After Hepatitis C Treatment: What Happen’s Next? Part 1

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After Hepatitis C treatment is completed, What happen’s next?  Two specific things happen in post treatment:  One, recovery that your body needs from treatment.  The time for the treatment meds to leave your system and recovery varies somewhat with each patient.  Second, monitoring with blood work, and physical check up’s with your physician.

 

The recovery process does not happen overnight.  Rest and recovery, pacing yourself with getting back into a normal routine takes time.  Be good to yourself and be patient with the process.   From personal experience and doing treatment three times, it has been somewhat different after each treatment.  Here is why.

 

1995 I did my first treatment with Interferon only.  That was the only treatment available at the time.  I was a partial responder in this treatment.  At the time chances were only 20% that we could even get the virus to go into remission.   When treatment ended, I still remained tired and weak but I bounced back from side effects within 4 to 6 months.   After treatment I did retain some side effects with memory issues, and nails extremely brittle.

 

In 2000 I did the second treatment, with Peg Interferon in combination with Ribavirin.  This treatment had a higher percent of putting the Hep C virus into remission but unfortunately I developed complications with side effects and was not able to complete the entire treatment regiment.  I was a partial responder for a short time.

 

In my case, I have auto immune disorder, but I do not have auto immune hepatitis.  The type of auto immune disorders I have are Hyperthyroidism and Vitiligo.  I have also been tested for other auto immune panels.  Because of this condition I had to have more blood work and physical exams to make sure other problems did not arise.

 

When the combination treatment ended, I was very ill from side effects and complications and it took me longer to regain energy. My thyroid had gone wacky and medication was changed, also I had developed severe gastro problems.   It took at least 6 months for me to fully recover.

 

Blood work, physical exams, sonograms and a second liver biopsy was done.  Blood work, physical exams were every 3 to 6 months, then taped off to 6 months to a year.   With sonograms being done once a year.

 

Stay tuned tomorrow for Part 2 of After Hepatitis C Treatment is Completed: “What Happens Next.”

 

More to read:

  1.  American Liver Foundation; After Treatment Ends.
  2. Hepatitis C Treatment Side Effects and How to Get Through Them.
  3. Length of Treatment
  4. Post Hep C Treatment: I’m Back in the Saddle Again.

 

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5 Responses to After Hepatitis C Treatment: What Happen’s Next? Part 1

  1. Leia May 15, 2014 at 12:29 am #

    Wow that was strange. I just wrote aan very long comment
    but after I clicked submit my comment didn’t show up.
    Grrrr… well I’m not writing all that over
    again. Anyhow, just wanted to say wondertul blog!

  2. Sandra Leslie January 12, 2018 at 3:29 pm #

    I just finished 3 months of Hep C treatment of Epclusa and I believe I am having long term side effects from it. I am still feeling fatigued , some days more then others but mainly I am having joint pain!!!! I ache in all different parts of my body that have never bothered me before! My neck, my knees, ankles, wrists , elbow pain are making me think that there is something else wrong with me! The only way I know that it’s from the Epclusa is because my husband went through the same treatment at the same time as me and he had the same aching joints and fatigue!!! I wish there was more info on this for people like me!

    • Richard s. January 12, 2018 at 9:55 pm #

      Sandra, although I took solvaldi/olysio/ribavirin I am always tired. For me it is because of other problems. Sorry I could not be of help. Perhaps Connie might have an answer. Sometimes it takes along time for the medicine to get out of your system. I am thinking about interferon. It took forever. The Lord is faithful. Put your trust in Him. I wish you all the best. You are in my prayers. In Christ, Richard.

    • Connie M January 15, 2018 at 5:07 pm #

      Hi Sandra,
      Do you mind if I ask you some questions? How many weeks or months has it been since you finished treatment?
      Do you have any other liver or medical conditions? Were you diagnosed with cirrhosis? These answers will help me know how to help.
      It sounds like you and your husband have been through a lot, especially at the same time. You are a strong woman.
      Have you talked with your doctor or specialty pharmacy that sent you your meds? Sometimes they have additional information. Joint and muscle pain is not a common side effect of Epclusa. But it is certainly possible this can occur. You can also report this side effect to the FDA though MedWatch. Here is their link; https://www.fda.gov/Safety/MedWatch/default.htm

      If you are continuing to have these symptoms, you might want to read this article and then discuss the possibility with your doctor; https://www.lifebeyondhepatitisc.com/2017/12/extrahepatic-manifestations-hepatitis-c-fibromyalgia-alan-franciscushcv-advocate/

      Let me know your answers to the above questions and I’ll get back to you.

      Blessings my friend,
      Connie

  3. Sandra January 19, 2018 at 5:16 pm #

    Hi Thank you for the replies! It’s nice to know I am not alone. Thank you Richard for the kind, thoughtful words and your prayers! That means a lot to me! I was told that both myself and my husband have stage 3 liver disease and a fatty liver. Don’t know how we would get rid of a fatty liver though. Our numbers both went way down after treatment and I believe the treatment worked! Our Liver Doctor was not a very caring or thorough Doctor as she just started us both on Epclusa after a 5 min visit without any info and would not see us during the treatment! It has been 2 and a half months since we finished the Epclusa. We both are healthy with no other health problems. I am going to ask my GP to refer us to another liver specialist who maybe can be more helpful. We got signed up , saw the Doctor once before they started delivering the the 12 weeks of Epclusa! The reacquisitions for blood work were forwarded ahead to a near by clinic after each month of treatment! It really was The Canadian Liver Society that was concerned about us getting treated and I sincerely believe that we were just a number to our Liver Doctor and maybe The Doctor got paid for every person they could get on the medication! It’s sad but true that there are a lot of doctors that don’t truly care about their patients , follow through or do the detective work that doctors need to do , so they can figure out what might be wrong with a person! Anyways Thanks Connie for your reply and for having this site , where you can actually find out some information and give an account of what happened to you during and after Hep C treatment! You have all been very helpful and I do believe my symptoms are slowly improving. Sincerely Sandra

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