New Hepatitis C Drug Approved by the FDA; Sovaldi (Sofosbuvir) by Gilead

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Sofosbuvir_bottle (1)

Gilead Sciences announced Friday the new FDA approval of Sofosbuvir also marketed as (Sovaldi), the newest treatment for chronic hepatitis C (CHC) infection.

 

Sovaldi was approved by the FDA on December 6th, 2013.

 

Sovaldi (Sofosbuvir) is the first drug that has demonstrated safety and efficacy to treat certain types of HCV infection without the need for co-administration of interferon. The second drug approved by the FDA in the past two weeks was Simeprevir (Olysio) by Janssen to treat chronic HCV infection.

 

 

Sovaldi (Sofosbuvir) is a hepatitis C virus (HCV) nucleotide analog NS5B polymerase inhibitor, among the second generation of protease inhibitors that directly attack the Hep C virus cell.

 

 Sofosbuvir pill

 

These are the highlights of  Sovaldi (Sofosbuvir):

* A 400mg tablet, once-daily oral dose.  *See below for recommended regimens.

*Sovaldi (Sofosbuvir) approved for use in Genotypes 1, 2, 3, or 4

*High Cure Rates with an overall response rate of 90% in most gentotypes.

*Shortened 12 Week Course of Therapy for Many Patients.

*First Ever Oral Treatment Regimen for Genotypes 2 or 3.  *See below for recommended regimens.

*First Regimen for Patients Awaiting Liver Transplantation to Prevent HCV Recurrence.

 

Recommended regimens and treatment duration for Sovaldi (Sofosbuvir)  combination therapy in HCV mono-infected or HCV/HIV-1 co-infected patients follows:

Genotype 1 or 4

Treatment:  Sovaldi (Sofosbuvir) + Peg-interferon alfa + ribavirin

Duration:  12 weeks

 

Genotype 2

Treatment: Sovaldi (Sofosbuvir) + ribavirin

Duration:  12 weeks

 

Genotype 3

Treatment: (Solvaldi Sofosbuvir) + ribavirin

Duration: 24 weeks

 

Gilead states that Sovaldi (Sofosbuvir) can be considered for (CHC) chronic hepatitis C patients with genotype 1 infection in combination with ribavirin for 24 weeks for those patients who are interferon ineligible.

 

Additionally, Sovaldi (Sofosbuvir) should be used in combination with ribavirin for treatment of CHC patients with hepatocelluar carcinoma (liver cancer) awaiting liver transplantation for up to 48 weeks or until liver transplant to prevent post-transplant HCV infection.

 

Treatment regimen, duration and response to Sovaldi (Sofosbuvir) are dependent on viral genotype and patient population, and associated baseline factors.  Monotherapy is not recommended. Full Prescribing Information will be available at Gilead.com.

 

“I believe Sovaldi will have a major impact on public health by significantly increasing the number of Americans who are cured of hepatitis C,” said Ira Jacobson, MD, Chief of the Division of Gastroenterology and Hepatology, Well Cornell Medical College, New York City and a principal investigator in the Sovaldi (Sofosbuvir) clinical trials.

 

Chronic hepatitis C affects an estimated 4 million people in the United States, the majority whom are “baby boomers”—individuals born between 1945 and 1965.   The disease is the nation’s leading cause of liver cancer and liver transplantation and in recent years has surpassed HIV/AIDS as a cause of death.

 

The current standard treatment for HCV can involve up to 48 weeks of therapy with a peglated interferon (peg-IFN), ribavirin (RBV)-containing regimen and in some genotypes used with one of the first class of protease inhibitors approved by the FDA in 2011, telaprevir (Incivek) and boceprevir (Victrelis).

 

Side effects of Sovaldi (Sofosbuvir) Most Common:

Sovaldi +peginterferon alfa + ribavirin combination therapy were fatigue, headache, nausea, insomnia, and anemia.

Sovaldi +ribavirin combination therapy were fatigue and headache.

 

Drug Interactions with Sovaldi:

In addition to rifampin and St. John’s wort, coadministration of Sovaldi is not recommended with carbamazepine, oxcarbazepine, Phenobarbital, phenytoin, rifabutin, rifapentine, and tipranavir/ritonavir.  Such coadministration is expected to decrease the concentration of Sofosbuvir, reducing its therapeutic effect.

See more from Gilead on warnings and precautions.

 

U.S. Patient Assistance Program

Gilead is committed to ensuring that people with hepatitis C can access Sovaldi and has launched Support Path, to provide assistance to patients who are uninsured, underinsured, or who need financial assistance to pay for the medicine.

 

The program consists of an integrated offering of support services for patients, providers including:

–Access to dedicated case managers to help patients and their providers with insurance-related needs, including identifying alternative coverage options such as federally-insured programs (e.g., Medicaid, Medicare) and health exchanges.

–Education and support, including a 24/7 nursing support service line and the ability to schedule an onsite visit from a clinical educator.

–The Sovaldi Co-pay Coupon Program, which provides co-pay assistance for eligible patients with private insurance who need assistance paying for out of pocket medication costs.  Most patients will pay no more than $5 per co-pay.  Co-pay assistance can also be applied toward deductibles and co-insurance obligations.

Gilead will provide support to the Patient Access Network (PAN) Foundation, an independent non-profit organization that provides assistance for eligible federally-insured and privately-insured patients who need help covering out of pocket medication costs.

The Support Path Patient Assistance Programs will provide Sovaldi at no charge for eligible patients with no other insurance options.

Information about how to apply for any of these forms of assistance can be found at My Support Path.com or by calling 1-855-7MyPath (1-855-769-7284) between 9am-8pm EST.

 

Global Availability

Gilead is committed to helping ensure access to Sovaldi in resource-limited settings.  The company is developing a hepatitis C treatment access program, focusing on those countries with the greatest HCV burden.  Full program details will be announced in the coming months.

 

 

Resource Information from:

Gilead Sciences

U.S. Food and Drug Administration

BusinessWire

The Wall Street Journal

 

Have you been waiting for Sovaldi (Sofosbuvir)? Do you have a question about Hep C Treatment?  What are your thoughts or concerns about this new drug?

 

More to read:

  1. New Hepatitis C Drug Approved; Simeprevir (Olysio)
  2. How to Prepare for Hep C Triple Therapy, part 1.
  3. How to Prepare for Hep C Triple Therapy, part 2.
  4. How to Prepare for Hep C Triple Therapy, part 3.
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312 Responses to New Hepatitis C Drug Approved by the FDA; Sovaldi (Sofosbuvir) by Gilead

  1. joey December 11, 2013 at 1:14 am #

    good day…where can i buy here in philippines…

    • Connie M December 11, 2013 at 1:17 pm #

      Joey,
      Thanks for commenting. You can contact the drug manufacturer, Gilead Sciences to find out further information on how to get Sovaldi in the Philippines. Have you contacted your physician?

      Blessings~

      • Jim April 27, 2014 at 1:09 pm #

        Hi Connie,

        Caught the Hep C virus in 1977 due to a blood transfusion after a car accident, 16 yrs old. 2 pints of blood given due to blood loss. 1999 i find out I have Hep C my doctor of 5 years never looked at my blood platelet drop on my labs and when it got to 40 I found out from another Dr. 4 years of Interferon and ribavirin. Very successful liver transplant at RUSH Univ Med Ctr 29 year old donor Pristine Liver. Started a combination of Solvaldi and Olysio a month ago with HCV RNA Quantitative of 400,000 now after 4 weeks test show less than 12. Hep C is gone and I have 2 months to go. 60K per month and I pay 30 co-pay total. 180,000.00 for 3 months Good thing for insurance. This Drug is phenomenal and this combination is perfect for the ones who are done with Peg-interferon. 25 years Happily married and 3 children who are now young adults. No More Hep C virus I recommend buying the Gilead Sciences Stock (GILD). Life is Good!! Best Regards,

        Jim

        • Bob May 5, 2014 at 10:36 am #

          What kind or carrier of insurance do you have? My insurance won’t even concider treatment. I have no problem switching carriers!
          Thanks, Bob

          • Jim May 9, 2014 at 11:43 am #

            Bob,

            I have Blue Cross Blue Shield, it costs me 280.00 weekly but it is pre-tax. If you go on line at Solvadi.com (Gilead Sciences web site) and ask for drug assistance they will help. Same with Olysio.com. My insurance carrier wanted a 60.00 co pay for the Solvadi and I went on the website filled out 3 short lines and was given co-Pay assistance to 25.00 per month. They wanted 1000.00 co pay for the Olysio and I went on their website and minutes later my co pay was 5.00 that is why I pay 30.00 a month total for both. If you have no insurance they will help they want nothing better than to gat the word out on this amazing new drug. I am Hep C free and I had the worst type, (1). Good Luck and don’t be afraid to push for assistance you will get it..

            Jim

        • Bob May 5, 2014 at 10:37 am #

          What kind or carrier of insurance do you have? My insurance won’t even consider treatment. I have no problem switching carriers!
          Thanks, Bob

        • Connie M May 8, 2014 at 8:25 pm #

          Hi Jim,
          Thank you for writing and sharing with me your Hep C journey. You really have had a tough go at it. I am thrilled beyond words to hear the new treatment has helped you and you are now Virus Clear. Praise God!

          Your story is one many need to hear. So many need to be tested and question their doctor’s about tests. It can save lives!

          Thank you again for sharing your courageous battle.
          God Bless Your Bright Future!
          Connie

          • shahroz khan July 3, 2014 at 8:54 am #

            i m from pakistan my father has hepatitas c so i want sovaldi tablets with ribavirin….. so how i get it as soon as possible??? and i have contacted with physician

        • tanver September 11, 2014 at 4:40 pm #

          jim , iam happy you are halthy now . use for sovilde madicen

          jim iam in pakistan city fasailabad .iam is also hiv c desess

          its show last 6 month , iam use inj short but not good 100% resuilt . then sovilde is comming news in pak , iam apply for sovilde i hope next month must comming me . then i use .
          i wat your coment what is side effict you face . i wat your mail

        • Believer of God December 19, 2014 at 10:58 pm #

          yes Jim I was in accident myself being run over in San Francisco. I went into Coma for time including San Francisco General. Later transferred to Laguna Honda and after there to Rehab home. An entire Year passed before my return to the real world of knowing anything at all.
          Later discovered having HepC I became blamed of a number of untrue things such as sharing IV Needles and more.
          I know as a FACT it had to have been obtained in the Hospital.

      • Hamza riaz June 19, 2014 at 5:14 am #

        PLEASE TELL ME WHERE I CAN FIND THIS TABLETS IN PAKISTAN.

      • shahroz khan July 3, 2014 at 8:53 am #

        i m from pakistan my father has hepatitas c so i want sovaldi tablets with ribavirin….. so how i get it as soon as possible???

        • Connie M July 3, 2014 at 10:11 pm #

          Hello Shahroz,

          Here is a link to an article about Sovaldi availability in Pakistan. http://www.thenews.com.pk/Todays-News-6-250341-Oral-drug-to-be-available-at-subsidised-rates-at-HFH-soon

          I have contacted Gilead Sciences the makers of Sovaldi and they reported as to filing an application for registration in Pakistan to work on bringing Sovaldi there. I do not know what the time line will be for how long it will take or any of the details. I hope you will be able to get good information from the article.

          You can also contact Gilead Sciences directly to see what further news they would have. Here is there contact link:
          http://gilead.com/contact

          You may also contact the World Hepatitis Alliance to see what news they would have for more treatment options:
          http://www.worldhepatitisalliance.org/en/

          In the US, Sovaldi can not be purchased out right. It can only be obtained through a pharmacy with a prescription from a physician where the drug has been approved for use. I do know Sovaldi is becoming available to some other countries like in Europe, and Canada. Sovaldi is still new here in the US but hopefully soon will be made available to many other countries where it is needed.

          I hope and pray it will become available to you soon.
          Your father and family will be in my prayers.
          Blessings,
          Connie

          • Ashy October 17, 2014 at 9:54 am #

            Hey Connie, hope you are well. Please tell of a mechanism whereby we in Pakistan can purchase the tablets here, or order them at subsidised rates? Many have waited a while in hope of the medicine getting registered and would really like to know if there’s a way to have it now. Thankyou

      • Risa L. Reyes January 5, 2015 at 6:31 pm #

        Dear Connie M,

        Where can I avail of non-interferon/ribavirin treatment here in the Philippines at an affordable price? My doctor says Harvoni is for me (HepaC) but it’s cost is exorbitant. I am only a government employee so I would appreciate government subsidized protocols using the new drugs.

    • Peggy Driscoll March 5, 2014 at 8:13 pm #

      My doctor told me last year that there is a new hep c treatment coming out in April of this year with less side affects i have a refferal to start my treatments at barnesjewish hospital next month is this the drug

      • Connie M March 6, 2014 at 1:57 pm #

        Hi Peggy,
        Thanks for sharing today. I am getting reports of several new meds that will be released this year. Hep C Treatments are improving and getting better all the time. We are so thrilled.

        Thanks for letting us know about your starting treatment next month. Barnes Jewish Hospital is a great place! I’ve done lots of research about them and they are top notch. You are in good hands.

        Keep us posted on how things are progressing.
        You are in my prayers.
        Blessings,
        Connie

    • Chris Jackson July 20, 2014 at 11:28 am #

      Hello I’ve had hep c for a few years now I’m 22. I was seeing a dr. Bacon about it and was referred to get this new pill I have hep c a1 I believe but now after waiting so long toget the medicine my insurance denied me to get it I guess bc it’s too expensive and I’m not in stage 3 yet? I think it’s ridiculous they won’t give till me till I’m practically gonna die. I need to have this I’m depressed everyday with no energy and my liver always hurts. How can I afford these drugs is there anyway??? Please please help… Sometimes I just wanna die.

      • Connie M July 21, 2014 at 11:58 am #

        Hi Chris,
        Thank you for commenting today. I am so sorry to hear you are dealing with these issues. Treatment cannot be denied due to any stage of liver disease. Can you share with me what country you are from? If you are from the US, I can refer you to some resources that have helped many others with approval and assistance in getting the new treatment.

        Don’t get discouraged. There is help and resources. You can either write me privately at Connie@lifebeyondhepatitisc.com, or comment here on the website and I’ll answer you with helpful resources.

        Above all, DO NOT give up!
        “Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you.” Deuteronomy 31:6

        We are here for you too!
        You are in my prayers each day.
        Blessings my friend,
        Connie

        • Believer of God December 19, 2014 at 11:04 pm #

          Connie, I am in the US and understand his situation.
          It’s gotton to point you must ne on your last breath before help arrives and I see that as wrong.!! I think it Should begin helping once diagnosed.

          • Connie M December 20, 2014 at 3:14 pm #

            Believer of God,
            Yes, I agree with you. Help should begin once a patient is diagnosed. Patients should never be categorized.

            Prayers & Blessings for you,
            Connie

      • Debbie August 16, 2014 at 3:54 am #

        Hi Chris Stage three isn’t so bad as long as the liver is compensated. Wait till October of this yr cuz gilead sciences is getting ready to manufactur the second pill to go along with the Sovaldi. I am gt1a and am in my 3rd wk of tx with absolutely no side effects……this is wonderful cuz I was on the interferon tx and almost died..SVR for my gt is 97%. God Bless and keep positive thots cuz this is what our fellow helpers have been twig for,!!!

        • Cindy M October 5, 2014 at 8:39 pm #

          Debbie, so glad to read your post. I am waiting for BCBS to approve of my Solvaldi/Riba tx. 5 yrs ago my platlets plunged down to 24 on interferon/riba with serios side effects, and had to stop. I’m genotype 3 viral load 18 million, s age 2. 33 years with hep c. I have not heard of a new pill to go with sovaldi. Where can I find more information?

          • Connie M October 6, 2014 at 1:33 pm #

            Hi Cindy,
            Thank you for sharing what’s going on about your Hep C journey. You asked where to find out more information about the new pill to go with Sovaldi? There is Olysio, which is a combo treatment currently being used without Interferon and Ribavirin. Olysio is offered by Janssen (Johnson/Johnson) Sovaldi is by Gilead.
            https://www.lifebeyondhepatitisc.com/2013/12/new-hepatitis-c-drug-approved-simeprevir-janssen-now-available/

            Both are approved for Hep C treatment but considered off label because it is not currently approved to be used together, although it has been highly successful in a cosmos clinic trial and doctors are allowed to prescribe it to patients who cannot take Interferon and/or Ribavirin.

            You can read more about Patient’s Treatment Experience with using this combo here at this link, scroll down to see each patient’s treatment and find one with Sovaldi/Olysio. https://www.lifebeyondhepatitisc.com/category/treatment-journey/other-hep-c-patient-stories/

            Many doctors are using the new combo treatments for patients who experienced severe side effects from past treatment.

            Also, this Friday there will be a brand new Hep C Treatment released with Sovaldi and Ledipasvir, another highly successful one pill combo. Stay tuned here for new articles coming out about this new treatment.

            https://www.lifebeyondhepatitisc.com/2014/08/new-hep-c-treatment-without-interferon-horizon/

            If you have any questions,feel free to let me know.
            Keep us posted on how you’re doing.
            You are in my prayers.
            Blessings,
            Connie

  2. kevin hull December 11, 2013 at 2:54 pm #

    Greetings,
    I have suffered terribly since May 2013,with hepC and ascites, with constant intense pain.

    I am excited by your new drug,solvaldi,but I have very little income from disability and medicare does not help with presciption costs. Do you think you could help me so that I can use your exciting treatment?

    Please let me know what I will need to do. My wife’s income barely covers our bills. I get only $600 per month. Please help me.

    Sincerely,
    Kevin Hull

    • Connie M December 11, 2013 at 3:28 pm #

      Hi Kevin,
      There are many options available for those who cannot afford the new treatment.
      I’ll be in touch with this information.

      Blessings~
      Connie

      • Marc December 13, 2013 at 10:21 am #

        Hi Connie
        I too am very eager to learn more about this treatment. My mother is unfortunately one who has been afflicted with Hep C/Cirrohsis. Ironically enough, her name is “Connie M” as well. 🙂 Any information you can provide regarding options to pay for treatment is much appreciated.
        Thank you!!
        Marc

        • Connie M December 14, 2013 at 9:42 pm #

          Hi Marc,
          Thank you for sharing about your Mother. I will be posting an article soon about financial help regarding these new drugs. Stay posted, more to come.

          Blessings,
          Connie

        • Kimberly Koehler March 4, 2014 at 6:37 am #

          Marc, check out the full, Lifeafterhepc website. I bet many of the answers you seek are there. It’s been a great resource for me. Peace my friend and prayers for you and your mother, warrior kim

        • Robbie January 3, 2015 at 6:20 pm #

          There is a company Biocure once contacted by my doctor they act as my patient advocate and processed all the documents on my behalf to get me approve for free treatment, they are truly heaven sent!

          • Robbie January 3, 2015 at 6:22 pm #

            Here is Biocure link

            http://www.biocurerx.com/

          • Connie M January 3, 2015 at 7:08 pm #

            Hi Robbie,
            Thank you for sharing about Biocure. I have checked it out and approve it. Normally we like to check website’s that are suggested prior to posting, but this is a good and reliable site. Thank you for your recommendation and sharing this information with us.

            So glad you were helped by this company. I will add it to our resource list.

            Blessings,
            Connie

      • vince January 8, 2014 at 6:35 pm #

        How can i find out about copay for this treatment. I do have medicare but the part D is the one Iam not able to cover. all i have is less than 2000.00 per month for me and my wife. Please give some leads.
        Thanks,Vince G

        Connie please sen me ingo via Email, vinceg1984@hotmail

        • Connie M January 9, 2014 at 2:01 pm #

          Hi Vince,
          Thanks for writing and asking. This is a great question.
          I will be in touch with you about some information that will help you with financial assistance with Sovaldi and all Hep C treatment.

          Be sure to look on Tuesday Jan 14th for the article, “What To Do If You Can’t Afford Hep C Treatment?” It is packed with information and resources concerning financial resources.

          Let me know if I can further help.
          Blessings,
          Connie

      • Wasim January 9, 2014 at 10:14 am #

        Please told me the other method.how i started HCV treatment.
        I am worried about this.

        • Connie M January 9, 2014 at 2:04 pm #

          Hi Wasim,
          Can you explain more about what you need? Do you mean how do you start Hep C Treatment? Or are you looking for financial assistance for Hep C treatment?

          Let me know how I can help answer your questions.

          Blessings,
          Connie

      • cj hux February 24, 2014 at 12:38 pm #

        I also would like to know about all possible help for me to get on Sovaldi Ribivirin treatment. My liver specialist is quite concerned about me getting on it immediately. I have bee tryin g for weeks now with My Support path but now had to do more questions and answer with them for about the 4th time. I am getting very concerned. I mau know something toward end of week but not certain at all about outcome. I have been unable to work since last year in April with all the fatigue, itching, headaches, pains, weakness etc etc etc that has made life very difficult just for day to day simple things.I have no income and have small amount of help with food but I am living under a roof only because my landlord will not evict me in the middle of winter. Am really hoping to find way to get on treatment and hopefully kick my Hep C in the butt and get rid of totally. I could r
        then get back to working doing something. Please let me know all possible options to get going on help with getting on these. I have no insurance. Medicare/medicaid in state I live in WILL NOT PAY FOR ANY OF IT. You can reach me at e-mail on this message. Thank you so much for your time and any help. God bless you. CJ

        • Connie M February 24, 2014 at 7:12 pm #

          Hi CJ,
          Thank you for writing and sharing what is going on. If you are already in contact with Sovaldi’s Support Path, that is the best resource if you are not insurance or need help with out of pocket co-pay. Hopefully you will hear something by this week and you can proceed ahead.

          If you have no insurance then Support Path is a good resource. Keep trying.

          Here is an article that may help direct you to some other resources:
          https://www.lifebeyondhepatitisc.com/2014/01/cant-afford-hep-c-treatment/

          There is Partership for Prescription Assistance
          Partnership for Prescription Assistance Phone: 1-888-477-2669 or website: http://www.pparx.org/en

          And Needy Meds:For Eligibility: Contact http://www.needymeds.org/free_clinics.taf or Needy Meds Inc. P.O. Box 219 Gloucester, MA 01931 or website: http://www.needymeds.org

          I will contact you in regard to State Medical Disability and Social Security Medical Disability.

          Keep me posted on how things are going.

          You are in my prayers.
          Blessings,
          Connie

        • Kimberly Koehler March 4, 2014 at 6:48 am #

          Connie and JD are correct. I was going to chime in and have…. I’d just like you to know there is one more hep c free person cheering for you. Hep C free thanks to treatment which was paid for by the drug companies and Medicare. I had zero co-pay probably because of the small co-pay for Dr visits pre tx and the drugs that were paid for by the drug company, counted as part of my annual co-pay.
          Peace to you. The journey takes a minute or two ( haha! ) but is well worth the,” travel,” as many of us here are living proof. Best of luck, Kim K

    • J.D. Worley March 4, 2014 at 6:22 am #

      Kevin try to apply for help at PAN that stands for Patient Assistance Network. That is where I applied for help with my treatment and they gave me a full Grant and covered all my medicine costs including the co-pay.
      Just google or search for Patient Assistance Network, you can apply online.
      I hope you get some help.
      I too am on disability and suffered from ascites before my liver transplant so I know what you are going through. I had to go once a week and they would drain up to 12 liters of fluid off my stomach. Not a fun thing to have to do every week.
      Near the end I got liver cancer and that moved me up on the list for urgent transplant.
      I was also hospitalized for a week for low sodium and almost died then.
      So I can honestly say “I feel your pain” brother.
      God Bless you.
      J.D.

      • Kimberly Koehler March 4, 2014 at 6:50 am #

        Hi JD, Hope you’re progressing and feeling well. You’re on my mind this morning and always in my prayers… Peace Kim

  3. Karen Novak December 14, 2013 at 7:59 am #

    My stepson will be getting this treatment -has been waiting a very long time – but according to the news the other night

    $900.00 a pill – yes one pill – $28,000/month and $84,000/treament

    I guess in the scheme of things for a cure this is cheap or are we being taken for a ride by the drug companys??????

    • Connie M December 14, 2013 at 9:54 pm #

      Hi Karen,
      Thanks for commenting. Yes, indeed I had the same reaction when I saw the cost of the new drug. It blew me away! Not sure what all is going to come out of this. I will be doing some research on my end to find out more about these costs and if they are accurate or not. Gilead Sciences has a financial and medication assistance program called, Support Path, which is suppose to offer financial help to those who cannot afford the co-pays, etc… I am working on finding out more details.

      I will be posting an article soon about financial and medication assistance from both Gilead and Janssen/Johnson & Johnson.

      Stay Tuned~
      Connie

    • cj hux February 24, 2014 at 12:40 pm #

      $1,000.00 a pill where I live $180,000.000 total cost for treatment I need not counting Ribivirin cost

      • rileyann February 25, 2014 at 5:57 pm #

        In ref to latest comment, here my hepatologist prescribed sofosbuvir and simeprevir for me for 12 weeks. If anyone has
        Medicare Part D prescription drug coverage, the co. I have requires a pre authorization from the Dr. and treatment summary. The same co. had sofosbuvir, but no yet simeprevir.
        I really appreciate Connie’s website, as I’ve been prayed for and prayed for myself, went to bible school for one year, learned lots about God’s methods of healing in His Word which has helped me beyond belief…that is to know my faith is in Him, not the drugs themselves. Sofosbuvir has not been patented yet. When I was in an MRI tube in November, God specifically spoke to me that He is the God who heals my diseases. I am not dismayed by the drug costs. It is rather frightening for everyone infected here in the U.S. that Medicaid and Medicare recipients (the poor and the ‘older’ Americans), are stuck in this bracket. It is hard to find a stand alone insurance plan if one already has medicare, unless you have one through a current employer, or family member’s employer’s insurance. To make it cost prohibitive to the poor and older Americans really makes it look like they are the target population to block out of treatment. I certainly wish the FDA has some legal way to ensure that at least one leading pharmaceutical company be required to offer financial assistance. Blessings to all who have suffered through this thing…I had my diagnosis 18 years ago and 7 or more doctors later….God is a very present help to those in trouble whose hearts trust in Him. I felt I could not make it to one more appointment this morning, but did make it. Try to get the best medical support you can. Hopefully, the big pharma companies will provide more assistance to those needing these drugs.

        • Connie M February 25, 2014 at 6:12 pm #

          Hi Rileyann,
          Thank you for sharing today. It is my hope and prayer that all Hep C warriors will be able to get the best treatment available without any worries of insurance or coverage. It is truly one less thing Hep C patients don’t need to deal with.

          I feel like we will see a shift in restrictions and availability in the future, just not sure when. I know with new treatments that are in trials right now, once those are released and more companies start producing more, it will bring more competition in the market and more widespread treatment availability.

          I pray it comes very soon.
          Blessings,
          Connie

    • J.D. Worley March 4, 2014 at 6:29 am #

      Karen, of course we are being taken for a ride it’s always about the Benjamins money is the GOD of this world.
      Gilead and Bristol Myers were purposely holding up releasing this drug over…you guessed it MONEY who would hold the copyright and get the royalties from production of this drug.
      But I don’t concentrate on that I can not do anything about the World or Where it will end up I leave that job up to God he is better at judgement than I am and it is HIS PEOPLE the Jews who have come up with this medicine.
      There are ways and means of getting the treatment financed or getting grants for it I am sure it only costs the drug companies pennies on the dollar to manufacture it but they always say “it’s the research” “we have to pay for the research and develpment”.
      Reminds me of that old Pink Floyd song “MONEY” that song was so true not only about the music industry but about industry in general.

  4. Sandra Dee Thomas December 20, 2013 at 9:04 pm #

    Hi Connie: I appreciate so much your article which my Hep C doctor just informed me that I will be going on. I am concerned because I am 74 yrs old and have been carrying Hep C from a blood transfusion since 1987 – My white platelets are very low and I have been on a strict “liver lovin diet” for the past 6 months. Dr. said I had to wait for new medicine (this one) as I am unable to take the interferon. I have concerns because of my age, but I am a strong Christian (on social security only) and believe God will take care of me. Dr. wants me to get on a liver transplant donor list. I know I have cirrhosis, but otherwise I have always been very healthy – no smoking, drinking. I just want to say how happy I am this new medicine is out there now and I can begin my 3 month treatment.

    • Connie M December 21, 2013 at 10:43 am #

      Hi Sandra,
      Thank you so much for sharing today. Sounds like your doctor is preparing you well for this treatment and taking care of you.
      This new drug has been tested through many clinical trials and has a high effective rate. And the other great part it’s a shorter treatment time than before. Don’t know what Genotype you are? But even if you are Genotype 1, Gilead states this drug can be considered for some patients who cannot tolerate interferon.

      Keep us posted on your start date and stay in touch with us. We can be praying and supporting you through this process. You can do this!!

      Keep Focused on Christ and His Word. Psalm 18 is a wonderful place to nest as you prepare for treatment.

      Keep in touch~
      Blessings,
      Connie

    • J.D. Worley March 4, 2014 at 6:42 am #

      Sandra I am praying for you and my heart breaks for you too. I got HCV in the 70’s from using dirty needles and I am now 62. I was diagnosed in 1991 with HCV and had to be put out on medical disability in 2009 for liver failure from cirrhosis.
      Then in August 2010 I had to have a liver transplant at age 59.
      After the transplant the HCV came back and I had to go on Interferon/Ribivirin treatment for 6 months with no response they took me off treatment and left me on the interferon.
      I Nov. 2011 I told my Dr. that I was not able to handle the side effects any longer so he took me off the interferon for a year to allow my body to rest.
      Then in 2012 December my Doctor got me on a special trial for post transplant patients for the then new triple therapy with incevek program.
      I just finished that treatment on Jan. 13, 2014 and I am still Non Detectable!
      So I said all that to say this: NEVER GIVE UP HOPE! OUR GOD IS GREATER THAN HCV OR LIVER DISEASE!!!
      YOU ARE OLD ENOUGH TO BE HEALED SO HANG IN THERE GAL IT AIN’T OVER TILL THE FAT LADY SINGS AND SHE IS NOT EVEN WARMING UP YET HA HA
      AS OUR LORD SO APTLY PUT IT : “BE OF GOOD CHEER, I HAVE OVERCOME THE WORLD”.

      PRAYING FOR YOU,
      J.D.

  5. Suzanne Nelson December 27, 2013 at 4:18 pm #

    This drug I know will be my miracle drug. I have prayed for a drug to come my way after the 1st 4 drugs failed. My dotors @ Duke Univerisity approached me about this drug in Jun and all the people involved, pharmacsits’etc had been a bleesing to me. Th is probably my last chance to be cured of this awful disease and praise God God for this. I give God all the grace because He has blessed me beyond my anything else. He has brought so many people in my path and pray for all of my He C team. Please remember through God all things are possible and for those starting this drug refer to the book of Joshua. COURAGE is facing difficulties knowing God is with me.

    • Connie M January 6, 2014 at 4:00 pm #

      Suzanne,
      Thank you for commenting and sharing with us.
      Keep us posted on your treatment start date and how you are doing.
      You will be in our prayers.

      Blessings,
      Connie

  6. Norma M January 6, 2014 at 10:54 pm #

    Hi Connie
    I have hep c / cirrhosis. I am on treatment right now for 2nd time 18 weeks not responding so my doctors think they should add sovaldi along with interferon/ribavirin . I really believe that this will finally work for me it’s just getting insurance to approve it. I am asking for prayers to help me keep going. I am a strong person and I have faith and I know this is just a little bump in the road.

    Thanks

    • Connie M January 7, 2014 at 10:36 am #

      Hi Norma,
      Thank you for sharing with me what is going on. As I read your message I stopped and immediately prayed for you and I will continue to lift up your needs. Keep me posted on how your doing.

      Remember the Lord is at work for YOU even when you cannot see or understand.

      Jesus said, “My Father is always at his work to this very day, and I, too am working.” John 5:17

      Blessings,
      Connie

  7. Wali Hassan January 8, 2014 at 3:24 am #

    Hello Connie,

    I have been suffering from hep c since last 4 years. 1 year vaccine course as per
    local doctor has been completed but still positive. I am really very glad
    to know about this drug. Could you please advise where can I buy this tablets
    here in Pakistan.

    Also the cost is very high, we can not effort this. Please advise if there is
    any other way where we can buy this drug on reasonable price.

    looking forward to hearing from you.

    Thanks
    +923005977759

    • Connie M January 9, 2014 at 2:44 pm #

      Hello Wali,
      Thank you for writing and sharing with me about your Hep C. I am so sorry to hear of your suffering.

      May I ask if you know which Genotype of Hep C you have? Genotype is the type of virus strain of Hep C. There are 6 differenct genotypes. Each genotype, liver condition, and treatment history will determine which Hep C treatment is the right one best suited for you.

      You mentioned you had been on treatment in the past. What treatment medications did you use?

      I certainly understand the frustration with the high cost of medication. Since you are located in Pakistan, I will have to do some research through the World Hepatitis Alliance as to how to help you.
      All Hep C drugs here in the US have to be prescribed and monitored through a physician. Hep C Treatment is available in other countries as well, but you would have to be under a physicians care. I will do further investigation to find out how to best help you and write you privately.

      I’ll be in touch soon.
      Meanwhile, feel free to ask further questions. We are here to help.
      Blessings,
      Connie

  8. vince January 8, 2014 at 6:38 pm #

    I have medicare and part D supplement. Where can i get help for the copay for the treatment?
    Thanks, Connie

    • Connie M January 9, 2014 at 2:13 pm #

      Hi Vince,
      Hope you saw the above reply I sent you. There is help for you concerning your copay. See my response above. After the article is posted next Tuesday, “What To Do If You Can’t Afford Hep C Treatment?” and you need further help, just let me know. I’d be glad to help.

      Feel free to contact me here on the website (any post) or through email at: connie@lifebeyondhepatitisc.com

      You can also click on the envelope under Connect with Connie in the upper right side bar of the website and it will get a direct message to me.

      Blessings,
      Connie

      • ehsan April 27, 2014 at 6:13 am #

        Hi Connie,

        I was diagnosed HCV Genotype-3 patient last year but ever since I was keeping an eye on drug developments for the treatment of HCV. I couldn’t go with Interferon Therapy as I couldn’t decide having a fear that I will not tolerate it. But now with SOVALDI, I am very happy to know that it can be treated without much of side effects in case of Interferon therapy.

        Would you please give me an idea when will it be available in Pakistan and at what price. I can’t pay 84,000USD but at max 5,000 which is a huge difference. Or will I die without treatment.I am 43 now.

        Regards

        • Connie M May 8, 2014 at 8:36 pm #

          Hello Ehsan,
          Thank you for writing and sharing your diagnosis. You asked about the availability of treatment with Sovaldi in Pakistan. Since many others have written me about Sovaldi treatment in Pakistan and other countries, I have made calls and tried to get as much information as I could regarding treatment in other countries. Here is the same information I know as of right now for Pakistan.
          I believe it will be close but do not have a definite timeline to tell you. From Gilead’s Medical Support information, Gilead has filed registration as of April 2014 to help bring this treatment to Pakistan. I do not know how long it will take for Gilead to do all the necessary paperwork and get approval. My advice is to stay in touch with your doctor about when the treatment will be available.
          If you care to contact Gilead’s Support Path to find out more information here is there link:http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi
          Praying this treatment will be available to you and so many others there in Pakistan very soon.
          Blessings,
          Connie

  9. Connie M January 9, 2014 at 1:38 pm #

    Please look for the upcoming article “What To Do If You Can’t Afford Hep C Treatment” that will be posted on our website, Tuesday 1/14/14.
    This article is packed full of helpful information and resources relating to financial assistance with all Hep C treatment that is currently out.

    Please let me know if you have further questions and need help.

    Blessings,
    Connie

  10. Deborah Snyder January 11, 2014 at 4:48 pm #

    Connie,

    I feel very fortunate to have stumbled upon your website. I am a resource specialist for a non-profit organization & would love to include your site as one of our resources. I get many calls from people who cannot afford to pay for their prescriptions & feel your site will be a blessing to those in need.
    Thanks & God bless!

    • Connie M January 13, 2014 at 5:36 pm #

      Hi Deborah,
      Thank you Deborah, it would be an honor to help. Let me know if you have questions or need further help.

      Blessings,
      Connie

  11. Ralph Short January 22, 2014 at 1:43 pm #

    Connie M: First of all, you are marvelous for doing what you’re doing. As for me, my doctor wants me to go the Sovaldi + Interferon + ribavirin (sp?) but there’s no way I can afford it. Would you please tell me the best way to approach this financial misfortune. I’m on Medicare (Connecticare – VIP 1) but I don’t think they cover these medications. Also, where can I find “What To Do If You Can’t Afford HEP C treatment? Thanks so much in advance.

    Ralph Short

    • Suzanne Nelson January 27, 2014 at 10:31 am #

      I can only speak from experice and did my homework long before Solvadi was approved. Gilead Pharmacuetical puts out that drug and found it was 31,000 dollars per 28 day supply. Gilead turned me directly over to p

      • Connie M January 27, 2014 at 12:43 pm #

        Hi Suzanne,
        Thank you for sharing. Did you mean, Gilead directed you to Patient Assistance? or Patient Access Network?

        I know both will help with medication assistance.

        Blessings,
        Connie

    • Connie M January 27, 2014 at 12:36 pm #

      Ralph,
      Thank you for writing and sharing with me. We are hearing very good reports from patients about the new treatment with Sovaldi. There are financial resources to help if you are on Medicare. Here is the link to the article, “What To Do If You Can’t Afford Hep C Treatment.”

      https://www.lifebeyondhepatitisc.com/2014/01/cant-afford-hep-c-treatment/

      Also, your doctors office should be able to provide some help applying for Sovaldi.
      Here are some resources you can check out: For Medicare, Medicaid and TriCare patients, see:
      Patient Access Network Foundation: http://www.panfoundation.org or call 1-866-316-7263.
      Also check out Gilead Sciences:
      Support Path for Sovaldi: http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi or call 1-855-769-7284 Monday through Friday between 9-8pm Eastern time.

      Or this link: http://www.mysupportpath.com/

      Let me know what you find out or if I can help with further questions.
      Blessings,
      Connie

  12. Emma January 25, 2014 at 4:25 pm #

    Good evening,

    Dear Connie,

    Could you please tell me where can I buy it in France, especially in Paris?

    As to the price, I know that is quite high. Taking this fact into consideration, I would like to get the information about the estimated price as I need it for 24 weeks?

    As it is quite urgent for me, your response will be highly appreciated.

    Regards,
    Emma.

    • Connie M January 27, 2014 at 2:43 pm #

      Hi Emma,
      You asked about Sovaldi availability in France?
      Meds are not always approved by US, Europe and other countries at the same time. Sovaldi was just approved by the FDA here Dec 6th. From reports Sovaldi is going to be available very quickly in Europe. Here is an medical news article that explains more:

      http://www.news-medical.net/news/20140118/Gilead-Sciences-gets-marketing-authorization-from-European-Commission-for-Sovaldi-400-mg-tablets.aspx

      As with all Hep C treatment, your physician would know which treatment regiment is right for your genotype, liver condition, etc… Your physician would need to write your perscription for Sovaldi and the other treatment meds that you need. Your physician also monitors your care while you are on this treatment. So in short, you can not get the drug without being under a physicians care.

      Talk to your doctor about when Sovaldi will be available in your area. If it is not available yet in Paris, it looks like it will very soon.

      From what we are hearing, the price of Sovaldi may be different (possibly cost less) in Europe than US, I’m not for sure on that, it’s just what we’ve heard in reports. Cost of treatment with Sovaldi would differ depending on which treatment regiment you needed. Example: If you needed Peg Interferon and/or Ribavirin, that cost would need to be considered as well, as it is part of the whole therapy.

      We are also receiving reports of new treatment regiments that are on priority review status by the FDA which should be released sometime in the first quarter of this year. In some reports European release may be before US with these new drugs.

      Stay posted as we report the latest releases. If I help answer any further questions or need for information, let me know.

      Keep us posted on how your doing. We are here for You!
      Praying for you.
      Blessings,
      Connie

  13. Billy January 25, 2014 at 5:12 pm #

    Hello Connie I have a question. I have a new liver post transplant. I started having ascites again because my liver has progressed to fibrosis 3. do you think that Solvaldi and Ribavirin will help to eliminate this ascites? I have heard that it will since my liver will have a chance to regenerate itself. Just want to know cause I have just started treatment.

  14. Suzanne January 26, 2014 at 4:54 pm #

    Hi Connie,
    I found out I had Hep C last year. I am 65 years old and still working at a very challenging job with long hours. My concern is whether I should take a leave of absence from work for the 12 week treatment. Absences, as well as not being a 100% could be a real problem in my line of work. Can you tell me about the side effects and whether they will impair my ability to work? I would rather take a leave of absence if necessary to protect my job. I see my physician Tuesday to discuss starting treatment.

    • Connie M January 27, 2014 at 1:30 pm #

      Suzanne,
      Thank you for writing and sharing your concerns. You asked if you should take a leave of absence from work while you are on treatment?

      Side effects do differ depending on which treatment regiment you are on.
      With Sovaldi, depending on your genotype, liver condition and prior treatment history, your doctor will recommend which course is right for you.
      Genotype 1 & 4: Sovaldi is used in combination with Ribavirin and Interferon.
      Gentoype 2 & 3: Sovaldi is used in combination with Ribavirin, with different treatment length.

      Sovaldi is also being used in a study right now in combination with Olysio by Janssen/Johnson & Johnson.

      All treatment will have some common side effects. The most common are fatigue, headache, low white & red blood count, insomnia and some cases of low concentration/mental clarity, all of which are temporary while on treatment. If you use Peg Interferon in with treatment, this can cause flu like symptoms side effects, and depression, anxiety which come and go throughout treatment.

      Talk with your doctor about concerns with side effects and taking a leave of absence from work.
      I know many patients while on treatment they were not able to focus and work effectively and did take a temporary leave of absence. Some patients have maintained working but taking off periodically when they needed to, but they had good communication with their employers as to their treatment and what was going on.

      There is no treatment that is side effect free. You will have some side effects, but no one can tell how your body will react until you are on treatment.

      Some states offer State Medical Disability which is different from Social Security Disability. If you let me know which State you live in, I can tell you if that State offers this resource.

      Here are 3 helpful articles on Preparing for Triple Therapy Treatment:
      https://www.lifebeyondhepatitisc.com/2014/01/how-to-prepare-for-hep-c-triple-therapy-part-1/
      https://www.lifebeyondhepatitisc.com/2014/01/how-to-prepare-for-hep-c-triple-therapy-part-2/
      https://www.lifebeyondhepatitisc.com/2014/01/how-to-prepare-for-hep-c-triple-therapy-part-3/

      I hope this information helps. Let me know if I can help with further questions or information. We are here for you!

      Praying for you as you prepare.
      Blessings,
      Connie

      • cj hux February 24, 2014 at 12:48 pm #

        What about Wisconsin for state medical disability?

        • Connie M February 24, 2014 at 7:23 pm #

          Hi CJ,
          Have you tried contacting your state to see if they offer state medical disability? Here is a contract resource for Wisconsin’s Department of Health Services and they can advise you on what options are available in your state.

          http://www.dhs.wisconsin.gov/ddb/

          Give them a try.
          Keep me posted on how things are going and if you have further questions, feel free to let me know.

          Blessings,
          Connie

        • Connie M February 24, 2014 at 7:39 pm #

          CJ,
          I have tried to contact you through the email you gave but it keeps returning. Please resend with a another email address and I will contact you privately.

          Thank you.
          Blessings,
          Connie

    • Suzanne N. February 14, 2014 at 8:55 am #

      I am currently taking Sovaldi and Ribivrin and IF I was working I probably have continued. There are virtually no side effects with these 2 drugs. In my story I mentioned I was in the medical field and left work for what I thought was 3 months is much later because I had a false negative reading in 2011. I am getting ready to begin my 8th week and still feel pretty good. I hope this helps. Please take off slow and pace yourself.

      Good Luck….and give the glory to God…

    • Kimberly Koehler March 4, 2014 at 6:55 am #

      Suzanne, I did take a leave because I was in stage 3 fibrosis and just couldn’t perform my duties. My fiancé who is an 11th grade English teacher for special needs children didn’t miss a day. It’s certainly something to consider butane just a day at a time as you see how your body responds. best wishes, warrior kim

  15. Suzanne January 27, 2014 at 10:17 pm #

    Thank you Connie for the information. I have Genotype 1 and so far all my liver function tests are perfect. I’ve never had a liver biospy. Two years ago I had a mishap injecting a family member with insulin who was positive for hep C. I thought it prudent to be tested even though it was only a subcutaneus injection. The specialist suspects it was not from that incident. I’ve most likely had it a long time.
    At any rate I will be starting the Triple therapy with Solvadi. The Nurse Practitioner I spoke with made the side effects sound minor, tiredness and fatique. Having to worry about work and going through the treatment is a bit much. I see the nurse practitioner tomorrow and will discuss my concerns with him.
    By the way, I live in California and there is a short term state disability program.
    Thank you for your well wishes. I take comfort knowing this site exists and I will refer to it often once my treatment begins.
    Suzanne

    • Connie M January 28, 2014 at 4:12 am #

      Suzanne,
      Thanks for writing. Keep us posted on your treatment start date.
      I’m glad to know you are aware of the Short Term Disability program offered in California.

      If you have any questions or need other information, feel free to let me know. We are here for you!

      Praying for you as you prepare for treatment.
      Blessings,
      Connie

  16. Sasa n February 2, 2014 at 11:20 am #

    Is it effective for liver cirrhosis with hcv?

    • Connie M February 2, 2014 at 9:07 pm #

      Hi Sasa N,
      Later stage Hep C patients with Cirrhosis are having success with Sovaldi.

      Additional New treatments are also in priority review with the FDA and will soon be released the first or second quarter of this year.

      Keep posted.

      Blessings,
      Connie

  17. Sandra February 5, 2014 at 1:38 pm #

    Hello ,I am currently being treated with solvadi and olysio today is day 28! HAVE 56 MORE DAYS ! tHE TREATMENT IS NOT AS BAD AS THE INTERFERON ,BUT IT CAUSES INSOMNIA AND NIGHTMARES ! AND A CONSTANT HEAD ACHE LOTS OF WATER SEEMS TO HELP. I needed ambien for sleep and rotate with 10 mg generic ambien and 12.5 time released ambien . This week I have used stress relaxing tape when going to sleep. It also causes for me that is a short fuse with temper seem to be getting mase and angry more often telling off my son and husband yikes ! aggresive behavior. I also lost 7 pounds in 1 month food taste yucky and have a constant smell of sulfur especialy when perspiring at the gym saw a friend after her not seeing me for a couple of months she said I looked wicked tired I am that is the proble so far this better work I am taking my lab work tommorow and will see doctor on monday . I have or hopefully had hep c 1 a .for 43 years . good luck to us all figting this demon . Oh my co-pay for both drugs is $30.00 a month say invoice its $1,000.00 a pil !

    • Connie M February 5, 2014 at 1:59 pm #

      Sandra,
      Thanks so much for commenting and sharing what’s going on. It’s good to hear others experience. Are you taking Ribavirin in this combination????

      If so, I have heard others who are having similar side effect issues with anger, insomnia, etc… If I don’t get sleep, it’s not pretty, I can be cranky just from that. I’m so sorry to hear you are dealing with all this. I will be praying for your treatment and side effects. I hope when you get your blood work back it will blow you away with a good report!

      This is fantastic news about your co-pay.

      Keep us posted on how you’re doing. You are a Mighty Hep C Warrior!

      Blessings,
      Connie

  18. Sandra February 6, 2014 at 6:15 pm #

    Hi Connie M, It is so nice to get a response from a real person on this blog it actually made me cry that someone is hearing me. I went this morning for labs and was delayed for 45 minutes was 1 hour late for work. I am in new englang and it is terribly cold .I got through the day but I noticed I get exhaused at around 4:00 p.m. daily now actually my legs hurt I am constantly standing and it is harder and harder to deal with the stress of work especially when Icant tell my customers what is going on. I hope my labs show no virus and this sick feeling and constant head ahe is worth it .today I noticed a very strong sulfur smell almost /burning smell it is more pronounced now. I will keep you posted what happens when I see the Dr. on Monday. Thank you for bsing there I do feel alone with this fight even though I HAVE FAMILY .TO OTHERS IT IS BUSINESS AS USUAL TO ME IT IS THE UNCERTAINTY OF IT ALL AND THE NOT KNOWING WHAT THESE MEDS ARE DOING TO ME . I do look very yellow today I am on only solvadi 400 mg. and olysio 150 mg . The bad thing is that when you call the help line they have no info of the two drugs being used toghether because it is off label. 55 more days of this God help us all. hope it is working and not causing any more damage to my body. I am a bit scared I was feeling o.k. before all this heavy duty medicine.I had only mild stage 1-2- hep.1a. well good nite to you all I have to attempt to cook dinner and eat something even though it taste terrible My weight from 164 to 157 in one month 5’7″.60years old I was going to the gym daily for over 30 years never was able to loose this much weight even if I worked out all day yikes. Sandra

  19. shari February 9, 2014 at 4:22 pm #

    Connie thanks for info….I just found out I had hep c after the lab made a mistake and did a hep panel instead of a hepatic function panel….good karma I dispose…..I have had normal liver enzymes for at least 3 years as I am tested every 3 months due to the medication I take as a result of a heart attack in 2011. I am hoping this new drug is safer for heart patients. I worked in healthcare since my early 20,s and this was the last thing I ever thought of…no shared needles or other risky behavior I can recall. Scared to death.

    • Connie M February 13, 2014 at 12:57 pm #

      Hi Shari,
      Thank you for writing and sharing where you’re at with Hep C. I would definitely say God is watching out for you. We are hearing very good reports about Sovaldi with less side effects and shorter treatment time as well as high cure rate. As for the safety for heart patients, I have not heard any warning in that regard, but you can contact Gilead/Sovaldi directing or ask your physician to get the best advice if this is the right treatment for you.

      Keep us posted on how you are doing.
      You are in my prayers.
      Blessings,
      Connie

      • khatuna June 25, 2014 at 11:23 pm #

        God bless you sister, Thank you for to care! 🙂

  20. Sandra February 11, 2014 at 8:09 pm #

    Hi Connie, Good news for me today my Hep is is gone! After ONLY 4 weeks ! totaly negative for the virus , all labs normal, liver normal everything this is amazing ! I started crying when I heard the news my heart was pounding ! GONE I NO LONGER HAVE HEP C ! I still cant believe it ! I am thrilled and shocked ! I still have a constant and and troucle sleeping but its worth it. Dr. said he had 5 patients on this combo treatment and I am the only one with any side affect figures ! I do have fibomyalgia so perhaps a lower tolerance for pain ! Doctor told me to continue what I am doing and I have 50 more days of treatment just in time for spring ! I will keep you all posted ! THIS IS THE CURE WE WERE ALL WAITING FOR ! GOD BLESS Sandra

    • Connie M February 13, 2014 at 12:50 pm #

      Hi Sandra,
      Congratulations!!!! This is outstanding news! I am so thrilled for you. Thank you for sharing. This is very encouraging Sandra. I know exactly what you mean, I cried when I got my first Non-Detected report also. I love the sound of another Hep C giant biting the dust.

      Keep us posted on how your doing.
      Praying for you~

      Blessings,
      Connie

  21. Sandra February 11, 2014 at 8:54 pm #

    Hi Connie I wanted to let readers know that I am on Solvadi 400 mg and Olysio 150 mg. 12 week teatment ! other than headache and sleeplessness IT IS WORTH IT this treatment DOES WORK ! THIS IS THE REAL DEAL ! LOOKING FOWARD TO LIFE AGAIN

    • Connie M February 13, 2014 at 12:52 pm #

      Hi Sandra,
      Thanks for sharing which treatment meds you are on. We are starting to hear more and more people are on this combo and having great results.
      I know you are thrilled to have the Non-Detected report. Way to Go!!!
      Praise God!!!!

      It makes putting up with side effects worth it doesn’t it?

      Looking forward to hearing how you are doing. Keep us posted OK?

      You are in my prayers fellow warrior,
      Blessings,
      Connie

      • Sandra February 13, 2014 at 8:45 pm #

        Hi Connie,Today I am having a real bad day with a constant migraine type headache it wont go away, I am up here in Massachusetts we just got a foot of snow..My doctor told me to take 1 extra strengh tylanol 4 times a day I took 2 today and its not going away ,Dr.said he would give ultam if I need it. I will call him tommorow if this continues I have to be back at work at 10:00 a.m.. Connie why is it that I am having thoughts that this hep c will come back ? like it is not really gone and is still there and hiding on me ? I am continuing the traetment like my doctor ordered of course but I AM STARTED TO GET NERVOUS THAT IT WILL RETURN. 48 more days to go on this treatment. Thanks God bless you for helping others to cope ,thank you, Sandra

        • Connie M February 13, 2014 at 9:41 pm #

          Hi Sandra,
          So sorry to hear you are having one of those ‘ugly’ days. Unfortunately those do happen with treatment, but so do lots of good days. If you are having such a bad headache, I would put a call into the doctor and get a prescription. No need to suffer with this if there is some meds to help.

          Make sure to keep drinking lots of water, perferably filtered water. This helps hydrate you and flush your system.

          As to worrying if the treatment is working or if Hep C will come back. Let me assure you, this treatment has an extremely high CURE rate. I am hearing from others on this same treatment and they are receiving very good blood work reports. Part of what you are feeling is from the anxiety from the treatment meds. Treatment meds are so strong that they can chemically make you feel ‘not like yourself.’ Anxious, depressed, frustrated and sometimes, shall I say, ‘touchy or on edge.’ This doesn’t always effect every patient the same way, but these are common. In most Hep C treatments, an Anti-depressant is needed to help offset some of these symptoms. I refused to go on one when I did treatment in 95′ and 2000 (this was before they had protease inhibitors), I suffered more because I was so stubborn. But I did take my doctor’s advice and took an Anti-depressant when I did my third treatment and it made a whole of difference. It was only temporary during my treatment and a few months into my recovery I was able to step down off of it. I Thank God the med was there as a helpful tool to help me during treatment. If you feel like you need something, talk to your doctor about it. It’s OK. Remember, its a tool to help you during treatment.

          Sandra, you will get through this. You can also call the 24 hour nurse support line from Gilead for Sovaldi and talk to someone there about side effects and help tips.
          http://www.sovaldi.com/support.aspx
          Call 1-855-7-MYPATH (1-855-769-7284) to speak with a Support Path specialist. They are available to assist you along the way.

          Give them a call if you need to. Remember they have a 24 hour live nurse to speak with.

          And let me assure you, if for some rare reason Hep C did come back, then you DON”T GIVE UP. You roll up your sleeves and go at it again. That’s what I tell myself. But Sandra, I don’t think that is going to happen to you.

          First and foremost, you are in God’s hands throughout this whole journey. He has gone ahead of you to prepare the way and this time. Rest in Him.
          “So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.” Isaiah 41:10

          Here is an article on Facing Fear with Hep C:
          https://www.lifebeyondhepatitisc.com/2013/12/hepatitis-c-facing-fear/

          I’ve just said a prayer for you and I will continue.
          Keep me posted on how you are doing. Tomorrow, give a shout out on the Support group, and let others know what is going on and they will also encourage you and will be praying.

          Remember, “(You) can do all things through Christ who gives you strength.” Philippians 4:13

          Talk to you soon.
          Blessings friend,
          Connie

          • Sandra February 14, 2014 at 10:55 pm #

            Connie I was just re-reading your comment again. Connie you went through THREE TREATMENTS ! OH MY GOODNESS ! How on earth did you manage those awefull long ,long months and years of treatments ! I was on intepheron for only three months and it was hell ! My hair fell out, teeth were bleeding, I thought I was being poisoned ,a slow death. YOU MY FRIEND ARE A REAL WARRIOR ! GOD BLESS YOU ! After reading what you went through with years of treatment I feel like a big baby complaining of a headache and insomnia ! I have 47 more days to go and I know I can co it now.I am lucky to have these drugs available .Thank you again .Sandra

    • rileyann February 27, 2014 at 2:11 am #

      Thank you for the encouragement, Sandra. I will be starting the same regimen after getting briefed by the hospital’s pharmacist. Olysio (simeprevir)does require some baseline tests, as I found in Connie’s reference. Yes, it’s off label, so we are pioneer warriors!!

  22. Sandra February 14, 2014 at 6:48 pm #

    Hi Connie, Thanks for your encouragement to be strong and continue the fight. I am feeling better today the headache is finally gone. I went into work later in the day. I called the Dr. for a stronger pain med. for headache but he seems to be resisting my request ? called pharmacy no one called anything in. He seems reluctant to prescribe stronger meds perhaps since I am also taking the ambien nightly maybe he doesnt want me to be harmed by too much medicine . thats o.k. . The nurse in his office asked me if I had sinus problems and actually I do so I called the solvadi hot line and asked if I could use the nasal spray that I have that is a prescription and they said yes of course. I am getting a bit fuzzy minded taking this ambien every night it gives me nightmares and I would like to cut the 10 mg. in half tonite and see what happens, I would prefer not to take anything like you were saying .I am resisting . Thank you for your prayers they helped I am feeling better today like you said it will pass and the LORD is with us every step of the way . I am going to go to the gym now and try to get back to my life as it was before the treatment. Thank you for the reminder to drink lots of filtered water ,will do ! Thanks my friend God bless you for being there and your help,prayers,and article suggestion facing fear .very helpfull. good nite now I will keep you posted ,Sandra

  23. Kim February 18, 2014 at 11:57 am #

    I started treatment ten days ago (2/8/14) and seem to be doing good. Solvaldi/ribavirin combo makes me tire quickly,other than this I see no problems. On 2/20/14 I’ll have my first lab work so doctors can see what is really going on, you know svr, blood counts and whatever else. I was signed up for a merck trial and met with my hep doctor to tell him. He said why not use an approved drug (solvaldi) instead. With all the stuff about people’s insurance not covering this med I said I’ll try merk for free (a trial)and see. My doctor tells me don’t worry, I did anyway, didn’t have to because I was approved with not one dime co-pay!! I thank my doctor, my hospital, and God

    • Connie M February 18, 2014 at 2:54 pm #

      Hi Kim,
      Thank you for commenting and sharing about your Hep C treatment with Sovaldi/Ribavirin. It’s wonderful you are doing so well. Fatigue is a very common side effect of treatment.

      Fantastic to hear your approval and co pay went so smoothly. Praise God! I know this takes a load off of treatment right there. Thanks for sharing this. It will bring encouragement to others.

      Keep us posted on how your doing, OK? If you have any questions, or need treatment help tips, or prayer request, let us know. We’re here for you. Hope you jump on the Hep C Warriors Friday Forum Support Group here on our website and let others know your news.

      (You) can do all things through Christ who gives you strength. Philippians 4:13

      You are in my prayers.
      Blessings,
      Connie

  24. Tanya February 24, 2014 at 7:30 am #

    My doctor requested I take Sovaldi (Sofosbuvir) and Ribavirin, I have Medicare and Medicaid Share of Cost, but it won’t be covered. They want me to sign up for Medicare Part D to cover the drugs. Do you know which Medicare Part D plan is most likely to pay for the drugs? Or if anybody reading this had their Sovaldi and Ribavirin paid for by a Medicare Part D plan could they share which plan they have?
    Any information is greatly appreciated. I am desperate.
    Thanks.

    • Connie M February 24, 2014 at 6:50 pm #

      Hi Tanya,
      Thank you for writing and sharing. I know of other Hep C patients who have dealt with the same issue. But they contacted Gilead’s Support Path for Sovaldi and were directed to other avenues to get their meds paid for. I will also copy and paste your message and put it on our Hep C Warrior Friday Forum Support Group and see if anyone there knows about the Medicare part D coverage for these meds. But try these other sources also:

      I would contact Support Path and see what they advise about Medicare part D and which plan. Otherwise, they can direct you to another resource for help with these meds.

      Here is Support Path for Sovaldi’s number: 1-855-769-7284 Monday through Friday 9am to 8pm Eastern time.
      http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      Here is an article that may be helpful:
      https://www.lifebeyondhepatitisc.com/2014/01/cant-afford-hep-c-treatment/

      I’ll make some contacts myself and see what I can find out and I’ll let you know.

      Hang in there.
      Blessings,
      Connie

      • rileyann February 27, 2014 at 2:24 am #

        Gilead Sciences has a Patient Assist Program. 866-316-7263, 9am to 5 pm EST. They say Gilead is committed to making Sovaldi accessible to uninsured or underinsured patients. Combo treatment with Simeprevir can cost up to $180,000. for
        a three month regimen. There is an application form for underinsured and uninsured. Most plans I’ve seen for Medicare Part D prescription drug coverage post their formularies. I’ve found talking to your pharmacist in person is best if you have questions. Just sayin…..use wisdom.

        • Connie M February 27, 2014 at 9:26 pm #

          Hi Rileyann,
          Thank you for sharing the information about Medicare Part D. I know many patients who are on Medicare are contacting the Patient Assist Program.

          I appreciate your info.
          Thanks again.
          Blessings,
          Connie

    • Suzanne March 3, 2014 at 5:42 pm #

      Hi Tanya,

      I signed up for a Medicare prescription plan 6 months before the FDA approved Sovaldi. My doctor had warned me this could be pricey so did my homework. Connie gave you some incredible resources so use them. I pay under $50 a month for the plan. I am on Medicare disability and have been since 5/2010 so had plenty of research time. Gilead wants to help people on Sovaldi that cannot afford it. I spoke with them many times before and the day of the FDA approval and they were ready to help. The best way to find a plan for you is to go in and talk with your pharmacist. Also, many of the pharmacies do not stock some of the newer drugs so make sure they know in advance to order the medication you will need. I haven’t paid anything for my medication. I would also stick with 1 pharmacy so they can check for any interactions with other drugs. The entire pharmacy team knows I am on this medication and really looks out for me. I hope some of this information helps you. I turned all of this over to God from the beginning and He took care of me. I will be praying for you.

      God Bless,

      Suzanne

  25. Muhammad Ali February 26, 2014 at 6:21 am #

    Hi,

    I am Muhammad Ali and suffering from Hep C + . Today I read about your medicine. Can you please guide me about How can I receive Hep C medicine in Pakistan?

    What will be the total cost of the medicine?

    Does this medicine have any side effect?

    Your quick response will be much appreciated!

    Thanks & Best Regards

    Muhammad Ali

    • Connie M February 26, 2014 at 7:35 pm #

      Hello Muhammad,
      Thank you for writing and inquiring about the new Hep C treatment.
      This treatment has just recently been approved and released in the US as of December 2013. Since that time there are reports of Sovaldi being approved in Europe as of this month. As to the availability to Pakistan and other countries, I do not know the exact time it will be available. The cost of the medicine will differ greatly from the US compared to other countries. There are some side effects but less than most traditional treatments.

      Here is an article about the Common Side Effects of each Hep C Treatment Medication, including Sovaldi.

      https://www.lifebeyondhepatitisc.com/common-treatment-side-effects/

      As with all Hep C treatment, you will only beable to receive it by a prescribing physician and be monitored while you are on treatment.

      The World Hepatitis Alliance is the resource to look for what treatment is available in each country. Here is their main website link:
      http://www.worldhepatitisalliance.org/en/

      I will contact you privately with other contact information for Pakistan.

      Keep me posted on how you’re doing.
      You are in my prayers.
      Blessings,
      Connie

  26. Carl February 27, 2014 at 11:05 am #

    Hi Connie,

    I have started treatment for G2 HCV using Solvaldi/Ribavirin 12 week treatment. 2 weeks in to it. All the symptoms have manifested themselves at one point or another but day 4 through 8 were the most critical. However on day 14 it seems to have toned down in severity. The mood swings are the most, how should I say this…”fun”, if you will. I am a salesman by trade and attitude control is an everyday thing and I have had to use all 30 years experience when dealing with certain situations.
    I was diagnosed in 1990 and told then I only had a 5% chance to live past 60. I am 60 this year and it looks like I am going to be cured.

    Drink plenty of water!

    Carl

    • Suzanne March 3, 2014 at 5:05 pm #

      Hi Carl,

      I am finishing up my treatment I started 12/31/13 this month I had very few bad days throughout. The good out weighed the bad. The Dr. has me taking all my meds before lunch so usually take them around 10am and lie back down for a little while. It does seem as though my thinking is getting a little clearer and hope that is a good sign. I still have my “senior” moments and not a senior yet! I think God has a sense of humor so have learned to accept it and know it will get better. I do drink a lot of water and vitamin B has been a huge energy booster. I also drink ensure. Please just take each hour as it comes and before you know it you will be through. The last 10 weeks have flown by.

      Good Luck,

      Suzanne

      • Connie M March 3, 2014 at 5:53 pm #

        Hi Suzanne,
        Thank you for sharing your treatment progress. I am thrilled to hear you are doing well. Thanks for sharing these good treatment tips also. It helps others to know.

        We are praying and cheering for you all the way!
        Blessings,
        Connie

    • Connie M March 3, 2014 at 6:04 pm #

      Hi Carl,
      Thank you so much for sharing your treatment experience. I know it’s alittle different for each patient but there are common side effects everyone seems to deal with. I also know most side effects tend to cycle out. There are definitely good, bad and ugly days of all Hep C treatment, but there are also days of relief that are like coming up for air. Fatigue is very common for all. Not everyone experiences severe mood swings, but those also can come from the Ribavirin. Don’t know when your taking your meds, but the nurse told me to make sure to take my Ribavirin earlier in the day, and especially no later than 4:00pm. She mentioned this can cause insomnia if taken too late.

      You have 2 weeks already completed which is fantastic!!! Take one week at a time and check it off your calendar. Don’t focus on the whole treatment time. By taking one week at a time, it’s those small steps that add up. Before you know it, you will be finished.

      Keep us posted on how things are going. Your sharing your experience is so helpful to others, plus we know how we can be praying for you.

      You can do this Carl!!! We are cheering and praying for you!

      Blessings fellow warrior,
      Connie

  27. Sandra March 2, 2014 at 11:30 pm #

    Hi Connie, I am still hanging in there, I have 31 more days to go . Was having trouble last week. Ambien wasnt working any more. Stopped them and had an anxiety attack after not sleeping for 3 nights in a row. I was scared I was going to die started hyperventalating HEAD WAS POUNDING CHEST HURT and went to DR. HE GAVE ME A SCRIPT FOR ULTRAM 50 MG. TO USE AT NIGHT. NURSE HOT LINE HELPED TOO A LOT SHE TOLD ME TO CONTROL HEADACE USING 500 mg. TYLONOL, AND ALTERNATING WITH 60 mg.0 IBUPROPHEN . ULTRAM AT NIGHT SO FAR IT IS HELPING LAST NIGHT I ACTUALY SLEPT FOR FIRST TIME in a long time .I am so glad and gratefull to the Lord that the treatment of olysio/solvadi actually cleared the virus ! I have normal labs ! 60 years old and I now have hope of some good years ahead of me instead of the uncertainty I had every day with the HEP C VIRUS LIVING IN MY BODY. I already feel better.I HOPE OTHERS CAN GET THIS TREATMENT TOO AND KILL THE DEMON ONCE AND FOR ALL. God Bless you all! Thanks Connie for your prayers. Your friend up here in new england, HEP WARRIOR Sandra

    • Connie M March 3, 2014 at 5:49 pm #

      Hi Sandra,
      Thank you for sharing your treatment experience. I know not everyone has the same experiences with side effects but there are common ones that do arise. I am so glad to hear you were able to get some relief and some meds to help relieve the headache and help with sleep. Insomnia is a common treatment side effect but I will say, I personally had less trouble with that on my last treatment. But I do take 1 Tyelenol PM at night.
      You can also purchase an over the counter sleep aid without the acetaminophen. It is Diphenhydramine HCI 25mg. I purchased it at Wal-Mart and the name was, “Nighttime Sleep Aid.” Sometimes even some Benedryl before bed can help if your having problems.
      Along with drinking 1/2c to 1 c of Milk before bed and taking a warm bath before bed, helps muscle’s to relax so you can sleep better.

      Congratulations for Clearing the Virus!!!! That is fantastic news!!!

      Try to keep focused on taking one week at a time, and get to your Mile Marker day. You are down to the last stretch and you’ve made great progress. You can do it Sandra!!! (You) can do all things through Christ who gives you strength. Philippians 4:13 (emphasis mine).

      Keep us posted on how you are doing.
      You are in my thoughts and prayers daily.
      Blessings fellow warrior,
      Connie

  28. Mike H. March 3, 2014 at 11:10 am #

    Thanks for sharing your experience Sandra. I am hoping to start soon as well. I had my bloodtest for genotype and viral count today. Results will take 5-10 business days.
    Posting your experience will help all of us newbies wondering what’s in store for us.
    I will be praying for you Sandra. God bless you!.

    • Connie M March 3, 2014 at 6:08 pm #

      Hi Mike,
      Thank you for commenting and sharing your update today. Let us know when you get your tests back.

      You are in my prayers daily~
      Many Blessings,
      Connie

  29. Tammy D March 4, 2014 at 2:42 am #

    Hi Connie,

    What a pleasant and encouraging website! I wish I had found it sooner! 😀

    I am also a Christian and love the Lord with all my heart! I was diagnosed last year with Hep. c genotype 1b. I have probably had Hep C for over 25 years due to the condition of my liver…..stage 4 fibrosis…early cirrohis. Probably got it during a very scary n difficult C-section 27 years ago. Definitely not what I expected. But ok, God you have a plan and you know all the days of my life… Make each one count….and lived out with joy n peace and in full trust with You! I started the triple Hep. C therapy…. Only to have to stop after 3 months! The great thing….I was virus free meaning I was redeptive to the treatment…viral count got to 0! Only I had to stop because I got Cotton Wool Spots in my eyes due to the interferon and would go blind……only a few get this and I am one of the special few! So…..I was gonna have to wait until something came out that I could take that was interferon free.

    Not three months later when I saw my doctor, did he inform me that there was a small trial of 100 people that had just completed where the only drugs used were the two new drugs….Sovaldi and Olysio in combination ( a three months treatment) From what I understand, all patients were interferon intolerant and cirrohtic as well! The great news is …. 100% cure rate! The doc was so excited for me and got the ball rolling quickly! Said it would take insurance company about a month to approve because each of these new meds were fda approved with interferon, ribaveron combination but not in the combination he was prescribing. The amazing thing…. Truly the hand of God … it was submitted to my insurance company and was approved and had the meds shipped within 2 days!!! My nurse cried and said….Tammy, this doesn’t happen……no really you must have someone up “there” watching over you cuz this just doesn’t happen!!!! My reply… I sure do and I have been praying and trusting God to make a way!!

    I have been on this treatment now for 5 weeks, with the need to take a 15 minute nap in the afternoon as the only side effect!!!! Quite different from the other side effects!! I am awaiting lab results even as I write to see what my current viral load is! But I am truly trusting the Lord in all this! The world needs to see God’s people with FAITH, HOPE AND Exceeding amounts of HIs LOVE especially walking through trials and pain.

    Thanks again for creating such a sweet forum for people who are struggling for their lives to find answers as well as hope!!

    Bless you!!!
    Tammy

    • Connie M March 5, 2014 at 4:09 pm #

      Hi Tammy,
      Wow! What an amazing testimony. Thank you for sharing with us. I hear from many other Hep C patients who are doing this treatment and having excellent reports. I am thrilled to hear you are doing so well.
      Congratulations for 5 weeks of treatment and coming up on your half way mile marker! Before you know it you will be through. The new treatments available without interferon are amazing. It’s a huge Praise to God for all this great progress.

      You brought tons of hope with your message today.

      Please keep us posted on how you are doing and your blood work report.
      You will be in my prayers.
      If you have any questions or need information, or want to share a prayer request, just shout out. We’re here for you.

      Blessings,
      Connie

      • Tammy D March 5, 2014 at 6:42 pm #

        Hi Connie,

        I just got a call from my doctor…… His first words to me were……”Praise God and Hallelujah….you have no detectable virus in your body!” My viral counts sre at zero!!!!

        Woooo hoooo ……. My household is so happy!!!!! Thank you God!

        • Connie M March 6, 2014 at 1:36 pm #

          Hi Tammy,
          Congratulations!!!! Virtual High Five to you. We are so thrilled for you! I love the sound of another Hep C giant biting the dust!!! Woo Hoo!!!!!!! Praise God!
          Thank you for sharing this great news with us.

          Keep us posted on how things are going.
          You are in our prayers daily my friend.
          Special Blessings,
          Connie

  30. Mike H. March 5, 2014 at 8:25 pm #

    Praise The Lord! Thanks for sharing your joy Tammy.

  31. Sandra March 5, 2014 at 11:02 pm #

    Hi Connie and fellow warriors,Today I had a bay day with an excruciating headacehe again ! I thought I wasnt going to get them any more .,boy was I wrong. It stared this morning before I TOOK MY TREATMENT (OLYSIO/SOLVADI).I went to work started to take the tylonol 500 mg. then a few hours later 600 mg. of ibuprophen. I think I waited too long and it got the better of me. I couldnt even eat my lunch. felt so sick left work and came home and went to bed. finally ate a little forced it down. took more tylonol and 4 hours later ibuprophen again. I am going to take the 50 mg. ultram tonite. .The problem with this constant headahe is that if I dont stop it before I go to sleep it pounds ALL NITE LONG then I wake up constantly AND GET NO SLEEP ..I HOPE TOMORROW IS BETTER .I WAS DOING REAL WELL FOR A FEW DAYS NOW .I ACTUALLY FELT NORMAL . Well soon it will be over. I have 28 more days to go ! then I am ALL DONE ! Mission accomplished THE VIRUS IS ACTUALLY ALL GONE I HAVE TO KEEP REMINDING MYSELF THAT ! It is so hard to believe that it has cleared and in only 4 weeks ! I have been telling others about this new combo treatment and they responded by saying how they too had a clearence of the virus as well after ONE YEAR of the triple treatment with(interferon/ribovarn/and incevek). but then it came back ? they didnt sound too encoraging about the virus really EVER being gone or a real cure ? I kind of felt a bit discouraged after hearing those comments. But I responded by saying that the nurse from the treatment hotline told me that these drugs REALLY DO GET RID OF IT ! and the only way I can ever get it again is if I get REINFECTED ! So I am going to believe in that and the data and Thank the Lord he gave me another chance and I will stay cured . God Bless you all. and wishes for perfect labs and success for all my fellow warriors.take care will keep you all posted,thanks Connie for your help and support Sandra

    • Connie M March 6, 2014 at 1:49 pm #

      Hi Sandra,
      So sorry you’ve had one of those nasty days. If you take the ultam during the day, does it make you sleepy? I think you’re right, you have to stay ahead of the headache and not let it get too bad before you take your meds. Have you contacted your doctor again about the headaches and ask if there is something else you can take that’s stronger? Just an idea.

      I wanted to assure you about NOT worrying if Hep C will come back. I know that is normal for all of us to have that thought, but worrying will only harm you. Trust in God to work all things out. My last treatment was the triple with Incivek, Interferon and Ribavirin and next month I am celebrating 1 1/2 years post treatment and Virus Clear!!! I do not worry about Hep C coming back, but I can tell you if for some reason it ever did, then I would roll up my sleeves and go at it again. Hep C Warriors NEVER GIVE UP!

      Sandra, I don’t think you that will happen. These meds, especially the brand new ones, have a tremendous cure rate. Just keep focused on your weekly mile marker and getting to the finish line. You don’t have far to go. Stay in God’s word and if possible, listen to some Christian music that will encourage you.

      Here is a great song to bring encouragement, Overcomer by Mandisa.
      http://www.youtube.com/watch?v=z29olPjFbqg

      Keep us posted on how things are going.
      Praying for you each day my friend.
      Blessings,
      Connie

  32. Mike H. March 5, 2014 at 11:35 pm #

    The virus is gone! Praise The Lord! Hang in there Sandra-you are almost done! I will continue to pray for you. You are way ahead of me. I find out hopefully next week what genotype my Hep C is and when I can get into see a specialist. Reading your stories here really helps me and gives me hope. ‘Because He is at my right hand! I will not be shaken.’
    Blessings
    Mike

    • Connie M March 6, 2014 at 1:53 pm #

      Hi Mike,
      You are an awesome encourager and Mighty Hep C Warrior!
      Thanks for sharing our special scripture this week in Psalm 16:8. It’s a great truth we can stand on and say to ourselves everyday.

      Praying for you as you prepare for treatment.
      Special Blessings my friend,
      Connie

    • Sandra March 11, 2014 at 10:21 pm #

      Hi Mike ,Thank you for your encouragemnet ! I have 22 more days now !I hope you also get this treatment it is only 12 weeks and it really goes by fast. Praise The Lord ! I think we have a winner here .God bless you keep us posted. Sandra

  33. Marc March 8, 2014 at 10:13 pm #

    Hi Connie.

    I started Sovaldi and Ribavirin 3 weeks ago. So far it’s been no walk in the park but I’m very thankful to try beating HCV one more time (I’ve tried already with interferon twice). In two weeks my red blood cells dropped 25% and my bilirubin’s have gone up but hopefully that will go back down. I’m very tired but I only have to do it for 24 weeks as opposed to the last 48 weeks I did w/ interferon.

    Last month I saw my GI and the meds were sent to me two weeks later. Gilead jumped in and covered the copayment without my having even asked! They say it costs $1K a pill but you wouldn’t have known it by how quickly they got the medicine to me.

    I have insurance but I was surprised at how willing they were to help with the copayment. I think Gilead’s doing the best they can to help people.

    I like your blog and now I’m following you on Twitter. Thanks for your contribution.

    Marc

    • Connie M March 9, 2014 at 6:07 pm #

      Hi Marc,
      Thank you so much for sharing about your treatment journey and the help you received from Gilead. Like you, I had done treatment twice before and it had not worked so in 2012 I used one of the new protease inhibitors, Incivek with Peg Intergeron & Ribavirin and it killed the virus. I went Non-Detected for the virus the first 4 weeks of treatment and have been virus clear ever since. Praise God! I am glad that you will not have to do treatment as long this time. Keep focused on your weekly Mile Marker (the day of the week you started treatment). It helped me a great deal to take one day, one week at a time and NOT focus on the total treatment time. You can do this Marc!

      Keep posting and let me know how things are going.
      You are in my prayers.
      Blessings friend,
      Connie

      • Marc March 12, 2014 at 8:22 am #

        Thank you Connie!

        Last night completes my third week and I had a terrible night. Some nights are like an extended nightmare and some aren’t too bad. I like to always give a ‘good report’ because, after all, “We know that all things work together for good…” but the truth is, sometimes I feel desperately sick and it seems hard to see past it. As I said earlier, this is my third treatment and I was under the illusion that with just the Sovaldi and Ribavirin it wouldn’t be so bad… Wrong! I can’t imagine not having the hem of the His garment to take hold of when I feel so bad.

        You’re video from 2013 in which you spoke of your viral load still being undetectable was an inspiration to me because at least now I know someone has actually cleared after the third attempt. You then recommended focusing on a one-week marker and that again was a big help because when I think of 21 more weeks of this I wonder if I can do it.

        Today I have to go back in for lab because of the anemia. If it’s any worse they will either reduce the Ribavirin, give me Procrit or a transfusion. One of the particularly upsetting symptoms is that sometimes when I lay down for bed I don’t feel as if I’m getting enough air. Hardly a nice state of mind to be in when a guy is trying to rest. It’s new for me because I’m lean, don’t smoke and I don’t have pulmonary or coronary issues.

        I see that SUZANNE has replied to my last post as well and I’m looking forward to hearing from her.

        I didn’t expect a reply. I don’t know why, but I just didn’t, and it’s very meaningful to me that you took time to write. The information is very helpful. I never thought I’d see myself communicating on a blog with someone about this long, crazy struggle I’ve had but it’s helpful and I wouldn’t have thought it would be.

        You’re forwarding glory to the LORD with the time you give to others.

        Sincerely,

        Marc

        • Connie M April 9, 2014 at 2:01 pm #

          Hi Marc,
          Hoping and praying you are feeling better this week.
          How are you doing into this week’s Mile Marker?

          Keep us posted.
          Thinking of you.

          Blessings,
          Connie

    • Suzanne March 11, 2014 at 3:40 pm #

      Hi Marc,

      I am thrilled you got your medications so quickly. I found out in June of last year there were possibilities for the drugs you are on so immediately called Gilead and it was approved in December, 2013 and with the help of my wonderful pharmacists they had corporate add this drug and had it in my hands on the 31st. I will finish up on the 24th and will go back for blood work on 4/22/14 and the doctor are very optimistic. I could not have done it without Gilead and of course my Lord and Savior. I have been through 1 treatment in 2011 with a false negative and feel it in my heart that this is it. I give all the grace to God. Sovaldi is called the miracle drug @ Duke. Good luck with your treatment and will be praying for all.

      Suzanne

      • Marc March 12, 2014 at 8:44 am #

        Thank you Suzanne,

        I’m happy to hear you’ve only had a twelve week course of treatment. I couldn’t tell if you also have to take interferon with that but from someone who has first had 24 weeks, than 48 weeks and now 24 more weeks, a twelve week course sounds like a heavenly dream. I’m not kidding. Just thinking about it makes me feel a little surreal!

        Thank you for the little factoid about what they say at Duke regarding the Sovaldi. When GOD does miracles, He sometimes lets the left hands know what His right hand is doing!

        • Suzanne March 12, 2014 at 2:16 pm #

          Hi Marc,

          I thank you for your comment. I did a 48 week treatment in 2011 including interferon and also didn’t think I would make it. My white blood count was so low they were getting ready to stop treatment but God worked his miracle and completed it but like I said when I stopped the meds my viral load was 0 and they did blood work 1 month later and it was a false negative. I was positive again.

          I prepared for the worse instead of the best. I couldn’t imagine going through that again so when I began in December I waited and waited and thought where are the side effects? When am I going to get really sick and it just didn’t happen. That was a huge. I think for me not reading about potential side effects helped me or I would have had all of them, ha!

          You can do this and lean on God. “Let me help you through this day; the challenges you face are far to great to handle alone.” Every good day you have are a gift from Him.

          God Bless,

          Suzanne

          • Marc March 12, 2014 at 9:00 pm #

            Suzanne,

            You make a good point about not making oneself to conscious of the side effects. The worst thing with me isn’t so much the ‘tiredness’ associated with the anemia but all the stomach upset I experience. It could be associated with the cirrhosis but I’m not sure. Much of it is a mystery to me. Thank you for the insight though and your so right about every good day being a gift.

            Marc

        • Suzanne March 12, 2014 at 2:30 pm #

          Marc,

          I read and forgot to mention about shortness of breath. I have felt the same way especially when I lie down at night. I mentioned this to Duke just yesterday. I called Gilead Monday asking if there were side effects like shortness of breath and they said none reported but did take my information down.

          Also, another word of encouragement. Sovaldi has a 90% cure rate so please focus on that and hope they can get your blood work normal. I asked my doctors if there were vitamins I needed and some were suggested so ask them.

          Suzanne

          • Marc March 12, 2014 at 9:06 pm #

            Hey Suzanne,

            I just figured the sensation of not getting enough oxygen was connected to the red blood cells but it’s making less and less sense to me to try to figure it out. Most of the time the Dr doesn’t know the cause unless it is a ‘classic’ symptom.

            For some reason I thought you were talking about Duke University.

            I will ask about vitamins when I talk to them tomorrow about today’s lab.

            Thanks again,

            Marc

      • Marc March 12, 2014 at 8:51 am #

        PS Suzanne,

        Thank you for your mention of prayers. I’ll remember you too.

        Marc

  34. Sandra March 10, 2014 at 12:13 am #

    Hi Connie ,Things are pretty good . I have been sleeping well with the ultram and ibuoprophen. I have 24 more days to go ! I called the nurse hot line with questions about daylight savings time and if I should do anything different with the timing of the treatment she said no just change clock and take them as I HAVE BEEN . I ALSO ASKED HER AGAIN IF IT CAN COME BACK. She said I should have another blood test again after 3 months when I am done with the last pills and if it comes back negative it is GONE GONE GONE !!!! I Pray to the LORD & HOPE IT NEVER COMES BACK AGAIN ! I will keep you all posted. thanks for all your support and prayers, Sandra

  35. Donna March 10, 2014 at 10:04 am #

    Hi Connie: I am trying the new treatment. I started Friday, February 21, 2014. I do have fatigue and irritability at work. I am using my sick days to work a 4 day week. It has helped. I noticed the whites of my eyes are actually white. Praise God.
    I do have insomnia, especially on work days. I am interferon intolerant from the 1st treatment. I was in a study and after 3mos. was deemed a non-responder. This treatment seems so much easier. My doc has me taking 3 ribi in am and 3 in evening. What is exasperating my treatment is the pain in my left hip. I need a hip replacement and can hardly walk my Std. Fr. Poodle, Daphne.
    I had to make a decision when the Solvadi came out. Treat hep c and the liver stage 4 or get the hip. I waited patiently for this treatment to get approved, so with the advise of my interist I chose to go after the viris, because it is so systemic. I do draw encouragement from your site. Thank you. God bless all the warriors fighting this little/big virus. Donna

    • Marc March 12, 2014 at 9:09 am #

      Dear Donna,

      It sounds like you’ve had some tough times and you still are. I read Sandra’s reply to you and it sounds encouraging. Just know that there are others out here who can relate to your plight and are willing to pray for your well-being. I’ve had HCV for about 47 years and I’m still working on clearing it. I had liver resection from cancer and also have cirrhosis – both from HCV, but if I had to add the pain and immobilizing effects of a bad hip I don’t think I would be as upbeat as you appear. Please keep your spirits up. Don’t let yourself slip into sadness and despair when we know GOD has provided us such grace because of what Jesus has suffered for us. Remember “My grace is sufficient for thee…”

      Thoughts and prayers your way,

      Marc

  36. Sandra March 11, 2014 at 10:16 pm #

    Hi Donna, I too am on the new treatment of solvadi/olysio only . I was a nonresponder on interferon too. 3 months and stopped. The new reatment is way easier ! I cleared the virus after 4 weeks ! three months is the time needed for this combo. My liver labs were all normal too !. I dont take ribi. just the two. I have 22 more days to go . Then after 3 months if labs still show negative I am cured. It is almost unbelievable that the virus I have had living with me for 43 years is gone., very stange .I pray that this treatment works for us all ! I too had real bad headachs and insomnia.I hadnt slept for 3 days at the begining of the treatment till I stated take ultram 50 mg. one at night ! now I sleep at least 5 hours straight and I am able to go back to sleep.and to work too. finaly ! I also had some very strange anger issues in the first month of treatment really bad and quite mean to others around me . I am not having that any more either ! the demon is gone ! God bless you and I will pray for your treatment to work .take care now you will get cured this time around and then fix your hip! Thank God for this site and thank you Connie . Warrior, Sandra

  37. Mike H. March 12, 2014 at 3:26 pm #

    Hello Hep C Warriors,
    I just wanted to tell you all how much you are appreciated . I still have not got my tests for viral count and genotype back so I am watching you while the new drugs are doing their work. Donna, Sandra, Marc and Suzanne, your willingness to share today is really important to us newbies.
    I will continue to pray for you all.
    Blessings,
    Mike

    • Marc March 12, 2014 at 7:36 pm #

      Thank you Mike, I appreciate your comments.

      I was surprised how robust this blog seems to be. I think it springs up from the energy Connie’s been willing to bring to this subject. The amount of grace given to some people to share is evidence of GOD’s love for us all because it’s rare to find Troopers like her.

      I’ll check back often to see if you have any questions. One thing I can tell you is, all things considered, this is is a great time to be a newbie if you have to be one at all! The new drugs may spare you a lot of pain and suffering that others have had to endure.

      I’ve been through a quite a few of the likely scenarios HCV sufferers have dealt with beginning with discovery, treatment, to relapse, to cirrhosis, to cancer, back to treatment, divorce, relapse again and now back to treatment as a single, 62 year old man who is essentially broke (financially) from his journey. That covers a lot of ground! I’m willing to contribute to anyone who hopefully may benefit from my experience because somehow through it all, I’ve become closer than I’ve ever been to my sweet Creator. GOD’s grace through the LORD JESUS is all we need and if we’re able to realize it it is the only thing our heart truly desires. So as a result, I’m very satisfied with my life. Go figure that. Right?!

      Anyway. Let me know if you have any questions. If I did live it, I’ll give it.

      Sincerely, Marc

  38. Sandra March 13, 2014 at 9:29 pm #

    Hi Hep warriors, I too had the same sensation for three nights of not being able to get enough air in my lungs as well ! It happened when I was tring to go to sleep,I had not slept for 3 nights in a row,the last night I panicked and started hyperventaliting trying to get a deep breath of air in me I went to the window and opened for fresh air to breath,then I felt like I was going to throw up it was awfull that day I went to the doctors office told him I needed to sleep and that I had a constant headache he game me 50 mg. ultram and it worked.You have to control the headach. That day I almost gave up the treatment I panicked and thought I was going to die.But I didnt and I slept and I have been fine since then. with only 21 days left ! I also got my appetite back again ,I actually feel way better now that I sleep and stop that pain in my head as soon as it starts. I pray for you all every night and thank Connie for this site,hep warrior Sandra

  39. Nancy March 20, 2014 at 6:44 am #

    Thank you Connie and to all the Hep C Warriors. Your blog and the posts are a lifeline to me. I am Stage 3 and just finished week 4 of Sovaldi and Olysio. I go for blood work next
    Monday. I am depressed a bit, have trouble with UTI’s on this med. I pray the antibiotics are not keeping the drugs from slaying the beast. My doc says he is seeing a lot of UTI’s with the Sovaldi and Olysio treatment. Anyone else taking this combo have to take antibiotics while in treatment? I have a dark cloud over my head the last few days thinking someone has to be in the 10% non responder group and think it’s me. I am not a dark thinker. I help people with their struggles. I guess these feelings are a side effect from the drugs. I keep praying and writing down verses on Index cards. I have to go to work thru this as money is tight. It is very hard. My brain is foggy. I do not mean to be so negative. You all are my support group and I thank you for sharing. All Warriors are in my prayers.

    • Suzanne March 24, 2014 at 9:25 am #

      Good Morning all,

      I just finished taking my last 6 pills. I am so glad I did journal and I would encourage that for everyone. There are some day’s I wrote” “I feel run down and thank you God for my blessings.” There were others I could not stop writing. I have a daily devotional I never miss and is called “Jesus Calling” and that has been good on the days I felt a little run down and the brain fog was present. It is short and meaningful.
      “Trust in me one day at a time; this keeps you close to me.” Trust is not a natural response if you have been deeply wounded.” “Exert you will in me in all circumstances and I will equip you to get through this day victoriously as you live in deep dependence on me.” This reading came from Psalms 84 and Matthew 6.

      Nancy, I can also relate to the UTI’s and must be the Sovaldi. I checked with my pharmacy and doctor about interaction with Sovaldi and my doctor said there were none. The drugs are working away at your Hep C and the antibiotic’s are taking care of the UTI and the pharmacist told me they didn’t work against each other but it was suggested not to have infections in your body that go untreated.

      No two days are alike and Christ is with you everyday and remember courage is the absence of fear.

      God Bless,

      Suzanne

    • Connie M March 27, 2014 at 12:07 am #

      Hi Nancy,
      Thank you for commenting and your kind words. Congratulations on reaching your Week 4 Mile Marker! We are hearing fantastic reports from those on this treatment and the outstanding results they are getting.

      I am hearing some others speak of UTI’s but the antibiotics are not affecting their treatment results, so hang in there. I also know that feeling blue and dealing with depression, or even anxiety are common with all Hep C treatment. Let me assure you, it is the treatment meds NOT you! The treatment is so strong it chemically can make you feel blue and experience other symptoms. Try your best to tell yourself when you begin to feel overwhelmed with these feeling, “This is the treatment, it is not me.” I would also encourage you to speak to your doctor and consider taking an Anti-Depressant temporary while you are on treatment. I can tell you I am a very upbeat, positive person and the first two treatments I did in 1995 and 2000 my doctor advised me to take an Anti Depressant while I was on treatment and I refused. I suffered more with side effects and it ultimately effected my treatment. My last treatment in 2012, I did take my doctors advice and used an Anti-Depressant while I was on treatment and it helped me greatly and I was able to get off the med the first few months into recovery.
      Here are a couple of posts you may find helpful:
      https://www.lifebeyondhepatitisc.com/2013/05/depression-hep-c-treatment-side-effect-and-help-to-get-through-it-part-1/
      https://www.lifebeyondhepatitisc.com/2013/05/depression-hep-c-treatment-side-effects-and-help-to-get-through-it-part-2/

      Keep writing down scriptures on index cards because the Lord will use those greatly to help you. Brain Fog is a side effect, but you can get through this. Keep drinking lots of water and cranberry juice to help.

      Nancy, you are not being negative, you are just stating how you feel. Friend, I know exactly how you feel. You will get through this!
      Keep telling yourself, “I can do all things through Christ who gives me strength.” Philippians 4:13. You are a Mighty Hep C Warrior!

      Keep me posted on how you are doing.
      You are in my prayers daily.
      Special Blessings my friend,
      Connie

  40. Mike H. March 20, 2014 at 6:20 pm #

    Hang in there Nancy. You are in my prayers. You are way ahead of me. I am still waiting for my viral load count and genotype, so I am watching and learning from all you trailblazers.
    Remember, you ‘can do all things through Christ, who gives you strength’!
    Blessings,
    Mike

    • Nancy March 21, 2014 at 6:43 am #

      Dear Mike,

      Thank you for the prayers and blessings! It meant so much to me. You are coming into this at a wonderful time. The new drugs seem to be amazing. A long wait for them! I am saying a prayer for you. I love this website. I just found it a couple months ago. It has been a giant help!

      “Be joyful in hope”

      Blessings,

      Nancy

  41. al kraus March 22, 2014 at 5:32 pm #

    Is solvaldi approved for me [hep-c, genotype – 1] on ssi in wisconsin!I have medicare A & B, and wi.. medicaid, coverage. Bloodwork shows me 2 years from transplant list.

    • Beth March 22, 2014 at 6:40 pm #

      Hi AL, I just started my 3rd week on Sovaldi, ribavirin and interferon.. I am also genotype 1, so yes to your question.. I dont know much about the insurances, my insurance approved with no problem, but I know some insurances are taking abit longer..
      This is a great forum for any questions you may have..
      i wish you the best in preparing to start treatment..
      Beth

    • rileyann March 23, 2014 at 1:29 pm #

      Hi Al, I was tested for the Genotype 1a, also recently my hepatologist did a complete “variant” screen. What did your Dr. say? I don’t know about Medicaid, but this site has several resources. I got a grant last week through panfoundation.org to pay for part of my co-pays. I take the combo: sovaldi/olysio, also known as “off label” (see Cosmos Study), for its efficacy in trial with high cure rates to clear hep c virus. Good luck and keep us posted. Peace, RA

    • Connie M March 26, 2014 at 11:14 pm #

      Hi Al,
      Thank you for writing. These are great questions. Yes, Sovaldi is approved for Genotype 1. As for SSI approval, I know many who are getting help who are on Medicare A & B, but you will have to go through some paperwork and seeking out the right resource. Have you talked with your physician about the Sovaldi treatment?

      Here is a link to a post that will help offer some resources:
      https://www.lifebeyondhepatitisc.com/2014/02/cant-afford-hep-c-treatment/

      You can call or contact Gilead’s Support Path http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      Also try the Patient Access Network http://panfoundation.org/
      for more information with help paying for Sovaldi.

      There are lots of resources out there. Keep me posted on your progress. If I can help with any questions or more information, let me know.

      You are in my prayers~
      Many Blessings,
      Connie

  42. Héctor Ramírez March 25, 2014 at 10:28 pm #

    Hi Connie: I read all the comments and your replies. I have been detected on November last year with Hep C. I have not received any treatment yet because my viral load was just 365,000 , but now I have 14,000,000 and my doctor told me about the new treatment with Sovaldi. I am from Dominican Republic and here we don’t have any expectation about this treatment. Here is a dream yet. I want to know if you have some program for help persons with this treatment. Here there is a hospital with a help program for poor patients with interferon and rivabirin. How can I access ? If I get a help from an public institution how we can get Sovaldi. There is any possibility you make a donation for our poor country for this program please.

    • Connie M March 26, 2014 at 11:00 pm #

      Hello Hector,
      Thank you for writing and sharing. Do they have Genotype testing there? This test will determine which virus strain of Hep C you have. Each virus strain along with your liver condition will help determine which treatment is best suited for you. If this test is available there I would encourage you to do it.

      You can contact the World Hepatitis Alliance to get more information on treatment in your country or in the nearest country next to you or if they know when Sovaldi or other treatment will be coming to your country. You can also contact Gilead Sciences through their Support program, http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      All Hep C treatment is only available through a prescribing physician. Unfortunately I am not familiar with regulations regarding physicians from other countries getting the treatment from the US. I would contact Gilead directly through the above link to ask those questions.

      I will follow up with another resource I have and see what information I can find out and I will follow up with you and contact you through your email.

      You are in my prayers Hector. Keep searching and stay strong.
      Talk to you soon.
      Blessings,
      Connie

  43. Héctor Ramírez March 26, 2014 at 2:29 pm #

    Connie Reply me please!

    • Beth March 26, 2014 at 4:24 pm #

      Hello Hector, I’m not sure if this helps, but if you get on Gilead.com, then click on the Sovaldi ion they have a Support Path Hotline, you could call and talk to them about maybe getting help with Sovaldi..
      Beth

      • Connie M March 26, 2014 at 11:02 pm #

        Hi Beth,
        Good advice on contacting Gilead and their Support Path Hotline. Thank you for reaching out!

        Blessings,
        Connie

      • Héctor Ramírez March 28, 2014 at 10:07 am #

        Bmth: thank you for the información. The telephone number that appears in the link you send me it’s wrong. I check with dialing others numbers and is correct. Do you have the correct number or can you dial from your country to checking if its the access from my country. Thank you in advanced
        Hector

      • Héctor Ramírez March 28, 2014 at 10:08 am #

        Beth: thank you for the información. The telephone number that appears in the link you send me it’s wrong. I check with dialing others numbers and is correct. Do you have the correct number or can you dial from your country to checking if its the access from my country. Thank you in advanced
        Hector

  44. Sandra March 27, 2014 at 12:07 am #

    Hi Connie,I am almost done 7 more days ! I cant believe its almost over..I went to the Dr. on Mon.and he said I needed labs again 4/7/14 and again 4 weeks later 5/5/14 .The most important labs are the ones in May.If it is still negative for the hep c virus he said I am CURED ! Thats it…. ONLY 2% chance of failure with the solvadi/olysio combo. The odds are pretty good that its finally gone.I still find it hard to believe. But it will sink in to my head.I am patiently waiting.I keep praying every day and thank God for another day on this earth.God bless you and all the other warriors I think we are finally winning this battle .Sandra

  45. Sandra March 27, 2014 at 12:20 am #

    Rileyann, I am trying not to take anymore ibuprophen,I read your info on liver damage from its use ! I just took a 500 mg. tylonol instead only one all day before sleep and the 50 mg ultram the headaches are not as bad lately. Thanks for your advice.I have osteoathritis real bad in my knees and hand all joints are swollen so thats probably why I fell better with the ibuprophen but now im scared to add more damage to my poor liver ! it needs to regenerate . I hope and pray the treatment works for you any quickly clears the virus. Thanks again, God bless Sandra

  46. Héctor Ramírez March 27, 2014 at 5:36 am #

    Good Morning .Connie: thenks for your reply. The test sent to Puerto Rico. My genotype is 1a. Please investigate about the donation for a foundation here.

  47. rileyann March 27, 2014 at 12:34 pm #

    Dear Sandra,
    I just noticed your post today, thank you so much, I’ve been wondering how you are getting along. Please check with your Dr. about his opinion on Ibuprophen, I used to think I couldn’t take Tylenol until my GI doc said it’s ok, and in my case, only up to 1000 mg, per 24 hours, sorry that’s a repeat.Since we are both on the same combo of meds, I wanted to share that my side effects have been almost nil, except for one “pressure” headache in the a.m. Also, after a long, hot steamy shower and shampoo, I felt a bit light headed. I also wanted to add that I’m praising God for this week I again called panfoundation.org about the over and above co-pay amounts (4550.00 per month) and they gave me one grant already. They quickly approved my second request! Wow I got a double dose of how God really can do more that we can ask or think (paraphrase)!! I had been thinking I had to call in a car loan from my daughter, but really know she needs the car out in CA, or even sell my own trusty car, but God went beyond that. I’m looking for a good NT on CD and/or MP3 which I can carry around with me when I’m out to listen. Well, of course, I rambled on again. God richly bless you today and each day as you enjoy overcoming this thing, and yes, I’m thankful I can enjoy the sun and beauty of today also. I really want to move to a warmer climate when all this is done and I can pack up my condo, probably rent it. At best I will have my daughter here with me in August to help me move. That is my goal, as I want to get involved in an on fire church and build new relationships in ministry. I owe my life to God and I’m sold out. See you in support group tomorrow, Peace, Riley

  48. Rob April 4, 2014 at 2:02 am #

    Hi Connie, I have hepatitis C type2. I’ve never drunk alcohol in my life and so my liver is in good shape but I want to get rid of this disease. I’m experiencing some symptoms. My doctor told me that it will be another year before so Sovaldy is approved without the use of ribivarin.

    I don’t want to take interferon or ribivarin! I don’t want to deal with the side effects. I can’t find any information on the Internet to indicate if there are studies underway to allow the use of Sovaldi or the other competing new hep c drug to be used alone. Do you have any information about this?

    Thanks
    Rob

    • Connie M April 4, 2014 at 5:13 am #

      Hi Rob,
      There is an new treatment that is considered off label using Sovaldi and Olysio together without Interferon and Ribavirin. There are a great many Hep C patients who are doing this treatment who could not tolerate Interferon and Ribavirin. You might consider talking to your physician about this option to see if it would be suited for your genotype.

      Hope this helps.
      Keep us posted on how you are doing.
      If I can help with questions or information, feel free to let me know.

      You are in my prayers.
      Blessings,
      Connie

  49. Sandra April 5, 2014 at 6:47 pm #

    Hi Connie and fellow warriors,I finally finished my treatment with olysio/solvadi ! yippee done ! 12 weeks ! early in my treatment(4 WEEKS AFTER I STARTED) I did have perfect labs with no virus showing its ugly head.. Monday I go for blood work again.The final blood work which will determine if I am indeed cured from hep c virus will be on May,4… The Doctor said if its still negative I am considered CURED ! Praise The Lord ! Blessing to all of you and I hope you all have good results. Hang in there its not too bad .goes quickly ! From what I understand the rate of success is 96 % THAT IS PRETTY DARN GOOD ! Will keep you posted .Sandra

  50. Pacman April 22, 2014 at 6:34 am #

    Dear Connie Madam and respected fellow readers , a very good day to you all and i hope that my message finds you all in better health and spirit this morning .
    I am 42 y / Male and live in New Delhi , India , I was Infected and diagnosed with Hcv geno 1a in the beginning of 2007 due to a blood transfusion .

    I went through 23 weeks of soc ( inf + riba ) and has to be taken off due to massive side effects of the two drugs which nearly or actually did cripple me .
    I was originally going to be treated for 48 weeks tho .
    I did clear the virus on the 12th week of tx and stayed clear till the 23rd week while under tx , but relapsed 3 weeks after stopping .

    It has now been nearly 7 years since my tx and i do still have the virus , i did get a liver biopsy in early 2011 and my results showed Fibrosis as ” 0-1 ” with no other problems .

    I also get my viral load done and it was pretty hight then , i have not bothered with it again as the viral load can fluctuate a lot depending on fever / stress etc i feel and it is a very expensive test to get done here in India + the fact that insurance does not pay for anything here ( which is another long story – lol ).

    i would also like to mention that i visited my hepatologist about 5 months ago and he performed a fibroscan with some new machine , the result was ” median 4.4 ” he said that i was doing fine and should wait for new tx to come .

    Now i see that Sofosbuvir by Gilead is out in the market and that it can be purchased with a docs prescription from the usa or uk .
    There is also a company here in india that could provide the sofosbuvir for me but at the market price of nearly $80.000 … whoaaaaaaa ….
    sadly i cannot like many others afford that .

    Lastly and most importantly , there is a hospital here in New delhi who is starting the trials for the Sofosbuvir + ribavirin combo and i have met the doctor in-charge of the study . This study is a trial being conducted by Gilead to enter the Indian market .

    My Doctor has not promised me anything yet , but has asked me to meet him again and see how and if he can get me on the trial .

    THE QUESTION is 🙂 … should i go for it !!! This study would be 400 mg Sofosbuvir daily + 1200 mg of ribavirin ( i am 80kgs – so thats weight based and fine ) and would be for 24 weeks .
    The cure rate on this study is 75% as per many trial results .

    I do know that Gilead is in talks with many pharma companies in India to give them the patent and also Gilead may get the this drug to india at a cost of $900 – $1000 for 12 weeks tx in the future , but the future may be 2-5 years , who knows !! .

    There may also be a trial of ” sofosbuvir + ledipasvir + Riba” for 12 weeks in the future in india which i could try for but that too is not certain yet .

    What ” I ” would like to do is 12 weeks of sofosbuvir with riba and interferon and get it over and done with ( i would somehow mange it and i know i could manage it ) but that dosent seem to be happening as i dont have and neither can i afford to buy the Sofosbuvir on my own .

    I am just utterly confused about the fact ” should i get on this trial with a 75% cure rate ” or should i hold off till something better with a higher cure rate comes along .

    I am currently healthy and so is my liver , i do have fatigue and a lot of it , but that only seems to be my issue with hcv and the fact that my alt is always a bit above normal . ( alt has always been raised for past 7 years ) .

    i hope you will share your thoughts with me and advice me as to what you think wold be a good step for me to take .

    i wish you well
    God bless and warm regards

  51. Connie M April 22, 2014 at 11:18 am #

    Hi Pacman,
    Thank you so much for writing and sharing with us. There is great need for treatment for so many. I wish it was available to every single person without limitations. I pray someday that will be.

    You asked if you should go for the trial that is currently available?
    I would definitely go for it! Treatment with Sofosbuvir (Sovaldi) has been very effective. From all the information I have studied and from what my own Hepatologist has said, the quicker you can attack the virus with treatment the better off you are going to be.

    If you are able to get into a trial with Sovaldi and it not cost you, that is a good thing. I do not have the answer of when other trials with the new combination treatment will be available in India, but we are getting reports of Gilead and other drug companies beginning to open up Sovaldi in other countries. We just don’t have a definite timeline has to when all that will happen.

    Improvements and progress is being made all the time. I know in the US there are going to be new HCV treatments coming out later this year and next year, but no one can estimate the cost. Once other drug companies come out with similar drugs to Sovaldi that is when we will probably see the price go down.

    This trial sounds like a good opportunity for you.
    Pray about it and ask God to give you direction.

    We stand with you in prayer.
    Keep me posted on how you are doing and what you decide.
    We are here for you!

    “(You) can do all things through Christ who gives you strength.” Philippians 4:13 (emphasis mine).

    Prayers & Blessings~
    Connie

  52. Arif Sattar April 28, 2014 at 9:58 am #

    Hi Sandra,

    My wife who is 37 yrs old has Hep C genotype 3, can you please advise as to the availability of Sovaldi in Pakistan? If the Sovaldi is not available in Pakistan then what other options we may have to get this drug for treatment?

    Many thanks for you help and advise

    Regards, Arif

  53. Mahesh Keswani April 30, 2014 at 1:00 am #

    Dear Connie,

    I am suffering from Hep C Genotype 1A which I came to know about this only in Oct 2013 ,I am 59 years Old , I got this because of blood transfusion in 1973 ,
    I only have Fibrosis and Dr says can wait for some time till medicine (Sovaldi) is available in India Mumbai , I do not wish to wait , I can stretch my resources and can buy this medicine , please inform how do I go about this and which is cheapest way of getting it , I can ask some body from my family to go to UK and buy also or any other way I can get ,

    • Connie M May 6, 2014 at 8:08 pm #

      Hello Mahesh,
      Thank you for sharing about your diagnosis of Hep C. You asked about the availability of purchasing Sovaldi? I am afraid all Hep C Treatment, including Sovaldi, can only be obtained by your prescribing physician and be under a physicians care for blood tests and monitoring while on treatment. Sovaldi is currently so new here in the US. Is has only been released since Dec 2013. I know it takes time for the new Hep C treatments to become available in other countries. I do not know exactly how long it will be before Sovaldi is available in India. We are hearing reports that a proposed filing date has been set for sometime in 2014 for Gilead to work with other drug companies to bring this treatment to other countries, including India. Again, I do not know of any specific time.
      I do know Sovaldi is now available in Europe but as with all treatment it cannot be purchased out right. You can only receive it through prescription from you doctor.

      I am not familiar with medical visa’s as to traveling to another country for medical care. I am so sorry, I wish I had more information for you.

      I would advise you to keep checking back with your physician for regular check up’s and tests and see when they will hear of new treatments becoming available there.

      You are in my prayers.
      Blessings,
      Connie

  54. shehneelabhatti May 4, 2014 at 2:47 am #

    hello thanx for ur guidance my mother is suffering from hep c is sofosbuvir present in pakistan please guide me

    • Connie M May 8, 2014 at 6:13 pm #

      Hello Shehneelabhatti,
      I am coping the information I wrote about treatment availability presently to Pakistan.

      As for the availability of Sovaldi in Pakistan. I believe it will be close but do not have a definite timeline to tell you. From Gilead’s Medical Support information, Gilead has filed registration as of April 2014 to help bring this treatment to Pakistan. I do not know how long it will take for Gilead to do all the necessary paperwork and get approval. My advice is to stay in touch with your doctor about when the treatment will be available.
      If you care to contact Gilead’s Support Path to find out more information here is there link:http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      Praying this treatment will be available to you and so many others there in Pakistan very soon.
      Blessings,
      Connie

  55. Mark May 4, 2014 at 10:19 pm #

    Does Medicare cover Sovaldi in USA ???

    • Rileyann May 4, 2014 at 11:32 pm #

      Mark,
      I can only speak accurately from my personal experience with Medicare recently. Medicare A or B does cover some lab tests, the hospital, your doc or drawing stations will advise which tests they will or will not cover. Some require prior authorization. As to the actual prescription for Sovaldi/Olysia (Sofosbuvir/Simeprevir), mine was written by my hepatologist in a hospital program where I was screened thoroughly for genotype, variants, indications, etc. I took about 2 weeks for my Medicare Part D (drug) plan, which I had personally chosen, to decide to approve it. I got help so far for funding towards the 3-month copays by calling the Patient Assistance Network administered by Gilead Sciences, here in the US. You can find their phone numbers online. From what I’ve heard, not all Medicare Part D Rx Plans approve it, and some approve, then deny. I hope this helps somewhat. Also, Gilead Sciences themselves commit to help those who are not insured or underinsured. There are so many new meds following this breakthrough, for sure they will not all carry such a high price tag.
      Rileyann

    • Connie M May 5, 2014 at 2:52 pm #

      Hi Mark,
      This is a good question. Medicare does cover some of the testing, but you would need to contact Gilead’s Support Path and speak with an advisor about your exact coverage. They do offer assistance through many other resources as well if you don’t have enough coverage.
      You can contact them at: http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi or call 1-855-769-7284 Monday – Friday 9am to 8pm Eastern Time.

      Here are some additional resources to check out as well:

      Patient Access Network Foundation: 1-866-316-7263/panfoundation.org
      Patient Advocation Foundation at: http://www.patientadvocate.org/

      In addition here is an article that lists more resources:
      https://www.lifebeyondhepatitisc.com/2014/02/cant-afford-hep-c-treatment/

      If you have further questions, feel free to let me know.
      Blessings,
      Connie

  56. Harish May 4, 2014 at 11:03 pm #

    Hi,

    My father has been sufferin from with Hep C since last year and he went through medical treatment but still poistive. Last month, Dr prescribed the Sovaldi (Sofosbuvir) but it is not availble in Pakistan.

    I would be grateful if you could help us in getting this asap.

    Thanks in advance

    Regards
    Harish

    • Connie M May 5, 2014 at 3:49 pm #

      Hello Harish,
      Thank you for writing and sharing with me about your Father’s condition.
      Sovaldi or any other Hep C treatment meds cannot be purchased out right. You can only receive the medicine through your prescribing doctor when the medicine becomes available in your country, or if you are able to get a medical visa to another country. I do not have information on medical visa’s.

      I do have information that Sovaldi has filed for marketing approval for Pakistan in April 2014, but I do not know any other information. You would have to check with your doctor to find out if they have heard when it will become available. Since Sovaldi is still currently so new in the US, it takes awhile to get approval for other countries. I know Sovaldi is also available in Europe. But again, the only way a patient can receive treatment is through their prescribing physician so they can be monitored and regular blood work can be done.

      You can also contact the World Hepatitis Alliance: http://www.worldhepatitisalliance.org/en/ to find out more information regarding treatment in Pakistan.

      I hope the new treatment will be available to you Father very soon.
      Praying for you & your family.
      God Bless,
      Connie

  57. Jeff May 6, 2014 at 2:10 pm #

    To All Chronic Hep C Sufferer’s,

    I just want to say that Sovaldi is it! I was infected 1 year ago from a home done tattoo and was diagnosed with the virus 6 months later when I began noticing strange symptoms. I started treatment with Sovaldi triple therapy with Interferon and Ribavirin on 03/07/2014 with a starting viral load in the 130,000. After 5 weeks my viral count came back negative and i have only 3 weeks left to go on the treatment. I just want to praise the makers of this drug as I am feeling fantastic and I feel I am about to get my life back. To all those going through the treatment or about to start I want to issue this message out as hope. Stay strong and you can do this. The outcome is far worth the high copays your going to have. The worst symptoms I have had is insomnia and some mental fog. Dr. said take a Benadryl every night to counter the insomnia but over all I want to say stay with it. This definitely seems to be the cure that everyone has been waiting for. God bless all and good luck.

    • Connie M May 6, 2014 at 2:21 pm #

      Hi Jeff,
      Thank you so much for writing and sharing your Hep C treatment journey. I am so happy to hear you are Non-Detected and doing so well on treatment. Praise God! I appreciate your sharing your side effects. It’s so important for others to hear information from those who have gone through treatment.

      You are almost half way through! Awesome job! You are doing great.
      Keep us posted on how your doing.
      Praying for you as you complete treatment.
      Blessings,
      Connie

  58. Arif Sattar May 7, 2014 at 1:54 pm #

    Hi Sandra,
    My wife who is 37 yrs old has Hep C genotype 3, can you please advise as to the availability of Sovaldi in Pakistan? If the Sovaldi is not available in Pakistan then what other options we may have to get this drug for treatment?
    Many thanks for you help and advise
    Regards, Arif

    • Connie M May 8, 2014 at 6:05 pm #

      Hello Arif,
      Thank you for writing and sharing about your wife’s diagnosis. As for the availability of Sovaldi in Pakistan. I believe it will be close but do not have a definite timeline to tell you. From Gilead’s Medical Support information, Gilead has filed registration as of April 2014 to help bring this treatment to Pakistan. I do not know how long it will take for Gilead to do all the necessary paperwork and get approval. My advice is to stay in touch with your doctor about when the treatment will be available.

      If you care to contact Gilead’s Support Path to find out more information here is there link:http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      Praying this treatment will be available to you and so many others there in Pakistan very soon.
      Blessings,
      Connie

  59. Hina May 9, 2014 at 10:49 am #

    Hi Connie,

    My mum is suffering from hep C since 2000, she had twice interferon treatment, once interferon and then peg interferon in te last couple of yrs but her virus is still active, heard about this new treatment and recommended by doctor, but my mother can not afford this treatment, is is possible to get any support with the price? she is very worried.

    Regards
    hina

    • Connie M May 9, 2014 at 11:34 am #

      Hi Hina,
      Thank you for sharing about your Mom. There are resources available in the US if you are a resident through Gilead’s Support Path:http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      If I may ask what country you are from that way I will know best how to help you.

      Blessings,
      Connie

      • Hina May 10, 2014 at 6:15 am #

        Thanks for replying Connie, she lives in Pakistan but she is visiting me in Uk at the moment, She went to see a liver specialist here who recommended that, is there any chance of discount on price?

  60. Sandra Edwards May 10, 2014 at 11:53 am #

    I am almost at 8 week mark with new drugs Sovaldi and Olysio. No side affects and I’m amazed. Was it working? Blood work is showing ni normal with no Hep C. I could not afford this medication plan even with my insurance. But there was help and I was eligible. I know there is help. The drug company assisted me in getting on this coverage. Prayers that it remains gone. Hope is there.

    • Connie M May 12, 2014 at 5:29 pm #

      Hi Sandra,
      I am thrilled to hear of your good news! Congratulations on being at your week 8 Mile Marker!!! You are almost in your last stretch of the treatment. The Summit is in site!! Yay!!!! Praise God it is working!!!
      Thank you for sharing about your experience with getting coverage assistance. This is such fantastic news.

      Keep me posted on how you’re doing.
      Praying for you and being Virus Clear from here on.
      Blessings fellow warrior,
      Connie

  61. mohammed May 13, 2014 at 2:34 am #

    I am suffering hcv antibody reactive test ahga khan hospital but I not start treatment because I am poor man it is expenses high cost I new see medicine what I can use how long for hcv reactive

  62. Adeel May 13, 2014 at 12:07 pm #

    Dear Connie madam,
    I am so thankfull to you and your blog and being praying for you that how bravely can you helps others by guiding them,
    well miss! my mother is of 45 and she is also suffered from HCV so, i want to ask that when this medicine will available in pakistan, as doctor says that may be it will be available within two months in pakistan,but i think i got my answer by read your above replies that you also have no exact idea that when this will be available in pakistan

    Thanks

    Regards,
    Adeel Hussain

  63. Lisa May 13, 2014 at 7:50 pm #

    It has been a while since I’ve been on this board. After the triple therapy didn’t work I was really disappointed.

    Went to the Dr. today for my 6th month checkup and will be starting Sofosbuvir and Olysio within the next month or so. She said we had to do a test for some specific gene that would tell her whether I needed to have Ribavirin as well but that’s fine.

    I am excited about the results that have been shown thus far and looking forward to finally being Hep C free!

    Lisa

    • Connie M May 14, 2014 at 12:50 pm #

      Hi Lisa,
      Thank you so much for sharing. This is amazing news. I am thrilled that you will be able to do this new treatment. So many are having great results. Be sure to keep me posted on your start date and how things are going.
      I will be praying for you every step of the way.
      Blessings fellow warrior,
      Connie

  64. AAmir May 15, 2014 at 5:21 am #

    When will available in pakistan

  65. AAmir May 15, 2014 at 5:25 am #

    My wife suffering the Hepatitis C and also i have complete 3 month course from agha khan hospital but positive result not found due to this doctor has stop the treatment and told me wait for few month tablets will available in pakistan next few month pls confirm me when tablet available in pakistan and about it coast i have also lost money in vaccination but virus is not clear

    • Connie M May 28, 2014 at 3:40 pm #

      Hello Aamir,
      Thank you for writing. I am so sorry to hear you and your wife are dealing with Hep C. I know you are asking for information about when treatment with Sovaldi will be available in Pakistan. I have written a gentlemen by the name of Quandeel, (see below) the same information. If you care to read what I have written him, it is the same information I have for Pakistan. I hope and pray treatment will be available soon for you and your wife there in Pakistan.

      I hope you can receive more information from Gilead about Sovaldi coming to Pakistan.
      You are in my prayers.
      God Bless You,
      Connie

      • AAmir May 30, 2014 at 4:40 am #

        Hello Connie,
        Thanks for your replay, my wife geno type is 3 and i have already complete 3 month course from Agha khan hospital injection name is Teget 180 (Hilton pharma) but result not satisfactory and doctor has stop the tretment i want to know about the sovaldi result it will 100% or not

        • Connie M May 30, 2014 at 11:41 am #

          Hi Aamir,
          I’m so sorry to hear you and your wife’s treatment was not successful. I am not familiar with Teget. But with Sovaldi and the current treatment available, the cure rate is very high, in the 90% range but not 100%. Great progress and improvements are being made for new treatments in the future. Each patient’s Genotype, does help determine which course of treatment is best suited for them to clear the virus.

          I pray that new treatments options will be available to you both and your country very soon.
          Blessings,
          Connie

  66. qandeel zanib May 21, 2014 at 8:55 am #

    hi.. my mum is suffering from hep c and she got injections 5 years ago.but now she has virus again is this new med effective for her as she is not a naive patient..n she is living in pakistan.
    plz do reply me
    thanx

    • Connie M May 28, 2014 at 1:50 pm #

      Hello Quandeel,
      There are several tests that would help her physician know which treatment is best suited for your Mom. Genotype test (which virus strain of Hep C)along with other tests and past treatment history if any all goes into consideration when determining treatment.

      Here is the information I have regarding current treatment availability in Pakistan:
      Until recently here in the US as worldwide there has been limited treatment options available. Within the last 6 months here in the US with the new release of Sovaldi from Gilead Sciences and Olysio from Johnson and Johnson, we have seen new treatments options. I know it takes time for these drug companies to apply for registration to be able to manufacture and get approval for each country.

      Gilead the makers of Sovaldi has provided information as to a registration timeline for 2014 for application to bring this treatment to Pakistan, but unfortunately I do not know more than that. If you care to contact Gilead’s Support Path directly hopefully you can find out more information. Here is there link:http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      You might also contact the World Hepatitis Alliance: http://www.worldhepatitisalliance.org/en/

      Sovaldi or any other Hep C Treatment medication can not be sold out right. It can only be obtained through a prescribing physician in the country where it is approved to be used. And the patient must be monitored by the physician. I do know the European countries now have Sovaldi and other new Hep C Treatment. I am not familiar with medical visa’s or means by which someone may be treated from another country other than the US. I am sorry I do not have more information for you at this time.

      I hope you will be able to use the contacts I listed above and receive helpful information. The new treatments for Hep C are still new here in the US, since they have only been released in the last 6 months. I pray that soon all treatments, Hep C information and testing will be available to everyone worldwide.

      I hope and pray the best for your Mom.
      You and your family are in my prayers.
      Blessings,
      Connie

  67. Asif May 29, 2014 at 8:40 am #

    when these tablets will be available in Pakistan, and what will be price of 6 month course?

    • Connie M May 29, 2014 at 10:57 am #

      Hello Asif,
      We do not know when this treatment will be available in Pakistan nor do we know what price it will be in Pakistan. Currently in the US, Sovaldi from Gilead Sciences is approximately, $1000 per tablet but that does not include the other medication needed to complete treatment. We are hopeful that by the end of this year and 2015 with new Hep C treatments coming out the cost will be adjusted.

      The only information I have from Gilead regarding Pakistan, is they have filed sometime in 2014 a registration to be working towards bringing treatment to Pakistan. Unfortunately I do not know foreign policy or how long it takes for oversea’s pharmaceutical companies to provide medications.

      Please contact the World Hepatitis Alliance to find out more information: http://www.worldhepatitisalliance.org/en/

      I pray this will be available to all countries worldwide very soon.
      You & your family are in my prayers.
      Blessings,
      Connie

  68. Teri June 1, 2014 at 8:12 pm #

    What are the risks for a patient being treated with Solvadi who has an LVAD device? My husband cannot get on the heart transplant list until his Hep C is treated. Has there ever been a patient treated for Hep C with an LVAD device and if so, what was the outcome of his/her treatment? Thank you

    • Connie M June 8, 2014 at 11:27 am #

      Hi Teri,
      Thank you for writing. This is a very good question to ask about treatment. I am sorry, I do not know the exact answer to this. But I encourage you to talk with your husbands liver specialist about treatment and your husbands LVAD. I have heard of others on the treatment who have had heart and other issues and they have done well with the new Hep C treatment. But again, I would encourage you to speak with his physician, they are the ones to give you the best advice concerning the LVAD.

      Keep me posted on how things are going.
      Your husband and family will be in my prayers.
      Blessings,
      Connie

  69. Noman Ul Haq June 2, 2014 at 5:06 pm #

    Hi Connie
    nice to see your article.

    My mother is patient of hepatitis C with genotype 3. Her doctor, here in Pakistan, has suggested her sovaldi with double therapy.

    The doctor has told that sovaldi is provided by Gilead directly (the manufacturer of sovaldi) in Pakistan at subsidized rate.

    He has furthermore asked us to submit the cheques of heavy smount in local currency (PKR) and Sovaldi and associated medicines will be sent by gilead or its authorized reseller directly to patient’s home in Pakistan at doorsteps via courier.

    I want to ask a few questions to clear some doubts.

    1. sovaldi available in Pakistan is genuine and the same medicine as manufactured and supplied by Gilead or not????

    2. Gilead has any authorized reseller/representative for Asia/Pakistan to whom we can contact for getting genuine medicine at genuine price????

    3. How can we ensure that GENUINE Sovaldi and its associated medicines for double/tripple therapy are available to us at actual price.

    Replying these questions may take a bit of your time but may save a life.

    A quick response with required info will be highly appreciated please.

    Regards,
    Noman ul haq
    Assistant proffessor
    Institute of space technology
    Islamabad,  Pakistan
    Mob:0092 321 6408251
    Home:0092 42 35964478

    • Connie M June 8, 2014 at 11:20 am #

      Hi Noman,
      Thank you for writing and asking these questions. First, let me say I am sorry to hear your Mother is dealing with Hep C. I do understand the need for new treatment.
      I am not familiar with how other drug companies overseas (outside of US) do business but I have contacted Gilead Sciences directly. They have informed me that Sovaldi nor any other Meds for Hep C CANNOT be purchased directly without a prescription from your physician, and only where the drug is approved for use. With ALL Hep C treatment, the patient needs to be monitored by a physician who has prescribed the medication/treatment and have blood work and exams throughout the treatment and recovery period.

      To address each of your questions:
      1. I do know Gilead has applied for Registration application to work with other drug companies in Pakistan as of April 2014. My suggestion is to contact Gilead Sciences directly and ask for information about the drug company in Pakistan to make sure it is the same drug.

      Here is a link to their Authorized Distributors but this may just be for the US, not sure about overseas companies:
      http://gilead.com/medicines/authorized-distributors

      Here is the contact link to Gilead Sciences:
      http://gilead.com/contact

      2. I do not have any overseas (outside of US) authorized distributor information. I would suggest contacting the link I gave you above. *** This is a wise step in checking out to make sure it is the same drug.

      3. I do know the prices for Sovaldi here in the US, but have had reports that the same drug will be available overseas but have a different price than US. I am not familiar with pricing or reputable distribution pharmacies overseas.

      I would do further checking from the links I gave you above. But if your physician is familiar with the distribution pharmacy there, the information is probably correct. In the US, a prescription is issued by the physician to a pharmacy distributor and the drugs are shipped directly to the patient’s home. Then after instruction from the physician, the patient begins the treatment and closely monitored by the physician, with continuous blood work and exams.

      I hope this answers your questions.
      Feel free to let me know if you have any more questions.

      Your Mother and Family will be in our prayers.
      Blessings,
      Connie

  70. Furqan June 13, 2014 at 11:53 am #

    Please read the following news to get Sovaldi in Pakistan

    http://www.thenews.com.pk/Todays-News-6-250341-Oral-drug-to-be-available-at-subsidised-rates-at-HFH-soon

    • Connie M June 13, 2014 at 2:18 pm #

      Hi Furqan,
      Thank you for posting the article. This is welcome news to all who live in Pakistan. Hoping more countries to open up with the new treatment very soon.

      Appreciate your sharing.
      Blessings,
      Connie

  71. rajiv June 21, 2014 at 5:50 am #

    Hi connie. I am from india. My mother is suffering from hepatitus c from last three years. She got injectes but in waste. How much will sovaldi take to make this medicine available india as there are many people suffering Bathinda city. State punjab india. Plz let me know the time. Plz do hurry. I know this will take time but plz provide ur feedback

    • Connie M June 30, 2014 at 1:50 pm #

      Hello Rajiv,
      Thank you for sharing today. I am so sorry to hear your Mom is suffering with Hep C. Unfortunately, I do not know exactly when Sovaldi will be available in India. The only current information I have right now from Gilead Sciences the makers of Sovaldi, is that they have a proposed filing date of sometime in 2014 for application for registration to get approval to make Sovaldi available there.

      I would advise you to talk with your Mom’s physician and healthcare team to see if they have heard any recent news.

      Sovaldi or any Hep C treatment cannot be purchased out right here in the US. It can only be obtained by a prescribing physician and pharmacy where the drug has been approved for use.

      You may want to contact Gilead Sciences directly for further information: http://gilead.com/contact or http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      You may also want to contact the World Hepatitis Alliance for further information as well:
      http://www.worldhepatitisalliance.org/en/

      I hope and pray new treatment will become available to you soon.
      You and your family will be in my prayers~
      Blessings,
      Connie

  72. Ania June 23, 2014 at 8:38 pm #

    Hey!
    Quick question: is Sovaldi going to be available in Mexico? If not, can I buy it in the US with a prescription of my local physician?
    Thanks

  73. Shah June 27, 2014 at 8:28 am #

    Respected and Dear CONNIE M,

    I do appreciate and praise for your efforts to give best possible answers, sending my respect for you and wish you bright future always!

    I am Shah from Pakistan, unfortunately my HCV result appeared positive, but after going through series of my blood examination, i found out although HCV virus is there in my blood but virus is not active at this stage, so my question is, does Sovaldi help to clear out the virus from blood even if it is not active.
    As i have heard from my pharmist that if virus is not active in blood, there is no such treatment exist to clear the virus from blood
    So my concern is to clear non active HCV virus from blood as there is danger, virus may get active at latter stage in my life;)

    With best regards
    Shah

    • Connie M June 30, 2014 at 2:01 pm #

      Hello Shah,
      Thank you for commenting. That is a very good question you asked.
      If the virus is not currently active, yes, there is always the danger of it becoming active. But as for the question would Sovaldi clear the virus even if it is not active, I refer you to ask the makers of Sovaldi, Gilead Sciences and refer you back to your physician for those answers.
      If you care to contact Gilead Sciences directly or ask the question of Sovaldi’s Support Path, here is there link:
      http://gilead.com/contact or Support Path: http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi

      I know most of the virus inhibitors work in such a way as to attack the protein in the virus cell and disarming it from replicating. With the new formulated treatment it works to eliminate detected cells in the body. But please refer to the links above for further information.

      All the best to you.
      You will be in my prayers~
      Blessings,
      Connie

  74. Roberta July 11, 2014 at 5:45 am #

    Hi there!
    My mom -45 years old – suffers from Hepatitis C (gen 1), she just finished the classic treatment with interferon and ribavirin – the only one available in Romania at this time, but she didn’t cure… She just went through one year of painful side effects with no result. I would like to know when is Sovaldi going to be available in Romania. Also, in which other European countries can I find it and what’s the purchase procedure? Do I have to contact a local doctor if I want to buy it from another EU country? Also, what are the chances to get a discount?? I’ve read that the prices are (extremely) high and I know that I can not afford it right now for her. I saw that there are a lot assistance programs in the US, do you happen to know about anything like this in Europe? Please assist, any advice is helpful…

  75. Zaheer July 18, 2014 at 8:51 am #

    Sir,
    Iam suffering with HCV Genotype 1 and getinng treatment Peg intrafron 180 mg and ribavirin 1200 mg at the start of traetment my viral load was 4.24 by PCR quanative but i have injected only four injaction yet & my platelet going down very fast decrased up to 78 please guide me i am from pakistan also tell me about sovaldi availablty in pakistan

    • Connie M July 18, 2014 at 12:30 pm #

      Hello Zaheer,
      Thank you for writing and sharing today. I am so sorry to hear you are dealing with Hep C. It is normal for blood work to go down during treatment with Interferon and Ribavirin. Your doctor will need to monitor your blood work carefully. Be sure to talk to your physician about how you are feeling.

      As to when Sovaldi will become available to Pakistan. Here is an article that can help you with some information.
      http://www.thenews.com.pk/Todays-News-6-250341-Oral-drug-to-be-available-at-subsidised-rates-at-HFH-soon

      I know Gilead Sciences is working very hard to go through all the proper channels in order to make this new treatment available there. Hopefully it will be available very soon.

      You will be in my prayers.
      Blessings to you,
      Connie

  76. craig July 21, 2014 at 6:52 pm #

    OMG!! Im literally cring reading some of your posts being cured from this horrible disease is AMAZING!! I found out i was hep c positive 5 years ago i was so scared of the treatment i never did anyhting about it i dont ever drink or do drugs and try to take good care of myself other than pain in my back and abdomen i dont have tons of issues however i have been waiting patiently for these new amazing drugs to come out so i can rid myself of this horrible demon. I have no clue what geno type i am but reading all your posts and hearing about all your experiences really gives me HOPE!! Im not sure what to do i dont want to poison my body with any of those other horrible medications im 39 now and believe i contracted the disease about 10 years ago its always in the back of my head and im always scared i havent told my family or anyone for that matter. thanks for all the posts you guys give me hope..

    • Connie M July 30, 2014 at 1:31 pm #

      Hi Craig,
      Thank you for commenting and sharing your Hep C diagnosis. I hope you will feel encouraged to go to your physician and find out what genotype you are and seek treatment. Early treatment means you can avoid more liver damage and have a greater chance of clearing the virus.

      My doctor put it to me this way, “Would you rather fight a smaller army now or larger army later when there is more liver damage?” Hep C patients are Hep C Warriors and we have to look at what we are fighting. You can do this Craig! With God all things are possible.

      Take that proactive step and get the treatment you need. You are not alone. Jesus is right by your side and we are here with you too!

      Here is a great scripture that encouraged me when I was facing treatment; “Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you.” Deuteronomy 31:6

      Keep me posted on how things are going. If you have any questions, feel free to ask. We are here for you!
      You will be in my prayers daily.

      Blessings friend,
      Connie

  77. Javed Iqbal July 29, 2014 at 11:25 pm #

    Hi Connie,

    Thanks for great help…

    I’m in Pakistan and my mother is having hep c and I’m looking that when this medicine like tablets will be available in Pakistan. So that i can start medication for my Mother.

    • Connie M August 6, 2014 at 6:59 pm #

      Hello Javed,
      Thank you for writing. I am sorry to hear your Mother is dealing with Hep C. I do know Gilead Sciences the makers of Sovaldi are working very hard for applications and registration for Pakistan so that Sovaldi can be made available there. As to exactly when, I do not have that information. But here is an article that hopefully can help you;
      http://www.thenews.com.pk/Todays-News-6-250341-Oral-drug-to-be-available-at-subsidised-rates-at-HFH-soon

      You can also contact the World Hepatitis Alliance to see what information they have for when this treatment will be made available.
      http://www.worldhepatitisalliance.org/en/

      I hope it will be available to Pakistan very soon.
      You and your family are in my prayers.
      God’s Blessings,
      Connie

  78. SCott August 7, 2014 at 1:09 pm #

    Recently I lost my mother to HEP C after about a 20 year fight. I was diagnosed with the same about 10 years ago and I did the shot treatment which worked but now apparently it has returned. My Doctor is trying to get me on the new pill thats being referred to as a cure and my insurance provider is United Health care they are refusing to cover the pill and will only cover the Shots again…. I checked on the cost without insurance and I was told it would be 1000 a pill? thats like 28,000 a month? Please let me know which inurance carrier is covering this treatment so I Can switch…

    Thank you

    • Connie M August 7, 2014 at 2:35 pm #

      Hi Scott,
      Thank you for writing and sharing with us. I am so sorry to hear about your Mom passing away. I know that is hard on so many levels. My heart and prayers go out to you.

      As for the new treatment with Sovaldi, it is true the cost works out to be $1000 a pill. But the treatment is highly effective with a high cure rate in the 90% range. We are seeing some insurance companies turning treatment down, and some doctors are having to write a letter to the insurance company, explaining medical need for this treatment verus the traditional treatment you were on prior. With letter from physicians we are seeing some insurance companies approving treatment.

      As to which insurance company is paying for treatment, that is varied. Since patient’s insurance company is considered private information, I am not able to disclose that information, but I can tell you to find out what your options (what other insurance companies)you have to choose from and either call them personally prior to signing up to see if they cover this treatment or talk to your pharmacist and ask them if they can tell you which companies are paying for treatment with Sovaldi.

      You can also call Gilead Support Path for Sovaldi and ask them questions and insurance information. Here is their link:
      To learn more about Support Path for Sovaldi®, please call 1-855-769-7284, Monday through Friday between 9:00 a.m. and 8:00 p.m. (Eastern). – See more at: http://www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi#sthash.Wy7Jv21p.dpuf

      Gilead Sciences the makers of Sovaldi also offers financial assistance for those who need help. You can find out this information when you go online to their site or when you call them.

      Here is also an article you might find helpful:
      https://www.lifebeyondhepatitisc.com/2014/02/cant-afford-hep-c-treatment/

      Also, very soon brand new treatment will be coming out in October that will also have a very high cure rate, less treatment time and less side effects. Stay tuned as we will report that release in October.

      Personally, I think we are going to see a shift in help with the insurance companies as soon as these other treatments are available due to more competition in the market.

      Feel free to let me know if you have any further questions. We are here for you!

      You are in my prayers,
      Blessings,
      Connie

  79. sonika August 8, 2014 at 1:16 am #

    HI I AM ALSO SUFFERING WITH THIS VIRUS PLZ HELP ME and millions people like me.
    Cost is very high people of my country india can’t afford it .my treatment is depend on its price.

  80. happy August 17, 2014 at 6:47 am #

    HI I AM ALSO SUFFERING WITH THIS VIRUS PLZ HELP ME ..and now m starting injections for curing hepc virus……24 injectios …can i gud after injection process complete..nd virus will be negative

    • Connie M August 19, 2014 at 2:48 pm #

      Hello Happy,
      Can you explain more about your treatment medication? What is the name of each medication? What genotype (virus strain)do you have? Since I am not a physician and do not know your medical condition or liver condition, I can not answer this question, but I would refer you to your physician who can best answer these questions. I can give you general treatment information and treatment help tips.

      You are in my prayers as you continue with your treatment.
      Keep me posted.
      Blessings fellow Hep C Warrior,
      Connie

  81. charlie benedick August 28, 2014 at 9:30 pm #

    WoW! I was just diagnosed with Hep C yesterday, and to say I’m in shock is a great understatement! I am so please with this website, and the positive information and comments. I am especially please with all the faith based comments!! Thank you for sharing this with us.

  82. md.Abdul Hoque September 15, 2014 at 1:51 pm #

    please help me to give information.how can i get this tablet from Bangladesh

    • Connie M October 6, 2014 at 1:15 pm #

      Hello MD.Abdul Hoque,
      The recent information I have for your region is that Gilead’s Hep C treatment with Sovaldi is being licensed in areas of India which is close to you. I have not heard any news directly about Bangladesh but I know Gilead and other companies are in the process of working with many countries to make new treatments available and more affordable. You can check with World Hepatitis Alliance for more information, here is there link:http://www.worldhepatitisalliance.org/en/

      The only way treatment is obtained is through a prescribing physician where the drug is approved for use. Each patient has to be monitored by a physician while on treatment and into recovery. Hopefully this new treatment will be available in Bangledesh very soon.

      You & your family are in my prayers.
      God Bless~
      Connie

  83. Michelle Diaz October 1, 2014 at 11:46 am #

    This is a great website! I’m so glad I found it. There’s so much interesting, helpful and important information on here! My husband was diagnosed with Hep C/Cirrhosis Genotype 1. He’s 44 years old. He was infected due to a blood transplant he received during his childhood. He never had any symptoms. His doctor wants to start him on the Sovaldi/Olysio treatment but the insurance he has is Medicaid and they denied approval of this treatment. His doctor’s assistant told me she was going to appeal their decision. My husband is desperate to start this treatment, we have 3 kids and I recently lost my job. The price of this treatment is incredible high. I had an uncle (godfather) who recently past away this year due to this terrible disease after battling it for around 30 years including a liver transplant and many treatments. We saw how horrible this disease can be. We were there thru all his good and bad days, all his ups and downs, all the ways this disease changed him. I wish these new meds were available to him years ago. We pray everyday that my husband gets approved for this new treatment or for a miracle from God to heal my husband. We have faith and believe the Lord will give us that miracle. It breaks my heart everyday to think of my loving husband having to go thru any of that too. God bless you all.

    • Connie M October 6, 2014 at 1:06 pm #

      Hi Michelle,
      So glad you found the website. Thanks for sharing what is going on with your husband. We are here for your whole family. Many times if treatment is denied then the doctor’s do have to write an appeal. But you can also contact Gilead’s Support Path to get information on assistance and many are receiving help.
      Here is an article where you can find helpful information and contacts for getting assistance for treatment: https://www.lifebeyondhepatitisc.com/2014/02/cant-afford-hep-c-treatment/

      Also, feel free to join our weekly online support group that meets on our website every Friday called, Hep C Warriors Friday Forum Support Group.

      Let me know if you have any questions. We are here for you.
      Your husband and family will be in my prayers.
      Blessings,
      Connie

  84. Connie M October 25, 2014 at 12:57 pm #

    Ashy and others in Pakistan,
    This is a reply to your comment about Sovaldi availability in Pakistan.
    Here is the current news that I have regarding Hep C treatment with Sovaldi coming to Pakistan, please read this article for it’s helpful information.

    http://www.thenews.com.pk/Todays-News-3-257002-Ferozsons-Lab,-Gilead-Sciences-sign-agreement

    This article was written in early summer of 2014 so by now I am hoping Sovaldi is released for use in Pakistan. I would advise you to check with your physician there on this news. If it is not yet there, I am sure it will very soon.

    Praying for help and healing.
    Blessings,
    Connie

  85. Daniyal Malk October 25, 2014 at 3:10 pm #

    I am how to get or by this madison my doctor advice me to for this medismalik mumtaz 322 b 111 jhour town Lhr pakistan
    C

    • Connie M October 25, 2014 at 3:32 pm #

      Hi Daniyal,
      Many who live in Pakistan have asked when and how the new Hep C treatment will be available there. Here is an article that reported news of Sovaldi in Pakistan: http://www.thenews.com.pk/Todays-News-3-257002-Ferozsons-Lab,-Gilead-Sciences-sign-agreement

      I recommend you to check back with your physician there in Pakistan for this should be available very soon.
      Hep C treatment meds cannot be purchased outright. They can only be obtained with a prescription written by a practicing physician in the country where the medicine has been approved for use. All Hep C patients are required to be monitored while on treatment and recovery. I am not familiar with other countries medication guidelines other than the US, but Gilead Sciences the makers of Sovaldi are working hard with other countries for registration in order to make this treatment available.

      You are in my prayers for open doors for treatment and healing.
      God Bless You,
      Connie

  86. Daniyal Malk October 25, 2014 at 3:10 pm #

    I am how to get or by this madison my doctor advice me to for this medismalik mumtaz 322 b 111 jhour town Lhr pakistan
    C

    • naveed October 29, 2014 at 2:30 am #

      dear daniyal in pakistan this medicine is marketed by m/bf biosciences (ferozsons ltd) pls cotact to there office for registering your patient

  87. Hassan November 6, 2014 at 2:54 pm #

    . My mother has started having ascites. do you think that Solvaldi and Ribavirin will help to eliminate this ascites? I have heard that it will since my liver will have a chance to regenerate itself.My mother has genotype 3 with shrunken liver.Is it possible these 2 medicines helps her to gain health.hope to heaar you soon on aforementioned email..thanks

    • Connie M November 6, 2014 at 3:15 pm #

      Hello Hassan,
      Thank you for sharing with us about your Mom. Yes, I do think treatment would help her. The new treatment with Sovaldi/Ribavirin is very good for genotype 3. You would need to consult with her physician for advice concerning her specific condition, but treatment would definitely be beneficial. The liver is an amazing organ which is able to regenerate itself from certain amount of damage and still function.

      Keep us posted on how she is doing.
      Your Mom and whole family will be in our prayers.
      God Bless,
      Connie

  88. GS Lakho November 12, 2014 at 9:44 am #

    dear con. I am from pak I have daughter 14 year old , she have thalssimia mejer and because of that she got HIV and hep c. I try my best but doct.do not want treat her with Sovaldi. Please help me or find out way as soon as possible . Thanks God bless you.

    • Connie M November 12, 2014 at 8:03 pm #

      Hello GS Lakho,
      I am so sorry to hear your daughter is co-infected. Treatment is normally best determined by several factors, genotype of Hep C (which virus strain she has) and with HIV, certain medications response better to treatment than others. I am not a physician and would advise you to consult her doctor or get a second opinion if possible.

      There is a recent release of the new Hep C treatment with Harvoni made by Gilead Sciences, the same makers of Sovaldi, but this is primarily for genotype 1. There are other medications used for those coinfected with other genotypes but again I would recommend your consulting with your physician.

      http://www.hepmag.com/articles/Harvoni_coinfected_2501_26388.shtml

      Here is another link to the World Hepatitis Alliance whom you can contact to see what information and treatment is available in your area for HIV/HCV. http://www.worldhepatitisalliance.org/en/

      You can also contact: Hepatitis Foundation International http://www.hepfi.org/

      Keep us posted on how things are going. You will be in my prayers for an answer for treatment and healing.

      God Bless You~
      Connie

  89. David258 November 21, 2014 at 11:37 am #

    How many pills per day or per week must you take? I am going to find out what genotype I have. I believe it is 4. . Contracted the disease in 1982 no signs or symptoms yet .

    • Connie M December 1, 2014 at 1:35 pm #

      Hi David,
      How many pills, will depend on which treatment medications are best suited for you. Your genotype, liver condition and past treatment history will help your physician know which treatment is best for you. Sometimes dose depends on weight as well if you’re taking a Ribavirin combo. Treatment pills normally range from 1 pill a day to 3 pills several times a day, again depending on which treatment meds you are on.

      Keep us posted on how things are going.
      Praying for you.
      Blessings,
      Connie

  90. jam November 27, 2014 at 12:35 am #

    Dear Conn m , im from Pakistan My mother 60 years old she have hepatitis C some test show u

    liver function test
    S. Bliliburn 0.8 normal range 0.2-1.0 mg/dl
    S.G.P.T(ALT) 47

    Bio Chemistry
    S.Albumin 3.1 normal range 3.5-5.2 g/dl
    blood sugar 120

    Serological
    Prothrombin time (PT) 13 normal range 10–14 sec
    INR 0.92 normal range 1.0 control

    PLT=L 95 10/1 normal 100 range 400
    HGB= 11.5 g/dl normal 11.5 16.5

    do you think that Solvaldi treatment will help to eliminate this HC? my mother want to medicines helps her to health.

    kind regards,
    Jam Zulfi
    +92 3068000977

    • Connie M December 1, 2014 at 1:42 pm #

      Hello Jam,
      Thank you for sharing with me your Mother’s labs.
      Here is an article about Sovaldi becoming available in Pakistan.
      http://www.thenews.com.pk/Todays-News-3-257002-Ferozsons-Lab,-Gilead-Sciences-sign-agreement

      I would advise you to talk with her physician about her genotype and see treatment with Sovaldi is best suited for her genotype and condition.

      Keep us posted on how she is doing. She and your family will be in my prayers.
      Blessings my friend,
      Connie

  91. Danish Gulzar November 29, 2014 at 9:04 am #

    helo i am from pakistan.Can you plz tell me how can i get the tablet Sovaldi as soon as possible.Thank you

  92. abdul latif pakistan December 1, 2014 at 10:16 am #

    HI CONNI. I M A.LATIF FROM PAKISTAN MY WIFE HAS DIGNOSD H.C SHE STARTED INTERFERON THROPHY YEAR AGO IN 2013. AFTER THREE MONTHS H.C AGAIN DEDUCTED. NOW SHE STARTED SOVALDI AND RIBAVIRINE THROPHY FROM 19TH NOVEMBER 2014. PRAY FOR HER THIS TIME SHE WILL CURE. GOD BLEESS. I WILL BE SHARE WITH U HER EFFECT R SIDE EFFECT

    • Connie M December 1, 2014 at 1:48 pm #

      Hello A.Latif,
      Thank you for sharing with me about your wife’s diagnosis. I am sorry to hear she is dealing with us. I am very glad to hear she has begun this new treatment. Keep us posted on how she is doing. We are here for you both.

      She is in my prayers.
      Our special scripture this week is from Matthew 14:27, Jesus said, “Don’t be afraid. Take Courage. I am here.”

      Prayers & Blessings,
      Connie

  93. abdul latif pakistan December 2, 2014 at 8:07 am #

    hello ,connie thank u for ur reply me. i m hopeful for this treatment. tomorrow will some blood test of my wife . she also hopeful. her genotype is 4. i will post u her lab. test report on 5th december. i was excited when i receive this medecian sovaldi with ribavirene. thank god .i achieve this mile stone. remember me ur prayer. her lab test report was on 17th novermber2014 haemodlobe 13.4 g/dl . w.b. 4.37 platelets 50x10e9 sgpt 137 endoscopy report result oropharynx .normal .esophagus : early varices :. gej @37cm. . fundus. no fundal varix .body . moderate erythema. antrum . moderate erytheme . antrum . moderate to severe erytheme . first part. normal .distal part . normal ( this is upper gl endoscopy report ). god bless u.

    • Connie M December 2, 2014 at 10:59 am #

      Hello Abdul,
      We are praying for both of you and look forward to hearing how she is doing.

      “Be confident of this, that he who began a good work in you will carry it on to the completion until the day of Christ Jesus.” Philippians 1:6

      We are standing with you my friend.
      Blessings,
      Connie

  94. abdul latif pakistan December 2, 2014 at 8:46 am #

    thank u JESUS u say us ” dont afraid .take courage. again thanks

    • richard December 2, 2014 at 8:52 am #

      God bless you and your wife Abdul. The Lord will protect you, Richard

  95. abdul latif pakistan December 3, 2014 at 7:08 am #

    again thanks connie. she doing well. some common sideeffect as ftigue, headache,and insomenia. i will share with u her physic day by day . god bless u. and thanks pray for us.

  96. abdul latif pakistan December 3, 2014 at 7:17 am #

    connie again thanks . she doing well. some common sideeffect as ftigue, headache,and insomenia. i will share with u her physic day by day . god bless u. and thanks pray for us.

    • Connie M December 3, 2014 at 11:05 am #

      Hello Abdul,
      Glad to hear she is doing well. A scripture we refer to often here for strength and hope, and beautifully applies to Hep C is; “I can do all things through Christ who gives me strength.” Philippians 4:13

      May Jesus give you both unmeasureable strength, peace and healing.
      Praying for your wife and you each day.
      Blessings my friends,
      Connie

  97. abdul latif pakistan December 5, 2014 at 7:19 am #

    hello connie. today 5th decamber2014 her blood count and sgpt reports received from agha khan hospatals karachi lab. reports are very hope ful sgpt report very successful from 130 to 54 waoooo. but some platlets are down. 50 to 44 this is 3rd week complet of treatment after four week some more lab test. she doing very well. her white and red blood cell are normal ranges

    • Connie M December 7, 2014 at 10:16 pm #

      Hello Abdul,
      Very good news indeed. Congratulations! Thank you for sharing. We are continuing to pray.
      Keep us posted on how things are going. We’re here for you both.

      “I will say of the Lord, “He is my refuge and my fortress, my God, in whom I trust.” Psalm 91:2

      Prayers & God’s Blessings my friends,
      Connie

  98. tanver December 8, 2014 at 4:55 am #

    iam tanver from fsd
    iam use sovide last 4 week . now my pcr report show not dedective
    iam very happy . its wide big news iam wating last 1 year .
    thank gad / sovilde

  99. abdul latif pakistan December 8, 2014 at 11:02 am #

    thank u connie. here is all right. but some gum pain in mouth.she done all work. she is brave working women .now at the time she is on medical leave. some lab. test will be on 19th december. again thanks. god bless u

  100. tanver December 12, 2014 at 9:51 am #

    tanver pak
    12/12/14
    iam use sovilde with ribaviren
    iam use sovild 36 tab,
    my pcr report is now clear . show not dedective
    iam very happy .
    my sgbt 141 to down 37 now
    my platlat down 80000
    hb is also down 14 to 12,4 now
    my brast is pain full und looking big size grow or tiet .
    some time norml .
    my blue rubn is 2.8 to now 2.4
    plz ans me , what is this side efict or short time it norml
    i wat your anr

  101. abdul latif pakistan December 16, 2014 at 8:16 am #

    dear asad. thank u pray for my wife. this medecian now available in pakistan through registration .which is ur home town . ferozesones are registerd company in pakistan those provide this medecian to u at ur door step. three r four months procidure. but easly managed. pl. tel me ur city name .my nd wifes pray for ur sister. god bleess u nd ur family .this is my cel. no.03002404578

  102. Asad December 18, 2014 at 12:58 am #

    Dear Brother Abdul Latif
    Thank you very much for your kind reply, nice prayers and best wishes for my sister and my family. We are living in Faisalabad, can you guide me please to whom we should consult for this medicine, and what is the cost of the total course of this medicine?
    We pray for your wife and for other family members whole heartily.

  103. abdul latif pakistan December 18, 2014 at 7:57 am #

    thank u asad sb. for rply. this is easy to consult with your haypatologist. than some blood test those sugest your doctor. what your genotype. after that doctor sugest treatment .than u registration for that treatment possible sovaldi and ribavirine throphy. total course 24 weeks total cost of medecian Rs.330000. god bless u thanks for prayer for my wife and my family . if possible u contect with me i will guide u easly my cell no is post on upper post. again thanks for prayer.

  104. usman December 24, 2014 at 9:20 pm #

    hello any latest user ov sovaldi

  105. usman December 24, 2014 at 9:23 pm #

    i want to say that the sovaldi which i received is white in colour while i have seen many pics of tab in yellowish colour..is it ok. i am from pakistan.multan

    • Connie M January 1, 2015 at 11:59 pm #

      Usman,
      Color of tablet will be determined by manufacture in your area.
      I am sure it is fine. You can check with your doctor or pharmacy.
      Blessings,
      Connie

  106. A.latif pakistan December 25, 2014 at 11:33 am #

    Usman sahib. This is for pakistan white colour . R original u r lucky u received these tablets.pl. use without any hasitation. God blees u.

  107. usman December 26, 2014 at 3:05 am #

    thanks 4 reply latif sb… another question is that after how much period u gain ur svr…and now everything is alright/?

  108. usman December 26, 2014 at 3:08 am #

    is it ok that my mother received her peg interferon injections on arm subcutaneously.. i mean some says that it should be given on abdomen..

    • Connie M January 1, 2015 at 11:58 pm #

      Usman,
      Injections are normally given on the thigh or abdomen. I would do one of these area’s and rotate injection sites.

      Blessings,
      Connie

  109. yasir December 28, 2014 at 10:43 pm #

    Hi i am yasir from pakistan i need to know when sovaldi will be avalible in pakistan

  110. usman December 30, 2014 at 5:04 am #

    its available in pakistan bhai yasir

  111. usman January 4, 2015 at 12:07 am #

    hello connie i want some information plz reply.. one thing is that u people have used sovaldi almost ayear ago.. i hope that all r still negitive? i mean is it going to clear virus for whoie life?

    • Connie M January 5, 2015 at 9:17 pm #

      Hello Usman,
      For patients who require longer treatment with Sovaldi, this would be a determination by the physician depending on the severity of liver condition and genotype. Standard treatment time with Sovaldi is 12 weeks. For those patients who have done treatment and are now 1 year post treatment if they achieved SVR 12 and remain Non-Detected for the virus, they are cured of the virus. And yes, this means clear of virus for the patient’s life.

      Personally, I am 2 1/2 years from post treatment and remained clear and cured.

      God Bless You,
      Connie

  112. usman January 4, 2015 at 12:12 am #

    hello conie want some information that those people who have used sovaldi almst 8 0r 9 mnth ago r still negitve? if yes than thats a great news for us… i mean have they cleared virus for whole life..?

  113. usman January 6, 2015 at 12:26 am #

    hey connie thanks 4 ur reply.. i wanna say that r u done with sovaldi 2 years ago while i heard that this comes in mid of 2013..and those pts whom u knows almst a year ago all r cured.. ?

    • Connie M January 12, 2015 at 12:05 pm #

      Usman,
      Personally for my treatment, Sovaldi was not available when I did my last treatment. I was on triple therapy with Incivek (telaprevir) which is no longer available and Peg Interferon and Ribavirin. Incivek and Victrelis were two of the brand new treatments that are protease inhibitors formulated to target the Hep C virus cells in a different way. This combination treatment was long and had harsh side effects but the new meds today are greatly improved and have higher cure rates.

      I Interview a great many Hep C patients and those who have done treatment with Sovaldi are doing very well.

      Blessings,
      Connie

  114. Ahmed January 12, 2015 at 8:35 am #

    AOA!
    My mother is diabetes patient but not using insulin, just taking medicine last few years. then Hepatitis C virus in report activated and after that chronic liver disease patient called by doctor after few test. please tell me this therapy is work for my mother to get rid of chronic liver disease or not. Thanks.
    Hoping to hear from any one who know about this.
    Regard.
    Ahmed

    • Connie M January 12, 2015 at 12:00 pm #

      Ahmed,
      Yes, this treatment is very effective with a high cure rate to rid of Hep C and also well tolerated for diabetic patients.

      Blessings,
      Connie

      • Ahmed January 18, 2015 at 9:25 am #

        Thanks, i am thinking to start insulin, becasuse few days its very high 350 to 450 and its not come down. if i start insulin with this therapy. then its work or not and if u have time please explain me how its work on cld (chornic liver diesease) patient.
        Regards
        Ahmed

        • Connie M January 18, 2015 at 9:03 pm #

          Hi Ahmed,
          If your blood sugar is this high then Yes, you should be taking insulin and watching your diet. Be sure to consult with your physician as to how specific treatment meds for Hep C will interact with insulin. Each medication has it’s own drug interaction information. I have not heard of any diabetic that has problems while taking treatment for Hep C, but again, please consult your physician for your specific condition.

          Blessings,
          Connie

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  118. GHULAM HUSSAIN January 22, 2015 at 8:49 am #

    SALAM HRU SIR MY NAME GHULAM HUSSAIN FROM KARACHI PAKISTAN.SIR MUJY HEPATIC “C” HAI AUR MEIN NE SOVALDI TAB 400 MG CHAHYE PLZ REPLY ME AND MY CONTACT IN PAKISTAN 0333 2133712 / 0301 2141080

    • Connie M January 22, 2015 at 12:13 pm #

      Hello Ghulam Hussain,
      Due to our large volume of contacts we can best serve you by mail. If you care to contact me privately with your questions I will be happy to help you. You can write me at Connie@lifebeyondhepatitisc.com.

      Blessings,
      Connie

  119. usman January 25, 2015 at 12:21 am #

    hello connie my mother is using sovaldi with ribavirin and peg interferons from last month..now her cbc report shows that her platelet count is down to 2o thosand.. now dr stoped the interferons.. i wanna say that is sovaldi or ribavirin also decreases the platelets or not.. and what measure we should do to increase platelets during therapy…. waiting 4 ur reply

    • Connie M January 25, 2015 at 8:43 pm #

      Hello Usman,
      Thank you for sharing about your Mothers update with treatment. The platelets are produced in the bone marrow the same as red blood cells. I know it is common during treatment for red and white blood cells to drop as well as platelets. You need to refer to her physician for advise on her specific condition and how he feels is the best for her. When red blood cells drop to a certain level, there are options, this can apply for low platelets as well, but again, be sure to ask her physician. A stimulant medication which are injections called, Procrit or Neupogen are used here in the US to help with low counts. Sometimes a blood transfusion is also necessary, or if counts continue to drop too low, treatment may have to be stopped. It’s common for this to come back up if treatment meds are adjusted. This sounds like what her doctor is doing to adjust for her.

      Keep up with her blood work and ask her doctor the necessary questions about a blood stimulant or blood transfusion if it deems necessary.

      Keep us posted on how she is doing.
      Both of you are in my prayers.
      Here is the special scripture for this coming week:
      “For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear; I will help you.” Isaiah 41:13

      God Bless you my friends,
      Connie

  120. usman January 26, 2015 at 5:24 am #

    thanks 4 reply connie.. dr has already prescribed interlukin 11 injections which r bone marrow stimulent… he asked 4 cbc after one week… i will inform u

    • Connie M January 26, 2015 at 10:27 am #

      Hello Usman,
      Thanks for letting me know about what her doctor prescribed. This is a good plan of action.
      Keep me posted.
      Praying for both of you.
      Blessings,
      Connie

  121. usman January 26, 2015 at 5:30 am #

    and some deit to increase these cells….

  122. ABDUL LATIF PAKISTAN February 3, 2015 at 8:04 am #

    hi. conie m. where r u. here is a big news my wife cure from hc . REPORTS R ‘NOT DEDECTED’ HURRRREEEEEEE. WAOOOOOO. ALL REPORTS R VERY GOOD . sgpt 35 normal . platelates increase 68. here atitute good. i m so happy .this is very good news for us.12 week complete . god bless glied sciences. i receive reports just now. no any side effect. homogloben normel . some white cel decrease. that will b recover. reply me must. nd hurry. word ‘NOT DEDUCTED’. big word for hc patient. god bless u connie nd richerd also.

    • Connie M February 3, 2015 at 1:37 pm #

      Hi Abdul Latif,
      Hooray!!! Many Congratulations on this awesome news! Praise God!!! I am thrilled to hear she is Non-Detected. This is indeed a great blessing.
      I know both of you are so happy. Thank you for sharing this.

      Keep us posted on her recovery. We’re here for you.
      God Bless You my friends,
      Connie

  123. ABDUL LATIF PAKISTAN February 3, 2015 at 10:44 am #

    hi. connie m. word ” dedected ” actual ” not detected ” waoooooooooooooooooooooooooooooooo

    • Mike H February 3, 2015 at 2:16 pm #

      Abdul,
      Praise God! This is exciting news! Your wife has been blessed, not only with a cure but with a loyal and true husband. Congratulations!
      Blessings,
      Mike H

  124. Abdul latif pakistan February 4, 2015 at 12:55 pm #

    Thanks connie nd mike i m great thank ful to both of u .for sharing . Today i have takin a good dinner to my parants for here cure . She also true nd lovely wife. God bless her. Connie nd mike ur dinner is due .when u will come pakistan r we came in ur country..connie i will post here further treatmt. God bless u

  125. ABDUL LATIF PAKISTAN February 5, 2015 at 8:23 am #

    hi mik h ur cimments r very true .i read more than 10000000000000000time . again thanks .this is everbest cimments in my life.

  126. ABDUL LATIF PAKISTAN February 5, 2015 at 8:51 am #

    hi mik h ur comments r very true .i read more than 10000000000000000time . again thanks .this is everbest cimments in my life.

  127. Rachel February 22, 2015 at 5:32 pm #

    Hi Connie. You are God’s blessings to many and may He continue to bless you with everything that you may need.
    Do you have any information on how to get these drugs in the Philippines? My partner has hep C and is now diagnosed with end-stage liver cirrhosis. Please help..

    • Connie M February 23, 2015 at 3:15 pm #

      Hi Rachel,
      You asked a very good question. I do know that as of a few months back Gilead was working on registration licensing in order to bring Sovaldi in a generic form to the Philippines. Everything has to go through the governments process, so I have not been able to find out recent reports for availability timeline.

      You can also contact the World Hepatitis Alliance:http://www.worldhepatitisalliance.org/en/

      Or contact Gilead directly to find out if they have the most recent news from the Philippine government: http://www.gilead.com/contact

      We are keeping a close watch on any reports. When reports are released, we will post on our Life Beyond Hepatitis C Facebook page:https://www.facebook.com/LifeBeyondHepatitisC and/or our website here under Hep C News.

      I recommend this article to help with some dietary needs for patients with cirrhosis:
      https://www.lifebeyondhepatitisc.com/2015/02/4-key-dietary-steps-hep-c-liver-disease/

      Both of you are in our prayers.
      Feel free to let me know if you have further questions or concerns.
      Blessings,
      Connie

  128. Ahmed February 25, 2015 at 10:16 am #

    hi, sorry again few questions raised in my mind.
    My Mother test reports of PCR quantitative and Genotype shown Genotype 3. last message i tell u she is diabetes patient and she is also 60 years of age.now please tell me in this age this therapy work for my mother.
    In this age what kind of side effect she face during this therapy. Using this medicine what kind of medical tests will be taken in a week or in month. In Genotype 3 doctor suggest 6 months therapy with (Solvaldi Sofosbuvir) + ribavirin. I am only confused about the my mother age. Please give me all information about this.
    Regards.
    Ahmed

    • Connie M February 25, 2015 at 11:46 am #

      Hello Ahmed,
      Here is an article that may be helpful to you:https://www.lifebeyondhepatitisc.com/medical-information/new-treatment-for-hep-c/

      Your Mother’s age is fine for this treatment. For a patient who is genotype 3, treatment recommendation is for 24 weeks for Sovaldi + Ribavirin. There is no age restriction for treatment other than with small children. Your Mother’s diabetic condition needs to be monitored while on any treatment for Hep C. This is standard protocol.

      Common side effects reported for this treatment are, fatigue, headache and some patients reports nausea for short period of time, as well as direct sunlight sensitivity. Some low blood counts can occur but monitored. All of these are common side effects with treatment, but most side effects generally ease up and cycle out other than fatigue all throughout treatment.

      I hope this information helps.
      Keep us posted on how she’s doing. We are here for you.
      Your Mother & family are in my prayers.
      Blessings,
      Connie

      • Ahmed February 25, 2015 at 12:07 pm #

        Thanks for replying Connie.
        Really, you are very helpful for me. One question still remaining, during therapy which medical tests are important, and which time its will be taken. Thanks again.
        Blessing……..

        • Connie M February 25, 2015 at 2:02 pm #

          Ahmed,
          Regarding your question on which medical tests are important during therapy? All blood levels should be monitored (CBC)complete blood count, along with liver enzyme panel, and at certain intervals RNA for Hep C viral load count. These are generally basic. But each patient is unique in their liver & overall health condition, since she is a diabetic, her physician will know which tests needs to be run on a regular monitoring basis. Thyroid levels should be run prior to treatment and during to make sure treatment doesn’t interfer with thyroid function. If this occurs, there is thyroid medication to take and can be adjusted as needed. As for all tests, be sure to check with her physician and ask questions. Be proactive. The patient has a right to ask questions and receive copies of all medical and test reports.

          God Bless You & your family.
          You are in my prayers.
          Connie

  129. hammad March 24, 2015 at 3:14 am #

    My father hep c patient and cirrhosis patient use sovaldi

  130. TANVEER HUSSAIN March 27, 2015 at 9:43 am #

    HI I TANVEER FROM PAKISTAN PUNJAB DG KHAN MY UNCLE HAVE HAPATITES C SOVALDE GOOD OR NOT PLEASE TELL ME BECOUSE HE USE AL READY THIS TABLET.

    • Connie M March 27, 2015 at 6:27 pm #

      Hello Tanveer,
      Yes, Sovaldi is a very good treatment. Very high cure rate with less side effects than older treatments.

      Keep us posted on how things are going.
      Praying for you Uncle and family.
      God Bless my friend,
      Connie

  131. Mike H April 5, 2015 at 10:58 pm #

    Please beware of offers like this, Hep C Warriors. I will ask Connie to look into this.

    • Connie M April 6, 2015 at 9:45 pm #

      Thank you Mike! I removed the comment from the person advertising selling these illegal drugs. I appreciate our Hep C Warriors watchful eyes against these predators. Thank you again, Connie

  132. Connie M April 6, 2015 at 9:57 pm #

    ALERT ALL HEP C WARRIORS AND FAMILY MEMBERS,

    IT IS ILLEGAL TO SELL HEP C TREATMENT DRUGS OUTRIGHT. BEWARE OF ANYONE ADVERTISING AND PROMOTING HEP C DRUGS WHERE THEY CAN SELL TREATMENT DRUGS.THERE ARE BLACK MARKET DRUG DEALERS LOOKING TO PREY ON INNOCENT VICTIMS.

    THESE PREDATORS WILL NOT BE TOLERATED ON THIS WEBSITE.

    OUR WEBSITE POLICY STATES: NO CONTACT OR LINK INFORMATION IS TO BE POSTED UNLESS AUTHORIZED BY OUR WEBSITE ADMINISTRATION.