about your treatment start time and “absence of side effects.” Congratulations for feeling so well. The Lord truly does work in mighty ways!

      New treatment is improved, but normally side effects will tend to be there, even in a slight degree as compared to previous treatment.
      But I am very glad to hear you are doing so well. It’s a huge Praise to God! It reminds me of our special scripture this week,
      “He is before all things, and in Him all things hold together.” Colossians 1:17

      Keep me posted on how you’re doing.
      Blessings my friend,
      Connie

  52. Tracy R July 23, 2014 at 8:00 pm #

    My lifelong best friend contracted Hep-C genotype 1a sometime long ago from an unknown source. She was diagnosed in 1996 and in 2008 she had to have a liver transplant as she was at end stage liver failure. They attempted treatment before the transplant but she had a severe allergic reaction to Interferon and Ribavirin and had to stop after only one dose. Shortly after the transplant she had to go back into surgery because of a peritonitis infection and they had to open her up completely again and perform an antibiotic washout of her abdominal cavity.

    She is now waiting for insurance approval for the Sovaldi/Olysio treatment.

    She is a chronic pain patient of 20+ years with Reflex Sympathetic Dystrophy and is taking dilaudid, methadone, ativan and klonopin to manage her daily pain. She has been physically disabled due to this since 1998 and has been on Social Security disability and Medicare ever since with little hope of being able to work again.

    A couple of years before having her transplant she became diabetic but that went away shortly after her transplant. Unfortunately in March 2013 her diabetes reappeared but is under control with Lantus and Humalog.

    Are there any post liver transplant folks on here that can give some insight on any problems they might have had during their Sovaldi/Olysio treatment and were they attributable to the transplant.

    Also, can anyone with diabetes give some information on any issues they may have had. Did getting rid of the Hep-C virus have a positive or negative effect on your diabetes?

    And are there any chronic pain individuals that can elaborate on their experience with this new treatment and any side effect they may have had with their other medications.

    She has always had a problem with side effects on virtually all medications she’s ever been given to some degree or another. She was very allergic to the Prograf and Myfortic transplant anti-rejection medications at first but her doctors were able to find a dosage combination that worked with the least amount of side effects. Last year she was able to stop taking the Myfortic all together. We believe the Myfortic was what brought back her diabetes as it is known to affect blood sugar and is not good for the pancreas.

    Needless to say she is very scared of taking yet another new medication given the pain and suffering she has had to endure through the years and she is just tired of having to see one doctor after another every month for all of her illnesses.

    Any information will be greatly appreciated.

    Thank you, Tracy R

    • Tracy R July 23, 2014 at 10:26 pm #

      And I have also been reading everything I can find on the new Sovaldi/Ledipasvir combination and it sounds even more promising that the Sovaldi/Olysio combo.

      Does anyone have any information to pass along on this combo given her other health problems?

      Thanks again, Tracy R

  53. Roy N. July 24, 2014 at 8:23 am #

    Will soon be starting Oly/Sov treatment. I am another of the Peg-Intron/Ribavirin failures. I am a diabetic (on insulin and Metformin) and am curious about what, if anything, Oly/Sov does to blood-sugar levels? This is a great comment site. You have already taught me a lot about what to expect. Many thanks.

    Roy

    • Connie M July 29, 2014 at 9:46 pm #

      Hi Roy,
      Glad to hear you will be starting the Olysio/Sovaldi combo. It is a wonderful treatment. Many are receiving fantastic results. As for your question about what this treatment does for blood sugar levels? I do not know the answer to that one. Have you asked your physician about that?
      I can give you links to Sovaldi and Olysio but they are separate websites due to this is still considered off label for right now. This combo treatment is under priority review by the FDA and we expect to hear final approval soon. I expect Janssen will put up a website for this combo as soon as approval comes through. Meanwhile here are the links to both websites:
      http://www.mysupportpath.com/
      http://www.olysio.com/hcp/?utm_source=google&utm_medium=cpc&utm_campaign=Olysio&utm_term=olysio&utm_content=Brand-+Exact|mkwid|s1USLBwEs_dc|pcrid|36515668577

      Keep us posted on when your start date is and how things are going.
      You will be in my prayers as you prepare and do treatment.
      Blessings,
      Connie

  54. Pam July 24, 2014 at 11:53 am #

    I am iin week 5 of Olysio and Sovaldi. My labs at 2 weeks showed that my viral count went from 3.6 million to 51! Also, my liver enzymes, ALT and AST were in the normal range again. I just got my labs back from 4 weeks but I don’t have the viral count yet. It takes a bit longer. However, I was extremely discouraged to see my ALT and AST go back up to 39 and 43 from 26 and 31. Any thoughts?

    • Richard kreedman July 27, 2014 at 1:16 am #

      George, thank you also. It is very encouraging to me also. In Christ, richard

    • Connie M July 29, 2014 at 9:51 pm #

      Hi Pam,
      It is common for Liver Enzymes to go up and down. Those numbers are still not that far off. Try not to worry or be discouraged. Keep on moving forward. You really are doing great! To go from 3.6 million to 51 at 2 weeks is fantastic!!!
      Keep us posted on your report and how things are going.
      You are in my prayers daily.

      Blessings,
      Connie

      • Pam July 30, 2014 at 8:36 am #

        I just received my labs from 4 weeks into treatment. The virus is still detectable! It is below 15 which is extremely low but that is like being a little bit pregnant. I truly thought that I would be undetectable by now. How can it have gone from 3.6 million to 51 in 2 weeks and with another 2 weeks it is still detectable? I am so disappointed.

  55. George July 24, 2014 at 12:19 pm #

    George
    Hi Pam I am 4 weeks and 1 day post treatment with Sovaldi and Olysio. I am now waiting for my 12 week post treatment test. I was non-detected at the end of treatment. I was told by the nurse that looks after me at the liver clinic that some people that are non-detected for the virus do not have a normal alt. What you want is to become non-detected and then have a SVR. I started with a VL of 2.86 million and went to less than 15 after 28 days of treatment. At the same time my alt and ast although much lower were not quite normal yet. Also i notice that many people think that they have to be non-detected by the end of week 4 which is day 28. If you look into the Cosmos Study relating to Sovaldi/Olysio you will find that more people achieved SVR12 who were not non-detected at week 4 as opposed to those who did achieve non-detected at week 4. The SVR12 was achieved in both groups in high numbers. My alt and ast did normalize on my week 8 test. You sound like you are doing well so far so dont worry too much about the alt and ast at this point.

    • Pam July 24, 2014 at 12:43 pm #

      Thank you George. That is very encouraging to me:)

  56. George July 24, 2014 at 12:21 pm #

    Pam
    It should have been your name where my name is above the text.

  57. Jim M July 24, 2014 at 10:50 pm #

    Hello all, George thanks for that…I didn’t clear after 28 days but I went from 18,000,000 down to 46 so I’m making progress. I guess I got a little depressed it wasn’t non detect, and I’m not near as pumped as I was on June 5 but still blessed for the chance of a cure. I’m having worse sides than most it seems, maybe because I work outside. I keep covered but its still hard to get up and go every day, Oly/Sov treatment isn’t as easy as I had hoped but lord willing I’ll be able to finish. Doc wont be checking VL again until 12 weeks but liver function seems to be normal, I have a lot more abdominal bloating than usual has any one else had this? Not trying to be negative just feeling bad and tired of it. Thanks to all who share here sometimes the smallest words of encouragement can transform a person from the defeated to the warrior

  58. George July 25, 2014 at 6:47 am #

    Jim M
    Hi Jim. When I was on treatment I followed one individual on You Tube who did a short video every day that he was on the Sovaldi Olysio treatment. He covered all 84 days plus a couple before he started and then his VL result when he received it after treatment. His VL was much lower than yours at start of treatment and it was 80 at day 28. He is non-detected and waiting for his 12 week test as I am. He was 8 days ahead of me in treatment. I had some trouble with abdominal discomfort and over the years I changed my diet significantly. I dont know if that would help you but I thought I would mention it. I only drink coffee and water. My diet is mostly fruit, vegetables, grains, nuts and seeds. I eat limited amounts of cheese, eggs and chicken. I have at least 2 days every week with no animal products at all. I cut out red meat and pork. This has helped me very much in feeling better and my abdominal pain is more than 90% better. I hope this can help someone. I find that just sometimes we are our best doctor. Keep your head up Jim and lets win this fight.

    • Connie M July 29, 2014 at 9:55 pm #

      Hi George,
      Good advice to Jim. Thanks for sharing the good information and encouragement.

      Blessings,
      Connie

  59. Goran July 26, 2014 at 12:37 am #

    Connie,

    I am glad to hear your and others happy end stories about your successful battle against Hep C. I live in Serbia and my wife was recently diagnosed with Hep C GT1, at the end of our struggle to get all tests results for getting on state IVF list. Unfortunately, in Serbia, Hep C is still treated with PEG interferon + Ribavirin…and Telaprevir + Bocaprevir …but only after the previous treatment don’t work, which lasts for a year and half …and which (as I read here) damages your organism badly. Since we are 37 and 41, we decided not to start with treatment and to focus on making a family, and to wait for Simeprevir (Olysio) and Sofosbuvir (Sovaldi) to be introduces here as treatment (because we can not afford to pay for those medicines in our 100 lives). I am planing to somehow try to get Sovaldi and Olysio in Egypt and treat my wife (don’t know how, but I must try). I know that Sovaldi should be taken as 1 pill a day, but I don’t know how many pills of Olysio have to be taken daily. The other problem is that here in Serbia they do not detect Genotype Subtype and we only know it is 1. Do you know (or can you ask your doctor) is there a difference in the therapy for subtypes 1a and 1b (regarding Sovaldi + Olysio)?

    Thank you and all the others for all this information here and I wish you all the very best in the future.

    BR,
    Goran

    • Connie M July 29, 2014 at 7:47 pm #

      Hello Goran,
      Thank you for commenting and sharing about your wife’s journey. First, let me say, my last treatment was with Peg Interferon, Ribaviri and Incivek (telaprevir)and I went Non-Detected the first 4 weeks of treatment and remained Non-Detected all through treatment and continue now 2 years post treatment. So even though it is different treatment with side effects, it is still effective.

      To answer your question about Sub Genotype for Genotype 1. There is a difference and your wife would need to be tested for the subtype for Genotype 1 to make sure she does not have the sub variant, otherwise treatment with Olysio would not be best suited for her.

      I do not know which country closest to you is testing for subtype. I would recommend contacting the World Hepatitis Alliance (http://www.worldhepatitisalliance.org/en/) and ask them about testing for this in the nearest place to you. I am not familiar with medical visa’s or what other countries require outside of the US. I do know all Hep C treatment cannot be purchased outright. It can only be obtained with a prescription from a physician where the treatment has been approved for use. All Hep C patients need to be monitored by their physician while on treatment and into recovery.

      I hope the new treatments will be available soon in your area.
      Keep us posted on how things are going.
      Your wife and family are in my prayers.
      Blessings,
      Connie

  60. Carol July 26, 2014 at 8:39 am #

    I’m scheduled to start sovaldi and olysio tomorrow. I take high doses of laxatives due to severe constipation and am wondering if this will interfere with my treatment as it dehydrates me. I also eat a lot of fiber which may add to that problem. Although I plan to drink a lot of water with the treatment I’m wondering if it will be safe for me. I am genotyping 1B and treatment naïve my viral load is six million and my liver enzymes are just slightly high. I’ve had the virus for 32 years.

    Am very grateful for all the posts and information on this website. Thank you very much. Carol

    • Connie M July 29, 2014 at 1:28 pm #

      Hi Carol,
      Thank you for commenting and sharing about your treatment start date and history. Congratulations on starting treatment! You are on your way to completing your first Mile Marker, I have attached the link to the article on Mile Markers, it really helped me during treatment.
      https://www.lifebeyondhepatitisc.com/2014/07/hep-c-treatment-mile-markers/

      As for taking the laxatives, be sure to tell your physician and nurse what you are taking. It will help them guide you through your treatment. With all Hep C Treatment it is highly recommended to drink lots of water. Treatment meds are very strong and your body needs the proper fluids.

      This is a very good treatment for Hep C with a high cure rate and less side effects to deal with. Not every patient experiences the same thing with side effects. Some have slight symptoms and others none, but keep focused on your weekly Mile Marker, eating healthy foods, drinking lots of water, and most of all keep your focus on Christ. With Christ you can do all things. Keep us posted on how you are doing. We are here for you.

      Praying for you daily.
      Blessings fellow warrior,
      Connie

  61. Ron Sarvas July 28, 2014 at 5:45 pm #

    Greeting Warriors;
    Day 21 on Solvadi/Olysio. Had this problem with inflammation in my feet and lower legs for a few years now. I noticed recently that it has completely dissipated. Since the hep C Virus infiltrates every cell in your body, I don’t think that there is any real way to discern how, or in what way, it will effect the host individual. Outside of the obvious liver issues that are associated with HCV, Hep C is not solely a liver disease.
    I am a believer in a higher being or force, but I’ve seen what religion has done to my world, so I prefer to keep me relationship between me and my Maker, between me and my Maker. I only say this because although God is Great, The science behind the Olysio/Solvadi treatment favors no religion. Thank you to the scientists, geneticists, lab rats, and researchers for producing this very promising treatment. Still no notable side effects outside of some barely noticeable headaches. I will keep you posted as this story continues. Thank you all for the support.
    Ron

    I seem to be more clear minded, my sleep more restful, appetite improving, but my hair still isn’t growing back. Perhaps tomorrow!! I get my 1st viral count and blood-work next week. I’m excited to see my results

    • Connie M July 29, 2014 at 1:42 pm #

      Hi Ron,
      Thank you for commenting and sharing about your treatment journey. Congratulations on being at day 21! That is fantastic!!! Sounds like you are doing well. I am so glad. With being in treatment, if you are experiencing hair loss, be sure to talk to your physician about that. I’ve not heard of hair loss with Sovaldi and Olysio combo, but it does occur with other Hep C treatment. But in any case, hair loss can sometimes continue into a couple of months of recovery and then stop. For myself, I lost approx. 40% of my hair and after treatment it took awhile for the treatment meds to leave my system but after a couple of months the hair loss stopped. Now it has nearly all grown back. But in the big picture of things for myself, it wasn’t a big deal since I knew it was temporary.

      I am glad to hear you are experiencing better clairity, good sleep and improved appetite. As for your relationship with God, of course that is personal to you and we respect that. I personally believe in the Bible and my relationship to God and Jesus Christ is the driving force in my life. I believe He works through many methods to help and heal us and it is my belief He works through medicine, so even though I give thanks to all the scientists, doctors, brave Hep C Trial warriors, I do give all the credit to God for working through these areas to make a cure possible.

      We are so glad you are here and part of the team of Hep C Warriors.
      We are excited for you as you continue this healing process and get back your life. Keep us posted on how you are doing.

      Praying for you each day.
      Blessings fellow warrior,
      Connie

  62. Snook July 29, 2014 at 2:03 am #

    Hi Everyone..I posted on July 17, Started Sovaldi and Olysio July 3rd. Well I no longer have any symptoms. I’m so worried that I’m taking my med’s wrong or with too much food or not enough food. The reason I worry is because I have no symptoms at all. I feel so much better than before. I don’t feel my liver swollen. I used to feel as if my lungs were compressed or something because I couldn’t take deep breaths. Now I can take deep breaths and I sleep through the whole night. i used to toss and turn because I felt I couldn’t breath right. It’s all gone. Sometimes I get anxious because I feel like I want to get up and do things. When before I had to force myself out of bed. I have even lost 10 pounds. I hope these are positive signs. I didn’t even realize what Hep C was doing to me. I thought I felt tired because of old age. I do have very orange urine in the mornings and green stools. .I had my 2wk lab works drawn on the 24th so I am calling tomorrow to see if they will tell me anything. I am hoping everyone can agree in prayer for a decline in my PCR. I will post after I find out. Wishing everyone success on their mission to slay the dragon.

    • Connie M July 29, 2014 at 1:50 pm #

      Hi Snook,
      Congratulation on being at your week 3 Mile Marker!!! You are doing great!! Don’t worry about not having any symptoms. YOU are blessed my friend! Not everyone Hep C patient experiences the same thing. Some on this treatment don’t have any side effects and report the same thing as you have, they actually feel better and have more energy. Treatment without Interferon and Ribavirin has less side effects to deal with. All though all treatment generally will have some, side effects can sometimes cycle through treatment. But you are not the only one I’ve talked with who has reported not experiencing any, and they received great results.

      Keep us posted on how you are doing.
      I am praying for you each day.
      We are excited with you on hearing your upcoming report.

      Blessings fellow warrior,
      Connie

      • Snook July 29, 2014 at 4:35 pm #

        Thank you Connie
        Well I called today to get my results and they said I was undetected! I no longer have Hep C after 20 years I have cleared the virus. The reason I have felt better is no longer in question. My platelets are increasing. All my blood levels are normal. Thank God!!!!!! The first thing I did was thank God! then I called my Mother who has prayed for me all her life. Now i want to thank you guys for your support and prayers. I have to continue my meds. the nurse said I was the first that she has heard of to clear in two weeks. I am a genotype 1A or I was a genotype 1A 🙂 which, I was told was hard to cure. Faith moves Mountains!

        • Connie M July 29, 2014 at 4:43 pm #

          Hi Snook,
          Congratulations!!!! This is awesome news!!! I am doing the happy dance for you. This is such a huge Praise to the Lord. You are doing great. Keep up the good fight and keep moving forward my friend.

          We are Praying & Cheering for you!
          Blessings,
          Connie

          • Snook July 30, 2014 at 8:05 pm #

            Hi Connie
            Haha i can just imagine the happy dance..Made me smile. Thank You..

  63. Roger G. July 30, 2014 at 9:55 am #

    I hope to be starting the Sovaldi/Olysio treatment very soon. Just waiting for approval. Over past 15 years I have done combination therapy 3 times without clearing. Last time was horrible. I swore I was done trying. But now I am looking forward with great hope. Wish me well and pray hard.

    • Connie M July 30, 2014 at 11:52 am #

      Hi Roger,
      I know exactly how you feel. I had done two previous treatment and it was harsh and did not know what was ahead, but then protease inhibitors came to town and became a game changer. So I went into my third (and final!!!) treatment and won the battle. Today I am in 2 years of post treatment and Cured! We never know what turns our Hep C journey will take us, but I rested in God’s timing and His way. Roger, there is great hope. I am praying for you as you prepare and for your treatment ahead.

      Keep us posted on how things are going and if we can help.
      Blessings fellow warrior,
      Connie

  64. Pam July 30, 2014 at 10:34 am #

    I just received my labs from 4 weeks into treatment. The virus is still detectable! It is below 15 which is extremely low but that is like being a little bit pregnant. I truly thought that I would be undetectable by now. How can it have gone from 3.6 million to 51 in 2 weeks and with another 2 weeks it is still detectable? I am a bit disappointed with still hanging on with great faith and hope.

    • Connie M July 30, 2014 at 11:46 am #

      Hi Pam,
      I know it’s hard not to be disappointed but remember every patient has their own timeline to clear the virus. Going from 3.6 million to 51 is an incredible victory, and you are continuing to make progress and have victory with the count down to 15. So hang in there. You are still at the beginning side of treatment and have some battle time left. When we hear others going Non-Detected in the first 2 to 4 weeks we all consider that is just the way it is for everyone, but that’s not the case,due to everyone’s viral load count is different and so many factors.

      Don’t allow yourself to focus on what has not happened yet. Focus on the wonderful progress and victory that IS IN PROGRESS.

      “Be Strong and Courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you.” Deuteronomy 31:6 NIV

      Hang in there Pam and keep fighting. You really are doing great!
      I am praying for you each morning.
      Keep us posted on how you’re doing.

      Blessings my friend,
      Connie

      • Pam July 30, 2014 at 1:00 pm #

        Thank you and God Bless you!! My faith is in the Lord but sometimes the doubts and fears slip through. I know I am going to rid my body of this monster!!

        Prayer works and I really do appreciate and FEEL them.

        Pam

    • George July 30, 2014 at 12:29 pm #

      Pam
      I was less than 15 on my 4 week test also. The doctor told me that so far most people are getting the same result at week four at the Liver Clinic. I am exactly 5 weeks post treatment and waiting for my 12 week test. I was non-detected at end of treatment. If you look into the Cosmos Study regarding Sovaldi/Olysio it indicates that more people who did not achieve non-detected at four weeks achieved SVR12 than those who did achieve non-detected at four weeks.

      • Pam July 30, 2014 at 1:02 pm #

        George, thank you for your strong encouragement as well. It is so good to hear of all the victories. I still have moments of fear and doubts but the positive feelings are still in the majority!!

    • Snook July 30, 2014 at 8:23 pm #

      Hi Pam
      On the positive side your count is going down. If you slayed over 3 million in 4 weeks. I think 15 points in 8 weeks is going to be a possibility. I will keep you in my prayers..Lets keep the Faith 🙂

  65. George July 30, 2014 at 1:37 pm #

    Pam and anyone else who is interested
    Good article to read. Go to website- hivandhepatitis.com In the Search type in final cosmos results. Finally click on number 1 on page EASL 2014: Sofosbuvir + Simeprevir shows high cure rates for hep c patients with or without cirrhosis. Take note of the discussion about RVR, Rapid Virological Response.

    • Connie M July 30, 2014 at 1:54 pm #

      Hi George,
      Thank you for recommending to Pam this article on the Cosmos study. It is a reliable medical source and shows great promise for what Olysio/Sovaldi combo can do. Appreciate your input and encouraging others.

      Blessings,
      Connie

  66. Juan July 31, 2014 at 5:08 pm #

    today is july 31 I started the treatment on july 15th 2014 I got the hep c geo type 1 in 1980 from a blood transfusion I tired the shot and the rib cant spell to good any way could not handle it so I said the heck with it and just kept drinking until 4 mos ago I have been sober and when to doc hep c was active and liver not that good anyway by the grace of God its been going well reading this page has help me be calm but as I say God is in charge I go the 4 aug for my first blood reading anyway thank u all this infor and to u connie BAM!!!!!!!!!!!!!111 I will keep uall inform

    • Connie M July 31, 2014 at 5:42 pm #

      Hi Juan,
      Thank you for writing and sharing about your Hep C journey and treatment. Congratulations on taking this brave proactive step with stopping drinking and doing treatment. You are a Mighty Hep C Warrior!

      Jesus is there to help you with every need. Lean on Him. Some great scriptures for every step of the journey are:

      “Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him and he will make your path straight.” Proverbs 3:5-6

      “For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear; I will help you.” Isaiah 41:13

      Keep us posted on how you’re doing.
      You will be in my prayers each morning.
      Blessings fellow warrior,
      Connie

  67. Sohaib August 1, 2014 at 4:23 pm #

    Hi, I am from Pakistan, and father has hep C genotype 3, at cirrhosis stage, having varices and had endoscopy 3 times due to bleeding, i want to ask that:
    Will sovaldi helpful for him to cure from cirrhosis? Can sovaldi reverse the cirrhosis?

    • Connie M August 1, 2014 at 7:25 pm #

      Hello Sohaib,
      These are very good questions. The liver is an amazing organ that can regenerate itself from a certain amount of damage but as to total regeneration, that would really depend on each patient and their liver condition. Your physician would be the best one to answer that knowing your father’s liver condition. Sovaldi has a very high cure rate for Hep C, around 90%.

      I hope this article will help you. It has information about Sovaldi’s availability in Pakistan.
      http://www.thenews.com.pk/Todays-News-6-250341-Oral-drug-to-be-available-at-subsidised-rates-at-HFH-soon

      Your father and family will be in my prayers.
      God Bless~
      Connie

  68. Jim P August 2, 2014 at 1:26 am #

    Hello everyone, this is week 9 for me. It is interesting that my doctor did not ask for a viral count at the week 4 blood test. The week 8 test showed undetected for 1a. Praise the Lord.

    Just want to share that my grandson passed along a cold for me to deal with for a week and unfortunately revisited me a week later. I recommend avoiding kids or people who may be sick. Also, though I have been eating healthy (veggies, lean protein, lots of water etc) I was surprised to see that I had lost 11 pounds after 8 weeks on the Olysio/Sovaldi combo. I have had two adverse effects from sun exposure, the first was when I was in the sun for a short time with shorts (dark spots on legs) and the other was a skin reaction on my chin (try to cover up best I can now). Also, weariness comes and goes, can’t do as much exercising as I did the first 4 weeks (mostly walking) I too have experienced brain fog now and then.

    Trust in the Lord with all your heart and lean not to your own understanding, acknowledge Him in all your ways and He shall direct your paths. Proverbs 3:5

    • Connie M August 4, 2014 at 5:24 pm #

      Hi Jim,
      Thanks for letting me know how things are going. I will copy your post to the Hep C Warrior’s Support Group page so everyone will see it.
      Congratulations on your Non-Detected report!!!! Yayyyyyy!!!! So thrilled for you.

      I know what you mean about not being around folks who are sick when you’re going through treatment. When blood counts are low due to treatment we are more open to getting sick when the immune system is suppressed. Sorry to hear you were dealing with a cold and some of the side effects from sun and brain fog. It will get better. You are doing great though at week 9. Week 9 can you believe it?!!! Your progress is so great! Virtual High Five to you my friend.

      “With your help I can advance against a troop; with my God I can scale a wall.” Psalm 18:29

      Praying for you Jim!
      Blessings fellow warrior,
      Connie

    • Connie M August 4, 2014 at 5:31 pm #
  69. Kathy Allen August 7, 2014 at 7:59 pm #

    Hello. It has been 9 weeks since I last posted. I have 6 days left of the sovaldi/olysio combo treatment. My viral load has been undetectable since week 2 and also at week 4. I just more blood work done today and I will receive the results at my 12 week gastro appointment next Friday {August 15th). I know that it will be undetectable as well. This 12 weeks of treatment has really flown by quickly. I experienced few side effects, but nothing major. What a blessing this treatment has been. The few mild side effects I experienced were: mild stomach upset and a little fatigue. Other than that I have felt normal. To those of you on this treatment or waiting to start this treatment, hang in there and God bless.

    • Connie M August 12, 2014 at 3:46 pm #

      Hi Kathy,
      Thank you for sharing your treatment experience. This is awesome news on how well you have done and your response. Congratulations for being Non-Detected!!! Keep us posted on your report and how you are doing.

      I am praying for you.
      Blessings fellow warrior,
      Connie

  70. Roy N. August 8, 2014 at 11:43 am #

    Connie, You asked me to let you know when I start taking Sovaldi and Olysio. That will be on Sunday, August 10th. The only thing about my treatment that I have not read on your excellent website is my Gastro wants me to cut the dosage in half of my calcium channel blocker (for high blood pressure), from 10mg to 5mg per day. This is the first I have heard of any interaction of CCB’s with SovOly. Be well! Roy

    • Connie M August 8, 2014 at 2:05 pm #

      Hi Roy,
      Thank you for letting me know your treatment start date. This is actually the first interaction I have heard about with a calcium channel blocker for high blood pressure. Thank you for letting me know about it. I will have to look into this. Appreciate the heads up.

      Keep me posted on how you are doing. Remember, we are here for you!

      (You) can do all things through Christ who gives (you) strength. Philippians 4:13

      You are in my prayers each day.
      Blessings Roy!
      Connie

  71. Ulviyya August 8, 2014 at 11:48 pm #

    Hi everyone. I share your happiness. My mom diagnosed with hepatitis C but she is not resident yet, so she she cannot have insurance. I don’t know how to help her.

    • Connie M August 12, 2014 at 3:44 pm #

      Hi Ulviyya,
      I am not sure about that either. But you can contact or call Gilead Sciences and ask someone there what they recommend. Here is their link and phone number: To learn more about Support Path for Sovaldi®, please call 1-855-769-7284, Monday through Friday between 9:00 a.m. and 8:00 p.m. (Eastern). – See more at: http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi#sthash.kTekbEbo.dpuf

      Has she seen a doctor in the US yet about her Hep C? The doctors office may also have advice.

      Hope this helps.
      Blessings,
      Connie

  72. Greg August 14, 2014 at 12:38 pm #

    Hi everyone! Thanks for all the input and stories. I began Sovaldi and Olysio on July 4. I began with viral level of 6 million. After week 2 my viral count was 62 and 43 after week 4. I am hoping I am undetectable at week 6. Does anyone know when most people are undetectable.

    Thanks for the strength
    Greg

  73. George August 14, 2014 at 5:23 pm #

    Greg
    Hi Greg. I am 7 weeks and 1 day post treatment with Sovaldi Olysio. My viral load was less than 15 at day 28 of treatment. I am now waiting for my 12 week post treatment test. I was non-detected at end of treatment. My viral load was only tested before treatment at 4 weeks and at end of treatment. The Cosmos Study with Sovaldi/Olysio clearly states that more people went on to SVR12 who were not non-detected at 4 weeks as opposed to those who were non-detected at 4 weeks. Although both of these groups had high percentages exceeding 90% when it came to SVR12. One thing I have heard more than once at the Liver Clinic that I go to is make sure you dont miss any doses. I wish you the very best. Keep in touch with us on this site.
    George

  74. Ron Sarvas August 15, 2014 at 6:41 pm #

    Greetings fellow warriors;
    I just got back from the Dr.’s office. I am in week 6 of the Solvadi/Olysio HCV Genome 1a treatment. I’ve been non-detectable since day 21. I almost had a headache yesterday, but 1 ibuprofen resolved the matter. I have a little fatigue, but nothing much different than missing that extra hours sleep. I am doing great. So here is the scoop… When I initially went to see my gastroenterologist/virologist, he had 30 other patients currently on the old treatment of Interferon, Ribaviran, and some with Incivek. He disclosed that less than 30% responded well but was inconclusive about their long term remission. He had heard about Sovaldi but was not that familiar with combining it with Olysio.
    On my 1st visit at his office, I brought in some statistical paperwork with me to my 1st visit with him and was prepared for the fight for my life. At 1st he wanted to give me the Sovaldi with Ribaviran and the Interferon, but I told him that I refused to take Interferon and did not want the Ribaviran because I had already taken it on three previously failed treatments. My logic was “why give me a drug that my virus could have developed a resistance to, and to please replace the Ribaviran with Olysio. He told me that the insurance companies would not approve the treatment without the Interferon but accepted the Olysio for a Ribaviran replacement.
    Now, I had the Solvadi Olysio treatment I wanted but it had to come with the Interferon for approval by the insurance carrier. I told the Dr. that I would accept the treatment but would toss the interferon in the trash, where it belongs. He sad what I do is what I do and the game was afoot. When the pharmacy called, I immediately rushed there to pick up my meds. To my surprise, the pharmacist had the latest best treatment results for the varieties of HCV regimental treatments and for genome type 1a, only the Sovaldi and Olysio would be needed and the Pharmacy received approval from the Insurance Company and I ended up getting exactly what I wished for in the 1st place.
    Upon my visit today, my Dr. was reviewed my lab results and said “This is awesome!” I was his 1st experiment. He said, that in truth, I did my homework, was my own Dr., and he was just doing the labs and paperwork for me. He was genuinely astonished at my lab results. Because of me, 22 of his other patients infected with genome 1a, who are presently on the old Interferon/ Ribaviran treatment will be moved to Sovaldi and Olysio. Instead of them having to endure the agonizing brutality of the old treatment for up to 2.5 yrs, they will now be afforded a much better and far kinder alternative to their treatment.
    So for all of you out there, don’t assume that your Dr. has all the answers because most of them don’t. Upon your visit with your Dr., Be informed, be assertive and be insistent. Tell your Dr. that you want to be their experiment for them. It will be hard for them to say no, when the facts speak so strongly for themselves.
    My lab results were so positive that he wants me to return in 5 weeks, at the end of my treatment, because it just makes sense to him at this point. In 2007, after 2 1/2 years of Interferon and Ribaviran had failed me, had given me a minor stroke, and ruined my marriage and life, my Dr. then had told me that I had maybe one or 2 years to live before dying a horrible death. Today, I am HCV undetectable and know in my heart that this is it… this is the one. I’m going to be cured. I am doing great. Whatever noticeable side effects I am having aren’t even worth mentioning because they are that minor. I strongly urge all of you out there to get this Godsend of a treatment. I encourage you to spread the word and to also encourage people that you know to get tested. More people die every year from HCV complications than HIV. If you are from Eastern Europe or Asia, you are at 2/3 higher risk of having this silent killer. If you are a Viet Nam era veteran and were overseas, you are at 2/3 higher risk of having contracted HCV. A regular blood test will not tell you if you are HCV positive. You must ask specifically for a HCV viral test.
    Do your homework, print out the facts and bring them with you to your next Dr.’s visit. I hope that this information will serve you well. Lastly, there is another new drug “Ledipasvir” released this month that has a 96% success rate, or a 2% higher success rate when combined with Sovaldi for treatment of HCV. Cirrhosis of the liver does not appear to affect the results of these treatments, FYI. Best regards and keep up the good fight.
    Godspeed Ron

    • Connie M August 16, 2014 at 1:35 pm #

      Hi Ron,
      Congratulations on your report. So happy to hear you continue to be Non-Detected. I am glad that you did your homework and brought that to your doctor. It’s true we do have to be proactive with our own health. I am thrilled to hear your doctor is using this new treatment for other patients. However, I must say, that older treatments even though they are harsh and longer than the new ones, the treatment with the protease inhibitors with Incivek and Victrelis, do have a 70% cure rate and for many they have defeated Hep C with long term results. I am one of those. After two older traditional treatments failed, it was hard to go into another one but I am glad I did and I know for so many others out there. Nothing is ever wasted. We have to keep moving forward, if one treatment doesn’t work, then we have to be proactive with the next. Improvements in treatment have taken tremendous leaps since 2011, but I certainly don’t want to paint all treatments with the same brush because not everyone has the same reactions to side effects. So I do want to be clear, side effects are still present with all treatment, but not everyone has the same reaction.

      The new treatment with Sovaldi and Ledipasvir, will come out in October. We are looking forward to that and the others to follow. More great treatment options ahead for sure.

      Congrats again! So thrilled you are doing great.
      Blessings,
      Connie

  75. Robbie Morrow August 18, 2014 at 1:24 pm #

    I am starting my second treatment olysio and sovalei in the next couple of weeks and looking forward to it after all your positive post,
    God Bless You All!

    • Connie M August 18, 2014 at 3:06 pm #

      Hi Robbie,
      Glad to hear you are beginning treatment. This is a great combo. Keep us posted on how things are going.
      Also feel free to join us each week on our online support group, “Hep C Warriors Friday Forum Support Group.” We come together every Friday and talk back and forth with each other. This is a great group of caring folks who are going down the same road with Hep C. Many are preparing for treatment, some are in treatment and some have finished and in recovery. You will find great encouragement, helpful treatment tips, and support.

      Feel free to ask questions or let me know if you need information. We are here for you!
      Keep in touch.
      Blessings fellow warrior,
      Connie

  76. kelly boxell August 19, 2014 at 8:54 am #

    I start sovaldi/ olysio today. Your story could have been mine word for word. Thanks.

    • Connie M August 19, 2014 at 12:04 pm #

      Hi Kelly,
      Thanks for letting me know your treatment start date. We are hearing more and more people doing this new combo. Keep us posted on how things are going.
      If I can help answer questions, or need information or a special prayer request, feel free to let me know. We are here for you!

      Also, feel free to join us each week on our online support group, “Hep C Warrior’s Friday Forum Support Group.”

      Blessings fellow warrior,
      Connie

  77. Christine Andrews August 22, 2014 at 9:10 pm #

    This site is amazing. I have waited 9 years for these meds to come onto the market as my hepatologist felt I could not handle the Interferon/ Ribovarin regimen. Have had Hep C for 30 years but now in stage 2 fibrosis so time to make the move. My meds were delivered last month and I have been afraid to take them! I’m always afraid of medication.
    But reading through all if these brave people’s posts have given me courage and I just swallowed my first 2 pills! OMG!! Please pray that I have no horrible side effects and that I will be cured.
    Thank you all for giving me strength!

    • Snook August 22, 2014 at 11:03 pm #

      Hi Christine So glad to hear you swallowed your first two!! I was like you..So afraid to take them. At first I had headaches and they were a little bothersome then came the light sensitivity. Especially with the computer screen..But don’t quit because It’s all worth it. As for me My headaches lasted one week and the sensitivity to light is much better. Oddly enough I felt more energy the first month. I set a special alarm to take my pills everyday around the same time. i made taking my pills priority over everything. Taking them with food helps so you don’t get stomach aches. I had it for 20years 1a and cleared in two weeks..I wish you clearance 🙂 Please update us

    • Connie M August 27, 2014 at 3:57 pm #

      Hi Christine,
      Thank you for writing and sharing about starting your treatment. Congratulations!!! You are on your way!!!
      You are not in this alone my friend. We are here with you.
      Feel free to jump on the Hep C Warriors Friday Forum Support Group each Friday and ask questions, and keep us posted on how things are going. Every one in the group is someone who knows what you’re going through and will encourage and help you with each step. You are not in this alone.

      Keep us posted.
      If you have any questions or need information, feel free to let me know.
      You are in my prayers.
      Blessings fellow warrior!
      Connie

  78. James L August 23, 2014 at 12:22 pm #

    I am 60 years old, have had hep c geno 1a for 36 years. No symptoms, only SLIGHTLY elevated enzymes. Doctor has been watching me for 10 years, blood tests annually and always the same. Iam naive to treatment. He hasnt pushed for treatment until this newest drug combo without interferon came out. Should I do it? He says I have been lucky and also have a very healthy lifestyle. I dont take ANY drugs. I am almost afrisd if I do this will it wake up the monster? So hard to take some hi powered drugs when I feel great…Any thoughts?

    • Picnic August 27, 2014 at 2:12 pm #

      James,
      You didn’t say if you had a biopsy or what stage you are in? That makes the difference. If there is very little damage to the liver you can wait until the next drug is out which is close to 100% clearance. There is evidence that people with Hep C loose 15 years off their life. Good Luck!! Picnic

    • Connie M August 27, 2014 at 3:04 pm #

      Hi James,
      Thank you for writing and asking about treatment. There are a lot of great things about doing this treatment or even the new one coming out this October, first, both treatments are without Interferon, which has less side effects than traditional treatment. Both have a very high cure rate, in the 90% range. And last, my doctor put it to me in a very good way, “Would you rather fight the enemy when they have fewer in their army or fight them later when there is alot more of them?” Hep C doesn’t go away on it’s own. You are not waking up the monster, it’s already awake.
      Talk to your physician about your condition, but if I were you, I would not wait much longer to do treatment and take the Hep C giant down once and for all. You have a long life ahead of you, don’t allow this to be something that is hanging over your head.

      You can do this this James! We are here for you too.
      If you have any questions or need information, feel free to let me know.

      You will be in my prayers.
      Blessings fellow warrior,
      Connie

    • richard September 11, 2014 at 12:32 pm #

      James, if your doctor approves I would wait for the the new combo of solvaldi/ledipasvir/ribavirin in October if possible. You are an extremely blessed person. I am also 60 years old. Have had hepc for 44 years. Gone through 2 years of interferon/ribavirin and peg interferon was non-responder. Developed liver cancer followed by transplant. Virus came back with a vengeance. Just finished solvaldi/olysio/ribavirin. Was undetectable after 11 weeks. From what I read the new combo is over 99% effective. Don’t wait to long before treatment. In Christ, Richard

  79. Carlos August 29, 2014 at 12:01 am #

    Hello everyone i started my treatment with sovaldi and olysio on June 9,2014. after my fouth week of treatment my blood work came back with undetectable. On my 8th week my blood work came back again undetectable. On September 9th i go for my 12th week blood work. I have my fingers crossed that my higher power is with me. good luck to you all and remember your faith will take you a long way.

  80. Roger G. September 2, 2014 at 5:51 pm #

    Hello Warriors,
    A few weeks ago, in my first post, I was excited to report that I was going to begin the S/O treatment. I received word today that my insurance company would not approve Olysio for combination therapy. I have undergone 3 previous sessions with interferon, peg-interferon, ribavarin, and incivek with different combinations. The toll they took on me was devastating. I truly was looking forward to a 12 week chance of finally excorcizing this demon. I am crushed. My doctor says that the insurance would probably cover Silvadi and ribavarin but it would require 24 weeks. I don’t think I can take another 6 months with failure so much on my mind. I have prepared myself physically, psychologically, and spiritually for the S/O but not for this.

    • Snook September 2, 2014 at 8:46 pm #

      Roger..So sad to hear your situation. Don’t give up just yet. Go directly to Olysio they promise to help those that need financial help. http://www.olysio.com/support/financial-assistance. I asked for help through Patient assistance network and they help me with co-pay. Web search Olysio they might help. Don’t worry I think insurance is not covering it because it’s not quite approved or something. Keep us posted.

  81. Roger G. September 3, 2014 at 10:45 am #

    Any insights on Ribavarin and Sovaldi combination therapy? Not sure yet if I want to try it or wait for next new drug.

  82. Marilyn Townsend September 4, 2014 at 3:58 am #

    It has been 8 weeks since I finished treatment with Sovaldi and Olysio. I was undetected at 4 weeks into treatment and when I finished the 12 weeks of treatment.
    I have had eye problems since 3 days after I started treatment, when I drove for 2 hours on a sunny day without sunglasses. My eyes became and still are sensitive to sunlight, burning, blurriness, and each morning, I have to physically open my eyelids! They usually don’t open by themselves. Is this a side effect that is usual, and will it get better over time?

    • George September 4, 2014 at 6:53 am #

      Marilyn
      Hi Marilyn. I am going in for my 12 week post treatment test on September 16. I also took the Sovaldi/Olysio treatment. I always had sensitive eyes to begin with. I noticed that when I was on treatment, even though I had my sunglasses on every time I went out, my eyes would get inflamed for a day or so after. Many of us have mentioned the sunscreen on this site, but I think sunglasses are just as important. I still use eyedrops regularly because my eyes are so bad. I started using what is called Artificial Tears on my doctors advice, I find that it helps a lot. I would seek medical attention. I hope you, I and everyone else on this site all win this fight together.
      George

    • richard September 11, 2014 at 1:46 pm #

      Marilyn, I also have had problems sometimes with my eyes. It was my fault. I don’t like to wear my sunglasses. I already look strange since I wear a big hat, long sleeves and pants. I also wear a mask because I am post transplant and my doctor at the Mayo says wear a mask. I live at the beach and most people are in shorts or bathing suits. Olysio seems to be very interactive with the sun.Perhaps a opthalmologist could help you. I guess we both must wear are sunglasses. In Christ,richard

      • richard September 11, 2014 at 1:50 pm #

        I forgot to mention, has everyone got there flu shot? It is important. God bless,richard

  83. Roy N. September 6, 2014 at 1:38 pm #

    Connie: Today I finished my first bottles of Sovaldi and Olysio. 28 down and 56 to go! I get my first post-treatment blood test next week (my Gastro waits until week 5)and am hoping for the best. For the first week and a half I was getting mild headaches, that were short-lived. They have been gone since then. But I am getting muscle pain around one knee – near the bursas. I attribute this to the pills, since the pain is worst around two hours after I take the pills at breakfast. I am using ice and electric stim. Hopefully, this will go away too, but if not I will put up with it and soldier on!

    Roy

  84. Sharon September 6, 2014 at 11:04 pm #

    Hello Connie, I am so thankful to God that I found your website. I have had hepatitis C for 31 years. I got the virus from blood transfusions for thrombocytopenia (an auto-immune disorder) in December, 1983. But I didn’t get diagnosed with hep C until September, 2003, when it became chronic. At that time I was very sick and had to go on disability. Connie I was really moved when I read your testimony because it is similar to my own testimony. I too have hypothyroidism and vitiligo. I treated with interferon/ribaviron twice but did not clear the virus. The side effects were so bad while on those treatments that the treatments were stopped and I was hospitalized both times. I nearly lost my life each time from the side effects from interferon/ribaviron treatments. I’ve since been diagnosed with osteoporosis and three herniated cervical discs due to taking large and prolonged doses of prednisone to treat anemia caused by ribaviron in 2006. But God is merciful, He saved my life, twice and He will heal my body, completely! I decided from the beginning that hep C was not going to get me down. In fact, having hep C has made me more determined to trust God and run the race even harder. On August 18, 2014 I started on the new combo treatment, Sovaldi and Olysio. I am so excited about the cure rate for people like me who are genotype 1a (and 1b) and who were unsuccessful on the old treatments. I’m also excited for all those who are infected with hep C, now there is a Cure! I really believe the hepatitis C virus will soon be a wiped out completely. On September 15 I will have my first viral load check since starting the new treatment. I am already giving thanks to God, in Jesus’ name for this cure and waiting on my miracle healing! God bless you Connie for sharing your story. Hoping and praying for the best for all hepatic C survivors.

    Sharon

  85. James B. September 10, 2014 at 9:12 pm #

    I started Sovaldi and Olysio on 9/5/14 and I already feel a million times better than I used to. I had a slight stomach ache the first day and a slight headache for a couple of days, but now my only complaint is that I cannot sleep through the night. I can go to sleep easy, but I wake up around 3 or 4 and can’t go back to sleep, but this is nothing compared to the sick and horrible feeling that plagued me for the last 15 years.

  86. Snook September 11, 2014 at 6:24 pm #

    I wanted to share that after you clear the virus we should replace our tooth brushes and razors possibly even nail clippers and any other way that may re expose us.

  87. Pat Cruz September 14, 2014 at 10:17 pm #

    I started treatment on 9/5/14. I have been experiencing more headaches and fatigue than usual but otherwise I feel no worse than I did before the treatment started. I have had HepC since I received blood transfusions as a kid (late 70s) and in 2006 was also diagnosed with autoimmune hepatitis. I already have cirrhosis. While I feel optimistic that the O/S combination will cure the hep c, I wonder if anyone has autoimmune hep as well.

    • Connie M October 6, 2014 at 10:15 am #

      Hi Pat,
      Sounds like you have now completed 4 weeks of treatment to date. Congrats!!!
      Sovaldi/Olysio is a great combo. Headaches and fatigue are very common side effects of this treatment. Some patients have received prescription meds from their physicians to help with headaches and many have reported this getting better. Fatigue is a common denominator with all Hep C treatment.

      You asked if anyone here has autoimmune Hepatitis? I have other autoimmune disorders like hypothyroidism (Hashimoto’s disease) and Vitaligo. But I don’t have Autoimmune Hep. Hopefully others will shout out and comment if they have that.

      Personally from having autoimmune disorder and going through treatment my doctor monitored me alittle closer and took more blood tests. But the good thing is your treatment does not include Interferon which can make the Autoimmune issue act up.

      Keep us posted on how you’re doing.
      Praying for you.
      Blessings,
      Connie

  88. Snook September 18, 2014 at 10:09 am #

    Hello everyone . I posted July 17th and July 29th 2014. I am now 13 days away from completing the three month O/S treatment. Whoa how things have changed. I cleared the virus after 2 weeks of treatment..Besides a pin pointed head ache and light sensitivity I was feeling really good when I started my med’s. Now 13 days from completion I get occasional head aches. Unsure if it is caused by light sensitivity. I’m feeling as if my eyes are heavy and my vision is a little more blurry. short term memory loss is scaring me. I feel as if I’m in a fog and I can’t think because of it..I can’t sleep at night very well and may be causing fatigue during the day..But I would do it all over again if I had to. These symptoms are nothing compared to Interferon. Asking for prayers that this virus never comes back. Thank you.

  89. John September 27, 2014 at 1:51 pm #

    I am 33 years old I’m hepatitis c 1a and my doctor wants to start me on the new medicine solvdi and olysio. I am on medicare and need to find a insurance company that will accept my prescription plan I live in NYC If

    • Roy N. October 4, 2014 at 6:17 pm #

      John,

      AARP Plan D accepted mine. I do not live in NY, but I suspect that one’s resident state does not matter. You must go through a specialist pharmacy company to get the pills. Your Gastroenterologist should know how to do this. Good luck! I am HCV free after only 30 days on Sovaldi and Olysio.

  90. John September 27, 2014 at 1:56 pm #

    Anyone know what prescription plan on medicare that will accept my prescription for Sovaldi and Olysio in NYC any one have any info would help! Thank you for all the advice and info on the new medicine!

    • Connie M October 2, 2014 at 9:47 pm #

      Hi John,
      One idea may be to contact your pharmacy and ask them some of those questions. I wish I directly knew more about each insurance company verus what they allow for treatment, unfortunately that is vast.

      Here is a link to a post that has different resources you can contact as well. https://www.lifebeyondhepatitisc.com/2014/02/cant-afford-hep-c-treatment/

      Hope this helps.
      Keep us posted.
      Blessings,
      Connie

  91. florica balean October 12, 2014 at 5:10 pm #

    Hi connie,My husband had blood tests after 6 mo. since he stopet the treatment.Good news ,hepatitis c si not detected and AST,ALT,bilirubin,platelets are v good.

    WE are happy and we thank God for this .

    God bless all of you with health.

    • Connie M October 12, 2014 at 6:00 pm #

      Hi Florica,
      Thank you so much for sharing this great news with us! Congratulations!!!
      I am thrilled for you and your husband! I always love to hear the sound of another Hep C giant defeated. Yayyyyyy!!!

      Keep us posted on how recovery is going.
      You both are in my prayers.
      Blessings,
      Connie

  92. Deborah October 28, 2014 at 2:08 pm #

    Hi everyone,

    I’ve been reading the posts and I find this blog to be very informative and with all the selflessness is quite refreshing. I too have begun the Sovaldi/Olysio treatment. I too was once on the Interferon/Ribivarin nightmare treatment. Almost lost my mind and my life. At 5’9 at the end I was hovering around 90 lbs, not good and all these years later I’m still not clear of all the fog. I am listed with UNOS awaiting a liver transplant and my gastro wanted me to try this new treatment so hopefully I can rid my body of HCV and not have that complicate my recovery after I receive my transplant. I’m game! I started last week, so far so good. Reading all the experiences on here has allowed me to understand that for the most part, everyone seems to be kicking this Dragon to the curb. It’s just not hearsay, no chinese whispers, for that I’m very thankful for. Godspeed everyone.

    • Connie M October 29, 2014 at 11:40 am #

      Hi Deborah,
      Thank you for sharing. Sounds like you are a veteran Hep C warrior. Your past treatment experience will help you as you go through this new treatment. From all reports of the Sovaldi/Olysio treatment, it is a world of difference from past traditional treatment. I pray this is the one that defeats the Hep C giant for you once and for all. Keep us posted on how you’re doing.

      This is a special verse we refer to often, “I can do all things through Christ who gives me strength.” Philippians 4:13

      You are in my prayers.
      Blessings fellow warrior,
      Connie

  93. Sandy November 3, 2014 at 4:29 pm #

    I’ve been on Sovaldi and Olysio for 3 months. After 4 weeks I was “virus clear” and for next 2 months the liver enzymes became normal. Just one month after I stopped the treatment, the virus is back. More aggressive than ever! What would be the next step to follow? Thanks

    • Connie M November 20, 2014 at 9:28 pm #

      Hi Sandy,
      So sorry to hear you had this happen. Take Heart and Don’t Give Up! I too experienced two prior treatments not working but the third one did. The new treatments out show to be more effective than others. Harvoni, Gileads combo of Ledipasvir and Sovaldi is showing tremendous results and AbbVie is about to get the green light from the FDA in a few weeks with another brand new treatment, plus. . . more is coming right around the corner in 2015.

      Hang in there and keep trying. Remember, your cure is coming!
      Praying for you and new treatment.
      Keep me posted on how things are going.
      Blessings my friend,
      Connie

  94. sumaira December 29, 2014 at 5:06 pm #

    Hi,
    Actually my mother is taking sovaldi plus ribavirin.It has been ten days but problem se is facing is that when she talk to me on fone she says she cannot talk much because her head is like stiffed,heavy and kind of pain.Is it a serious side effect of medications?If anyone know she even cannot sleep as she used to take sleeping pill elp earlier but now left because those tablets also not effecting so she mamages hardly to sleep when sun rises . Can anyone tell me why head gets heavy and have pain.

    • Connie M January 2, 2015 at 4:47 pm #

      Hi Sumaira,
      Thanks for writing and sharing about your Mom’s treatment. You asked a good question. And yes, headache and some muscle pain is a common side effect. Headache is probably the most common side effect with sovaldi.

      Make sure to talk to her doctor about what side effects she is experiencing, but it has been found that a regular dose of Tyelnol is what is mostly recommended for the pain. Along with drinking lots of water. Normally the headaches ease up after some time on treatment and many find it easier to tolerate. But again, please discuss what she is experiencing with her doctor.

      Keep us posted on how she is doing. We are here for all of you.
      Feel free to let me know if you have further questions.
      Your Mom and you are in my prayers~
      Many Blessings,
      Connie

  95. Johnny Test January 8, 2015 at 5:21 pm #

    Done sovaldi and olysad 12 week course blood test enzymes e viruhhs is so low its undetectable after treatment hep c undetectable sometimes the level is so low its undetectable after treatment two percent get it back so i wait 6 months and have another blood test see what happens thats the reality of it 2 out of 100 people get it back these are very good drugs lets hope it works

  96. Robin February 2, 2015 at 10:31 pm #

    I have 24 days left and am scared. I got all the side effects. Headache, irritability from the head aches and body aches. I cannot wait for the next 24 days. I am in stage 4 of cirrhosis, can’t work (I am a chef) cant’t sleep and rely on God to help me. I am in the poor house with no help available which causes stress. The first 2 months were ok no side effects but the last 20 days have been challanging. I am isolating because of my attitude, frequently cry at the pain and do not turn any lights on for fear of headaches. I have blood tests tomorrow and am ready to give up.

    • richard February 3, 2015 at 7:51 am #

      Robin, what medicine are you on. It sounds like olysio. This to will pass. I was on solvaldi\olysio\ribavirin. There were some side effects, but nothing compared to the medicine from hell interferon. You will make it my sister. We are all praying for you. The Lord Jesus Christ is with you. Call out for His help. God Bless, Richard

    • Connie M February 3, 2015 at 2:28 pm #

      Hi Robin,
      I am sorry you are going through some hard days (which I called the ugly days from when I was on treatment.) Most times side effects do cycle out and get better. You are so close to reaching the summit finish line. The top of treatment mountain is in view. Which exact treatment meds are you using? This will help me to know how to guide you to the right resources.

      Have you contacted your doctor about your side effects? If not, please do so. Others who have experienced severe headaches have received a prescription that helps. There is also safe sleep aids but you need to talk to your doctor about what is right for you. My doctor told me I could take 1 to 2 Tylenol PM at night and it was safe for me. You can also get a generic sleep aide without tylenol. A dose of benedryl also can help at night. But again, clear this with your doctor prior to taking anything.

      You can also contact Olysio Support line and speak with them about your side effects and help for relief. Here is the link which has the phone number:http://www.olysio.com/support

      If you are needing financial help with your treatment, Olysio Support can also help. I have a list of other resources to help with treatment assistance if you need it. You can write me at: Connie@lifebeyondhepatitisc.com.

      It is totally understandable that you are sick and tired of these side effects. When we don’t feel good, it’s hard to see past what we’re experiencing. But don’t give up. This will get better.

      Here are a few articles that I hope you find helpful:
      https://www.lifebeyondhepatitisc.com/2014/12/hepatitis-c-treatment-journey-facing-the-giants-wholeheartedly/

      https://www.lifebeyondhepatitisc.com/2014/08/lifeline-devotional-when-dark-clouds-roll-in/

      https://www.lifebeyondhepatitisc.com/2014/12/lifeline-what-do-you-see/

      Keep us posted on how you’re doing.
      I will be praying for relief and strength to reach the finish line.

      (You) can do all things through Christ who gives (you) strength. Philippians 4:13 (emphasis mine).

      We’re here for you.
      Blessings,
      Connie

  97. Robin February 12, 2015 at 6:34 pm #

    Well been a roller coaster, Tuesday I was told clear of Hep C!!! Today not clear enough so another 12 weeks for me.

    • Richard February 12, 2015 at 6:59 pm #

      Robbin, it will be ok. Our Lord Jesus Christ is right by your side my sister. Sometimes it takes longer. I cant remember what you were taking. Was it harvoni? Dont let them give you interferon. God Bless my friend, Richard

    • Connie M February 12, 2015 at 7:29 pm #

      Hi Robin,
      Wow, that sounds like a roller coaster. So sorry you’ve had to go through that. But keep your perseverance going. You are going to beat this and kick it out once and for all. Keep going my friend.

      You are in my prayers each day. Here is a verse that I hung on to when I was in treatment (24 weeks).

      “With your help I can advance against a troop; with my God I can scale a wall.” Psalm 18:29

      Keep us posted on how you’re doing.
      Praying and shouting Cheers for you!
      God Bless my friend,
      Connie

  98. Connie M February 18, 2015 at 7:18 pm #

    Gary,
    Thank you for writing. You asked a very good question about treatment. First, I wanted to give you a sound reference to Ribavirin, in case you are concerned about cancer side effects which you mentioned. I have never read in research or reports relating Ribavirin or any Hep C treatment meds to cancer or causing tumors. This condition happened due to Hep C, not due to the treatment drugs. Treatment drugs do have side effects but this is not one of them. Here is the reference link that is backed by research: http://www.nlm.nih.gov/medlineplus/druginfo/meds/a605018.html

    I hope this helps answer some of your questions. Feel free to let me know if you further questions and concerns.

    We will be praying for your family member.
    Keep us posted on how things are going.
    We are here for all of you.
    Blessings my friend,
    Connie

    • Richard February 18, 2015 at 10:14 pm #

      Gary, if your mothet in law has liver cancer you should call the Mayo clinic in Jacksonville, Florida asap. Chemoembolization will work from 1 to 12 months. It will give her enough time to get a transplant, Lord willing. I live in California so I went to USC. They used doxyrubicin for the chemo. The radiologist shot it right into the liver tumor. According to unos she will get a meld score of 22/23 because of the cancer. That will qualify her for a transplant in Florida. In California you need 42, which is extremely hard to get for someone with liver cancer since they would probably die before they achieve this score. There are other criteria. Such as the cancer cant spread outside of the liver and the tumor cant be greater then 6 cm. You MUST take action at once. Time is against you. May our Lord Jesus Christ keep her close. God bless you both, Richard.

      • Richard February 18, 2015 at 10:27 pm #

        Gary, forgot to mention that, like Connie, I dont believe the medicine caused liver cancer. Although I dont like ribavirin or olysio I would think that it was the hepatitis c, especially if she has it for over 30 years. In my case I had it 44 years from a blood transfusion. God Bless, Richard

  99. Connie M February 23, 2015 at 7:12 pm #

    Hello Yanin,
    I’m sorry, I don’t speak spanish. (Lo siento, que no hablo español).

    Blessings,
    Connie

  100. haider.solangi@piac.aero March 16, 2015 at 12:23 am #

    Dear Sir,my brother found HCV in 2004, now he has cirrhosis with ascites wich is developed 2 months ago. Will sovaldi with rabizole effect while he has genotype3A.
    please advise.

    Thanks and Regards.

    Haider Solangi

    • Connie M March 16, 2015 at 11:40 am #

      Hello Haider Solangi,
      Yes, the recommended treatment for Genotype 3 is Sovaldi and Ribavirin for 24 months.

      Prayers & Blessings,
      Connie

  101. bea September 13, 2015 at 10:26 am #

    Hi I have a question is sovaldi dangerous for new married couple especially for woman

    • Connie M September 14, 2015 at 9:37 pm #

      Hi Bea,
      Thank you for asking. The only concern using Sovaldi or any Hep C treatment med is not getting pregnant while using these meds during treatment. Other than pregnancy concern there is no problem taking this med. Use good birth control while taking Sovaldi or other Hep C treatment meds and consult with your physician if you think you are pregnant.

      If you have any questions, feel free to ask. We’re here for you.
      Blessings,
      Connie

  102. Andre Dubreuil October 8, 2015 at 2:02 pm #

    I just completed a 24 week treatment for Chronic Hepatitis C infection genotype 4A Drugs that were used Sovaldi & Ribavirin. Had most off all the side affects. When I started this my AFP was 32 after completing and doing new blood work
    AFP went to 956. After seeing those numbers I was sent up to mass general where more test were done AFP came back at 32.3 . AS off 9-30 15 my AFP came back at 7.5 and virus was undetected. My point is that with the AFT should be looked at more offen during this long a treatment, hope this will be help for some one else Yours truly AndreDubreuil

  103. Joel December 15, 2016 at 12:30 pm #

    I did take sovaldi and olysio 2 years ago and although my viral load is 0.0 now. It’s a little too late.

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